Burning mouth syndrome with weird tonsil pain

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Ive searched the web and only found a couple of cases of anyone with my symptoms as far as burning mouth. I've been diagnosed with CFS, celiac and no food allergies on skin test but soy, dairy, fruit , nuts , and vegetables (including salt) severely burn my mouth and give me ulcers in my mouth as well as make my itch but no throat closing if any kind. I do not have mast cell syndrome either. I do not have eosinphillic esophagitis but endoscopy reveals inflammation and esophagitis negative for acid. 24 hour acid reflux test is negative and I'm on a strict diet. Doctors including the Mayo clinic are baffled because my damage isnt acid related, nor due to eosinphils from allergies and have insisted that food allergies can only cause damage through reflux or eosinphillic infiltration to which none apply to me. I have normak mast cell counts in my endoscopies, negative girl lyme , mold, sibo, candida and h pylori. Elimination diet hrlos with ulcers but not the throat inflammation. The most disturbing part of this is I get sharp stabbing pains around my tonsils that feel like spasms or burns but my tests show no spasms. I've had oral screens as well. At this point, all the specialists at the Mayo clinic are baffled . I can actually feel liquids and solids travel down my throat as well as they enter my stomach. I had a barium test that was normal as well. I have no hernia or lpr. Is there anyone whose had trouble with idiopathic burning mouth syndrome and or throat pain?

Oh I've also been tested for vitamin and mineral deficiencies....gluten, dairy, nut, sugar, fruit , vegetable, wheat free diet only cured mouth ulcers but not throat or tonsil pain. So there ya go.....my ling winded explanation. If you can be tested fir it....I've been tested. I'm not your typical celiac case here it looks like.

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  • Posted

    Yeah someone said they haven't had feeling in their right thigh wow I have had the same thing for years. I'm real big on CBD oil and such products. I've had alot of relief from numerous symptoms. It's just too much to treat everything with different prescriptions and specialist. The products I use cover everything. At least I'm comfortable being miserable. Finding some balance these days. I wish I had an answer for you. Hope it passes soon.

    • Posted

      Thank you, I tried some cbd oil in the past. I may have to revisit that . I didn't take it long so I'm not sure if it helped or not

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