Burning tongue
Posted , 9 users are following.
Has anybody had the feeling there tongue has been burnt? Mine started a couple of days ago, I am hoping it it is Pred and not anything more sinister,I would appreciate your thoughts
0 likes, 13 replies
Michdonn margaret89358
Posted
Hi margaret89358, yes I know the feeling, had it worse last year than this year, it almost disappeared on lower doses. Then I flared and it started all over again, but not as severe. I believe it is the Pred. Good luck, think positive and try to smile. 🙂
margaret89358 Michdonn
Posted
Michdonn margaret89358
Posted
Good Margaret 89358, I believe that attitude is very important. Losing weight I have been quite unsuccessful in that endeavor, good luck. Thinking positive and keeping a smile. 🙂
Anonymous111 margaret89358
Posted
Its called Burning Mouth Syndrome. Its mostlikely caused by the PPI you're taking with Pred.
margaret89358 Anonymous111
Posted
christophe38948 margaret89358
Posted
Hi,
You are right. There is terrible feeling when your mouth Is "paralyzed and burning". I have it for last 8 months and continuously to the end of Pred.
Good Luck.
CW
Reeceregan margaret89358
Posted
Hi Margaret89358
Not “burning” as such, but definitely a feeling as if it has been burnt. That lack of tastebud sensation when you have scorched it with something hot, and the loss of sensation is how mine feels 24/7. Also my teeth are now sensitive to hot and cold, where they never were previously. Tick it up to the long list of possible pred side effects I guess. We will soldier on regardless. 💪
EileenH margaret89358
Posted
Check with your GP - it could be thrush. It isn't uncommon when you are on pred and it doesn't always show up as white patches.
margaret89358 EileenH
Posted
Thank you Eileen, I wish a lot of symptoms that a lot of us have, or have experienced since taking Pred was documented in a leaflet on Polymyalgia rheumatica. We all know about the moon face, and weight gain around our middle. I read nothing in the leaflet given to me by my Rhmy. I have learnt on this forum that we sweat, we suffer from breathlessness, hair loss, facial hair etc if one doesn't go onto this forum you are alone and can imagine all sorts. May you continue to help and advise Eileen your help is invaluable.
Anhaga margaret89358
Posted
You might find this article interesting:
https://patient.info/forums/discuss/i-suddenly-felt-i-d-aged-a-paper-describing-the-effects-of-pmr-542889
margaret89358 Anhaga
Posted
Thank you p, everyone should read it.
EileenH margaret89358
Posted
joey_12298 margaret89358
Posted
My Burning Mouth Syndrome started 8 years ago before taking the Prednisone. My doctor suggested Staying away from minty toothpaste & strong alcohol mouthwashes. Makes it worse! I do not see this ever going away but the burning does seem to have lessen over time. I am at 7mg of Prednisone now.