Can anyone help diverticula and colitis causing problems

Posted , 5 users are following.

Hi my mum was diagnosed with both colitis and diveriticulitis, she was put on a (9mg) 2 month course of Budenofalik granuales reduced to 1 week 6mg and then finally 1 week 3mg.  The diarrhea and need to go to the toilet eased during this time, however she has now been of the medication and is back to having to rush to the toilet again, we are awaiting for a follow up appointment at the hospital but this isnt until next month, she visited her gp last week in the hope of some help/advice - they were only able to try and get the appointment pulled forward.  She has lost just over 3 stone since November, and we are at our wits end as nothing she seems to eat/drink remains for long, within 30 minutes of having anything to eat she has to visit the loo.   She has been talking the acidophillus 10 billion since the beginning of the year.  Can anyone offer any advice is there others that are in this unfortunate situation,  she feels like she is wasting away and a prisoner inside her own home.

0 likes, 5 replies

5 Replies

  • Posted

    It's hard when you have both as I do as well,eat little and often but low fibre no bread seeds skins or windy veg and try not to spress as this will cause it I know it's hard to relax but that's the best thing I two losted a lot of weigh so try not to worry to much its a horrible decesae hope your m feels better soon lots of water
  • Posted

    I was diagnosed with Crohns ten years ago and before the diagnosis and treatment I was not eating but still going to the bathroom.

    I was admitted to hospital and put on a drip with hydrocortisone high dosage for a week then  onto tablets and gradually withdrawn from them.

    From then to now I take salozapyrin 500 mg X 2 maintenance level.

    Your mum needs to see a specialist called a gastroenterologist.

    That is the only one who can help.

    I do have diverticula as well so no nuts or seeds for me.

    If she is already under a gastroenterologist she may need to see a different one as firstly it must be pulled up to zero then maintained.

    Colitis and Crohns are much the same.

  • Posted

    Hi Julie

    It's the acidophilus that's making her keep going to the loo I was on the same and when I stopped taking them my bowels went back to normal

  • Posted

    Everyone is different; but 20 billion Acidophilis since last July per day have given me my life back; and certainly do not cause diarrhoea for me.  I take Fybogel sachet; one or two per day; for bowels which prevents either consitipation or diarrhoea as is a "leveller"...putting the right amount of fibre and liquid into the bowel.. I often miss and still am OK.  My advice would be to ring the hospital and see if your Mother can be seen earlier than next month because of her weight loss.....or ask your GP to refer her as an emergency; or just go to A&E if she gets any pain.
    • Posted

      The colitis is the one causing the problems. Diverticula is not good but the colitis which is similar to Crohns must be pulled up.

      Band aids won't bring it back, I tried all that and ended up like this lady.

      She needs to bring it back to a place it can be managed/maintained from.

      A gastroenterologist is needed for Crohns or colitis.

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