Buzzing
Posted , 9 users are following.
Have had lichen sclerosis now for six years sometimes its not too bad but a lot of the time it is quite painful Has anybody had a buzzing or tingling pain with LS
0 likes, 11 replies
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Notes on Buzzing
susan18011 ann60038
Posted
Hello Ann, Never had the buzzing, maybe the tingle a little bit. I get that little itch, so I grab the clob. For me, as soon as I put it on the itch is gone. It was pure hell, before the clob cream. Now I'm just dealing with the whiteness.
sarb73328 ann60038
Posted
yep had exactly that - a buzzing. and I still have it on and off 6 years on from diagnosis.
My GP said it was 'cell activity' which is kind of worrying, but I apply more steroid at the times I am aware of it and it seems to subside. Who knows what it indicates as with everything with LS?
deethebee ann60038
Edited
I have had that buzzing feeling on and off for many years, had LS for around 6 years as well. what I will say it that from January this year I've gone onto a gluten free diet and my LS symptoms have diminished considerably. I was having to apply the clob about once a week, that has now gone down to once a month at most. I do apply a mixture of fine borax powder mixed with oil based Yes ointment morning and evening and this also keeps the buzz and itch at bay but I cant stress the vast improvement since going GF!
TheSpaceDust deethebee
Posted
hi deethebee, recently I have started going gluten free, but its only been 2 weeks, how long would you say it was before you noticed the benefits of going gluten free? thanks
deethebee TheSpaceDust
Edited
probably after about a month, I cant exactly remember but I am so delighted with the improvements that I'm going to stick with it as it's so worth it not to have to use the clob all the time. The LS is still there, I dont think its ever going to go away but anything which gives an improvement is a bonus.
beverly52803 deethebee
Edited
I tried gluten free but it made no difference for me. I actually had been on a gluten light diet for years just because of the preponderance of gluten in our diets, but eliminating it completely was very difficult for me. I'm back to eating some gluten with no noticeable change. I saw a functional medicine MD and he told me if eliminating it did nothing he wouldn't bother to continue. My LS is relatively mild, so I could construe my diet as the reason, but I don't. This disease is just one big mystery. Reading these posts over the last 2 years has further proven that to me.
But I do know someone personally who had great results by going GF for another mysterious malady, so I think it's worth a try. Same with sugar. I eat very little of that as well.
deethebee ann60038
Posted
I have had that buzzing feeling on and off for many years, had LS for around 6 years as well. what I will say it that from January this year I've gone onto a gluten free diet and my LS symptoms have diminished considerably. I was having to apply the clob about once a week, that has now gone down to once a month at most. I do apply a mixture of fine borax powder mixed with oil based Yes ointment morning and evening and this also keeps the buzz and itch at bay but I cant stress the vast improvement since going GF!
deethebee ann60038
Posted
I have had that buzzing feeling on and off for many years, had LS for around 6 years as well. what I will say it that from January this year I've gone onto a gluten free diet and my LS symptoms have diminished considerably. I was having to apply the clob about once a week, that has now gone down to once a month at most. I do apply a mixture of fine borax powder mixed with oil based Yes ointment morning and evening and this also keeps the buzz and itch at bay but I cant stress the vast improvement since going GF!
beverly52803 ann60038
Edited
Yes, I've experienced buzzing (clitoral hood only), which came after 4 months of successful treatment with hormone cream and Triamcinolone steroid. My gyn saw no signs of spread of the LS to that area. Any bits of white mostly gone.
I learned here (from Sarb?) buzzing was an LS symptom so increased use of steroid till I was able to see gyn again. She could finally see spread ( I couldn't) and put me on Clob which stopped it, until it didn't. Why I don't know. Gyn was no longer available.
Finally saw a dermatologist though the buzzing had actually stopped 2 days before the appointment. She put me on Tacrolimus + Clob which made me very uncomfortable so eventually stopped using it.
Now, on my own, I'm back to Triamcinolone and hormone cream only. Clob feels too strong.
Never an itch. Sometimes discomfort, poking not a stabbing pain. Maybe very faint buzzing at times.
Have an appointment set for next month with original gyn (who is available again) but not sure I will be back in time to see her because of virus/travel issues.
ann60038 beverly52803
Edited
Thank you for your reply have had the buzzing on and off all day today But as painful as it is i am reassured that other sufferers experience it.
Guest ann60038
Posted
Hi Ann,
I, too, saw no difference from the gluten free as Beverly just said and, when I eat no gluten I seem to be really hungry. Cut out most sugar for a long time now so unsure what cutting out the small bit of dark choc would make. Using the clob maybe once a week, some estro too. Doctors here have not really told me what to do so I am on my own like so many of us here. It's hard to know what to do. Each of us has to experiment with various concoctions like the clob, estro, coconut oil, some prefer olive or vit e. I am sure that stress makes a big difference, perhaps because our immune system ramps up production of inflammatory chemicals or because of our heightened perspective. Relaxation really helps.
best of luck to you.
biscuit