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Can any one else identify with my symptoms of LS?

Posted , 13 users are following.

callianne_65675
callianne_65675

I was diagnosed about a year ago with LS on my labia. I've had the symptoms much longer, though. 

For me, the initial symptom was that I felt a soreness on my labia and following intercourse, it seems to tear or something. I developed from that what looked like a small white sore patch. 

I suffered from thrush a lot and I thought at the time it was a thrush sore. 

(I know, weird). The sore white patch which appears ulcerated is always there. Sometimes painful, sometimes not. 

I am too scared to use the hydrocortisone my Doctor gave me last year since my labia puffed up. Plus it was painful. My clitoris is very sore.  I also have a medical phobia and I am not comfortable with the female Doctor who last examined me. (She was rough, and very brusque, almost rude). My only option was to see her again so decided to try and treat it myself instead. I am to be honest a bag of nerves. I did see a specialist who confirmed the diagnosis. I noticed changes in my clitoral hood, which seems fused on one side and loose on the other, and recently noticed the 'bands' of grey skin in the folds of my labia.

 Can anyone relate to these symptoms, since my doctors seem vague and I'm scared. As I said my only choice is to go back to the rude Doctor since I am on NHS and she deals with skin. My imagination has gone bonkers and I'm convinced this is something sinister or worse than LS. Although this is bad enough, I know. 

I probably will ask more questions regards natural treatments, as I want to keep this relatively short. I am so worn down with fear with this thing, and I've been in tears for days about it.Thank you for taking the time to answer. 

1 like, 18 replies

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  • gill77081
    gill77081 callianne_65675

    Posted

    I was referred by my GP to a combined vulval/gynae clinic (that only takes place every 2 months in another town).  There I saw a dermatologist, and gynaecologist  (two women) and I was prescribed steroid cream (Dermovate) but no other advice and no follow up.  I have learnt more on this site and the internet.  The NHS doesn't seem to be very helpful or knowledgeable about skin problems such as this that have such a dramatic effect on your life. 
  • kate207
    kate207 callianne_65675

    Posted

    Hydrocortisone cream is good for use on LS as a maintainence treatment - some dermatologists suggest using it once daily but only after the LS has been brought under control by the use of Dermovate or similar potent steroid. It is no use when you are undergoing a flare up. You must insist on seeing a dermatologist or gynacologist who is sympathetic. I ended up going privately - it costs 120 euro here in Ireland - but it was worth it, and now I only have a follow-up once a year. Your health is the most important thing you have, so do whatever you can to help yourself. 
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