CA125 blood test results

Hi Linda,

CA 125 results are by no means confirmation of anything. If you take a look at nhs website the result can be raised for a number of reasons including endometriosis, fibroids, pelvic inflammatory disease and even pregnancy. When they rush tests through its quite daunting I know but try not to panic too much. Good luck x

Hi ca125 levels are hard ones as can just mean infection too please if it is don't feel. Alone I have a Facebook page with my story wombles small cell ovarian fight and awareness.When I was diagnosed I found an amazing group called ovarian cancer UKthe ladies on there have been so kind I'm sure you will be welcomed even if you don't know yet. They can give support xx

Hello lovely girl I understand your panic but Sue is right , it doesn't necessarily mean OC. I had a very large cyst 20cms in fact and my levels were raised and I was fine. Try to stay calm if you can, sending hugs (( )) x

Thank you so much to everyone that has replied. It is very reassuring. X

I second what everyone says about the levels. Mine was up to 325 and they said I had one complex cyst and one 'mass' on my fallopian tube. I panicked. It turned out to be PID infection in the tube, and the other cyst was just a simple one. I'd been referred to oncology and really thought the worst. But it was ok. I had antibiotics and the levels were back to normal on my next ca125 test a few weeks later. It's more likely to be raised for another reason. Try to stay calm, and attempt to distract yourself and not over think it until you know more. And DO NOT GOOGLE! ! I wish you the best x

Hi Linda i have now been emergency referred to hospital as my c125 is very raised should be between 5 and 35 mine is 93 got a lot of pelvic pain went doc tue got scan Sunday I can understand your worry it's hard not to hope all things go well for you

I had a lot of pelvic pain now had scan def cysts don't know what sort when I last had surgery he said my op was very hard to do if they come back will have to have  hysterectomy 

This has just happened to me I initially went to the gp due to sudden abdominal pain and soft stools because of my age 57 I requested blood tests, never thinking it would come back slightly raised freaked me out and I already suffer from anxiety go said he didn't think it was any thing to worry about but he will know I suffer from anxiety as its on the computer screen he wants a repeat blood test in two wks and referring me for ultra sound, I like you are worried sick my anxiety is at an all time high! What were your symptoms if you don't mind me asking 

I had a CA-125 level of 1551 - from what I found out online it sounded like it had to be ovarian cancer. The first gynecologic oncologist I went to said it was quite rare to see it that elevated in benign conditions but I got a second opinion from another gynecologic oncologist at a more prestigious hospital in Boston, MA. The second doctor said that he has seen elevated CA 125 levels for a multitude of benign conditions and was much more reassuring. I ended up having multiple benign cystic adenomas arriving from the peritoneum, uterus and sigmoid colon. The peritoneum and ovaries are made up of the same type of epithelial cell which perhaps can explain why the CA 125 protein was so high in my case. My cysts engulfed a space approximately 20cmx30cmx40cm, approximately 25 lbs.   The only definite way to confirm what a mass is, is by biopsy. I had a laparotomy with debulking procedure - so they went in to my abdomen via a 10 inch incision and removed all of the masses whole and sent them for biopsy. 

I was lucky but I spent 2 months prior to my surgery thinking that I was going to die of ovarian cancer. I hope this helps anyone who has an elevated CA 125 level and assumes the worst. I sincerely hope everything turns out well for you.