Can anybody offer me some advice?

HI Jardin, like yourself i had all the symptoms.  I was only diagnose with dysplagia and gerd for a number of years, then i saw a mystery diagnose show and told my GI doctor about it, so i was diagnose with Achalasia.  I took every meds you could think of, including the ones you were taking, those only acelarated my heart and made me very agitated.  I went to multiple doctors and tried everything from acupunture to chiropractic, ayurvedic oils & herbs, nothing helped.  When i started loosing weight at least 5 lbs a weak and was always tired and dehydrated, not to mention afraid to eat out in public.  I hardly slept, i went to see GI doctor who knew a physician that did POEM surgery.  I went to see this doctor, and spend 3 hours with him, and booked my surgery the same day.  2 weeks later i had the surgery.  The preparation was not easy, especially i was angry and depressed at the same time, how i got this illness, no one i knew ever heard of it.  I work with a team of close to 50 providers, when i finally approached a few of them and asked if they had ever seen a patient with it, their answer was no.  2 of the providers who are close friends was very supportive all the way and read and advised me on everything i needed to make a decision on.  Please look into having the POEM surgery.  It has changed my life.  I gained back my weight, i can sleep.  I do not throw up anymore.  I take 40 mg of Pantoprazone SOD twice a day, and have learned to change my diet, eliminating spicy food, and fry food, which was very difficult.  I have gained my life back.  I still have to do a upper endoscopy, and a bravo ph testing where a capsule is placed in your esophagus and data collected for 2 days and a manometry done.  i was scheduled for these on 1/13, but the capsule malfunctioned as the procedure was to start, so it was cancelled, i am waiting to have it rescheduled. I was a bit depressed this happen, so i went on line a found this forum.  I am happy to find that i am not alone, but sad that we are all suffering with this condition.  From lots of the blogs i have read, patients have been able to have an active life where they do the POEM, dialation, botox, heller myotomy or balloon dialation.  Which ever you choose, i wish you the best.  Do not get depressed, there are treatments and with the internet there are a lot of successful stories out there.  I hope this helps.

I can understand how you feel.For some time I have struggled with the same sort of issue and on visiting my GP the issue I was having was put down to some medication I was taking.Since I have had my illiostomy performed the problem seemed to escalate in that when I ate any food after only a few swallows it felt like something was stuck in my throat and it was very uncomfortable.With this in mind I went back to the Gastro specialist and was examined through the camera procedure.I was quite surprised to learn that I have got a Hiatis Hernia ,not only that but their was traces of blood with damage due to the amount of acid attacks.I am now waiting for both the results of the Biopsies taken and to see if I have got a condition called H Pyloria.The medication I was taking was not strong enough to control the acid build up so I have now had to change to Omeprazole 40mg Bd.i have now got to control the types of food I eat more so with spicy,no coffee,giving up on cigs and alcohol consumption?It has also been recommended when sleeping to raise head 4-6 inches higher than usual.I understand your anxiety as there is nothing worse than being in this situation.I have now started to take a bottle of near ice cold water to bed or have one in the fridge and when I feel the attack starting I drink the water.It has eased off slightly but it was so bad on Fri gone I thought I was going to stop breathing.It has taken a couple of days to calm down but I think that is down to the new medication.I know it may not help but I would persist with the doctors in finding a cause of your problem.Hope this helps.