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Burst of energy?

Posted , 7 users are following.

linfran
linfran

Hello there, I was diagnosed with PMR on 10 June. About a month earlier I couldn't move my neck and went to my osteopath rather than my GP. Rather than improving though, another part of my body would seize up during the following treatments. I was also exhausted. Having googled, I had a good idea what the problem when I finally saw my GP. I began the Prednisolone on 2 July, 15 mgs. My ESR was 44. 

Maybe I should add I'd reluctantly been on Simvastatin for 15 years and stopped it to see whether it could be responsible for the PMR. The jury's out! 

The thing is though since starting the Prednisolone, I feel so much better in every way. I'm doing chores I've been putting off forever and have much more energy. 

Is this fairly normal? I really do think it was coming on for quite a while as I'd seen my GP in March when blood tests proved inconclusive.

I would welcome comments. 

 

0 likes, 31 replies

31 Replies

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  • adette01750
    adette01750 linfran

    Posted

    Hi there, well I've had 2+ years of becoming stiffer and stiffer, even when the physio tried to help a day or 2 later I would be so stiff, until 2.5 weeks ago I couldn't move, just my head my spine was like concrete, couldn't stand the pain everywhere, went to a relief GP who diagnosed PMR started on prednisolone and felt so much better after 4 days, I have my really flat tired days but it's years of exhaustion I expect. I can do more but it tires me if I don't stop after 30 mins, but I hope I can soon do more, but yes I definitely can do more. 

    • linfran
      linfran adette01750

      Posted

      Hi Adette, I'm starting to think there's a lot of sub clinical PMR around. I'm sure you will go from strength to strength. How long have you been on the Prednisolone?

    • adette01750
      adette01750 linfran

      Posted

      2.5 weeks, I know it's early days, the GP is sure it is PMR but the rheumy doesn't but can't take me off steroids now without a reduction programme so I'm grateful for what rest bite I can get after the suffering. 

      I hope you continue to feel the benefits of your treatment too. 

    • linfran
      linfran adette01750

      Posted

      It's a grey area, isn't it. Diagnosis seems to depend so much on symptoms rather than blood tests, etc. Good luck.

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