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I can't see my newer neurologist for a follow up visit of the EEG results until the middle of December. I am going crazy not knowing exactly what this means and pretty irritated they can't just explain it to me over the phone so I don't just sit and worry myself to death.
Any help would be so wonderful!
Thanks in advance to anyone who can help one super stressed girl out!
It's a pretty long description so I will just give what the impression says:
1. This is an abnormal EEG showing frequent focal slowing and epileptiform activity in the left temporal region, indicating both a focal cortical and neuronal disturbance in this area as well as a marked increase risk for seizures of the left anterior temporal origin.
2. Less frequent epileptiform activity seen independently in the right anterior temporal region, indicating an independent focus for seizures in the right anterior temporal region as well. Although there was a lot of epileptiform activity, there was no electrographic seizures.
I tried to google similar EEG findings and all I keep getting in the searches is focal cortical dysplasia and another is medial epilepsy (maybe that last one is not the correct term?)
This has been the longest 7 (almost 8 years) of my life and just found a neurologist who is actually listening to me and understanding me totally. Its been hell.
Either way it's frustrating and I would love to now what this means, how serious it is and what may happen from here if I still have 1-2 grand mals monthly as well as up to 5 or more partials (partials usually in my sleep but also when awake) even while on medication, which has helped considerably as I was having up to 13 grand mals a month when seizures first started in 2008ish. I also had meningitis when I was 12 years old which I read those who suffer from medial seizures are more prone to sicknesses like that. I am now 28. Does this mean medication is not working still since I am still having seizures even though I am on medication?
Also, migraines are nearly a weekly thing and headaches to some degree are daily, if not constant.
I have lost everything since these awful seizures started...including my clear memory. I can't even remember what I'm talking about in mid sentence most of the time and it's so embarrassing. I am sure many of you understand what that's like.
I am desperate to know what all this means in the EEG findings. Help, please!
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