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Hi i realy need help and advice as to what is happening to my body and causing 24 hr pain and numerous symptoms. until 2012 i was fit and very active then started to have balance,vision and numb,tingling,stinging pains (at that time left sided arm,hand,face and leg) then gastric problems started followed by what seemed to be cardiac this has been progresive and now affects my whole body. ive seen neurology,cardiology,gastro,endocrine,rheumatology,eye specialist this yesr alone ive had ive had 39 hospital apts with various specialist and had every test possible. autonomic neuropathy keeps coming up and ive just had test at queen square london but no one has been able to tell me whats wrong or whats causing it. any ideas advice would be of great help my symptoms are extensive and seem to come in flares but every single day im in pain generaly unwell and it has ruined my quality of life

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    Wow, You described me exactly. I have always been very active and healthy as well. The pain and the gastro problems do seem to be like flare ups. I have tried lyrica as the Dr thought it might be fibromyalgia,however absolutely no relief and the side effects of lyrica are horrible.I too have had many test and still no diagnosis. I have read other peoples stories online lately and many people are saying Cymbalta helps. I believe from what i have read it is a anti depressant, and also used for pain associated with nerve damage.I have a appointment this week with my Dr, i am certainly going to suggest it.

    The only other relief i have read about is some form of morphine and another poweful pain med i can not recall.I dont see my Dr writing me such a prescription. Nor do i think i want to go down that road at this point.It is very puzzling to me that so many people are dealing with this and no diagnosis. I understand your pain and frustration. Hopefully somebody will have a solution soon. One thing i am using is a back massager under my legs . I stumbled across this idea by accident however since the pain is more intense while i am lying down especially feet calves and back of my legs. It does bring a little relief. As for the stomach pain , thank you for sharing . I hate that you are feeling it as well , but i thought i was dealing with separate issues. But it all seems to be related.Goodluck and if i find any diagnosis or relief. I will certainly let you know.

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      Thanks for your reply, i was told in 2014 it was fibromyalgia but im not having it as no one at the fibro support group has all these symptoms and its not progressive. i find it puzzling that so many people have very similar symptoms and no diagnosis. i thought i had the answer this year when i tested possitive for lymes disease but my GP wont persue this (it was a NHS test not something done abroad or privatly)
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