can anyone give me any advice on as? ive been diagnosed just a few weeks and need help and direction x

Posted , 3 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Ive just been diagnosed with as and my doc and reumy wont give me any info on exercises, if i need a flu jab, if i can get any physio.or nothing. as you guys feel what i feel everyday i thought you would help me as there is no substitute for experience xx thankyou xx

0 likes, 7 replies

Report

7 Replies

  • Posted

    Hi. I have posted elsewhere in these forums a longer response to someone's difficulty with getting a JAS/AS diagnosis. I can tell you that my son, who is 20 years old, has been diagnosed with JAS for 4 years. His consulting pedi-rheumatologists always advised him to get a DEAD VIRUS (no live virus!) flu vaccination annually. Also, many JAS/AS patients report that they see physical therapists to get exercise regimens to help stave off JAS bone/joint damage, etc. To keep their susceptible joints healthy in the long run, in other words.

    Gook luck.

    Report
  • Posted

    I will have a look at that, try anything once, however with respect I do not see how a twisted spine and other physical problems can be down to attitude.
    Report
  • Posted

    The comment referred to in the post above has been deleted as the user was spamming the site trying to sell a product.

    Regards,

    Alan

    Report
  • Posted

    Hi Ashlee. I was diagnosed with AS about 25yrs ago. I had a shoulder opp & the specialist noticed I moved my neck very stiffly & ordered me to get X-rayed. The AS was in the top of my neck, with 5 of the top 8 vertebrae seized solid. I eventually had the same trouble with 3 at the base of my spine starting to seize. I was told it could not be reversed. Going about normal life, I was getting the most tremendous headaches & neckpain you could imagine. It was like being hit on the back of the neck with an iron bar. It made me physically sick & no amount of painkillers had any effect. If my pillow was 1" too high or too low I would pay for it for days after. I can now hardly turn my head without turning my whole body, my movement is so restricted at times, that driving is out of the question as I can't see traffic to left or right at junctions. I have been on a fairly high dose of tramadol for over 10yrs now, as well as gabapentin & ibufrofen.

    I also have severe osteoarthritis in my right hip & both knees, as well as gout in feet & fingers. I think I must be a glutton for punishment. cry

    Report
  • Posted

    By the way, I seem to be the only one without the brown "message" box. Have I omitted something, or do I have to have someone PM me first? Thanks.
    Report
  • Posted

    Hi Lee,

    You do not see the message button on your own posts as you do not use it to message yourself. Only other users will see it under your name and I can confirm it is there. If the button does not appear under other users' names this is because they have opted out of receiving them.

    Regards,

    Alan

    Report
  • Posted

    Ahh, thanks for clearing that up for me Alan. Perhaps I will now sleep tonight? lol
    Report
  • Posted

    We delete content if it doesn’t meet the requirements in our Terms & Conditions.

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up