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Hi, I have been in excruciating pain for almost two years now and was diagnosed late 2017 with trigemenial neuralgia, this is affecting every aspect of my life to the extent that it is almost dibilitating me, I have seen a consultant several times now but keep seeing different ones who give me conflicting advice. I am on the maximum dosage of carbamazepine which is ineffective and the pain never seems to go away but my consultant doesn’t seem to be listening to me , I can’t brush my teeth, drink anything warm or cold, having a shower sets it off, the wind on my face sets it off , talking, eating , raising my voice, smiling even ? I feel
Like I am getting messed around with the nhs consultant, I’m 37 and have always been fit and healthy , this and the tegretol have put me into a state of depression that I’m struggling to look past, I have had an mri scan and have been told everything looks normal, can anyone advise on what steps I should take? Any help would be appreciated? Regards, Martin
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