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sorry to trouble you all im looking for some help and advice i belive i have lyme disease but noone seems to wants to listen or knows enough about it and its killing me i cannot seem to get anyone to help or listen due to neghative tests that everyone seems addimant to rely on even tho its meant to be clinical diagnosis not serological.
i have been suffering for 2 years this month whith no answers and worsening symptoms i fish in france every 7 weeks for 2 weesk at a time in woodland and in july 2011 killed a tick full of blood on my bivvy floor, no rash as i recall but a red mark in my groin all doctors iv spoke to in the last few weeks have said no rash no infection but i have researched this and that not correct there is only 30-40% get the rash, i did not know then what a tick was nor lyme disease untill the last 3 weeks from speaking to a private aviva doctor in london who asked if i had been tested for it as i have tested for everything else and explain what it is and how it affect people he hit the nail on the head with my symptoms.
anyway i returned from france and 6 weeks later became ill with swollen optic nerve in my left eye numbness down my left arm leg fingers and into my toes with flu symptoms 2 weeks previous, i was admitted to neurology for 10 days for ct mri but nothing physical migrane diagnosed but i didnt feel right something wasnt right but i accepted it why would i not, after leaving hospital a week later i became ill again flu and fever though nothing of it rode it out, i continued with the pressure feeling in my eye feeling of not being right for the last 2 years with weakness in my muscles and still numbness and tingling in arm and leg getting worse, since then thing have gradualy got worse 6 month after i was admitted to hosptial again with pain all over my abdomen and kidney area more scans again unexplainable.
i have continued to have sore throats swolen gland and not feeling right fatigue that i have been back to the doctors over and over with while always haveing the other symptoms continuely getting worse to the point i have the numbeness has got stronger in my arms legs making it feel like they becoming weak and usless severe headaches feling like the cause is my eye, dizzyness feeling of blood pressure drops palputations that i again been taken to a-e with to find nothing i now have what i belive to be lyme arthritus as my hip lower back knee shoulder fingers and wrist joint are becomeing very painfull and severe and i am on the verge of not being able to go to work because of the pain and im only 26 this is destroying my life, i have also been feeling anious not wanting to talk on the ophone a feeling of annoyance its horrible to try explain i couldnt remember where i parked my car the other month i couldnt count the money last week to pay for my sandwich i fogot how to tie my fishing rigs that i do daily its horrible.
you have to bare in mind i didnt know about lyme or tick till 3 weeks ago and after researching it eveything fits together and makes sense the tick the timeing of becoming ill the illnesses i have been to my gp who done all the normal test negatives as exspected and the elisa test negative no suprise but when i tried to explain the tests are not reliable i watch a vidoe with head of lyme in america doing a video for physisians yesterday and he said around 30-40% reliable clinical diagnosis not serological here is the site very intresting click about lyme lyme videos and the first video www.ilads.org
i just realy need someone who can help or maybe knowlegable about lyme this is killing me and im only 26 noone want to listen hope someone can maybe help
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