Can anyone help, I'm getting so depressed and don't know what to do??

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I've recently found out that I'm hypermobile after countless visits to doctors and specialists due to pain in different areas from being a carer and a car accident. (The more I read about hypermobility the more it appears to be the root cause of all my problems) I'm only 28 and feel more like 82! I suffer with pain in my lower back, my hips, my knees, my shoulders and neck now to the point that I struggle to do day to day tasks like walking to the shops or washing my hair.. I feel so exhausted in the mornings and throughout most of the day which usually results in me being to tired to cope with anything and just lying down, I find it so difficult to sleep at night as well.. I just feel in a vicious cycle! I've tried Pilates, stretches and exercises to strengthen myself up but after only a few dimples ones I'm in so much pain it cancels me out for a couple days. I'm getting so depressed about how much I struggle day to day and I just can't see a way of making it any better.. I feel like I'm getting worse and worse. If anyone has any advice on ways to cope and get myself better I would really appreciate it ??

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  • Posted

    Hi. Yes this is how it goes. For me there are cycles of very bad and not so bad. Always there. Always annoying. If you are in a bad cycle just do what you can. Set easy goals so you feel you have achieved something. When you're not to bad it's important to keep yr muscles toned to help support yr body where yr ligaments do not. Swimming is a great way to help your body. Also hydrotherapy.

    I am 52. Was diagnosed at 17. Not much was known back then so I definitely understood yr struggles. Keep trying till you find what works for you.

    Good luck.

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  • Posted

    Hi Natalie. I like you have recently been diagnosed with the syndrome and like you suffer with pain in various parts of my body.  I have been this way since my early twenties and finally at 34 it was actually diagnosed and everything i have been experiencing finally began to piece together and give me the reason as to why. I am due to be attending my first physio session to talk through some exercises I can do, but i have already been onto the NHS website and started doing some exercises they recommend for hypermobility and i can't believe the difference it is making already just after a couple of weeks.  I have suffered more with dislocations, particularly in my knees, so i don't have a whole lot of trust in them at the moment, but i feel like the exercises are helping to manage the pain i was experiencing before. If you're able to get the doctors to refer you to a physio they might be able to help, and actually be able to keep an eye on the condition too, there might be something more they can do further down the line depending on how it progresses.  The only other exercise I do is use a cross trainer 3 times a week and occasionally do some cycling, i was told this is very good for hypermobile joints. Let me know how you get on. Nikki.

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    • Posted

      I have been referred for physio and been to x amount of sessions but haven't really found it all that helpful, after a few sessions of being massaged and shown one of two exercises they basically said oh well nothing seems to be helping so then referee me to Pilates which was only 4 sessions then over.. don't get me wrong I'm honest enough to say I could be putting in more effort with them all but I just can't begin to explain how tired I feel throughout the day from the smallest things, I feel like I need to lie down after putting on a couple washes, ive actually just left my hair unwashed for about 11 days because again the energy for me to do it is too much (trust me I know how lazy I sound) it's all just getting on top of me and find myself so many times a day just lying down and feeling so depressed with it all.. I can't seem to get the momentum to get started with anything then when I do try some exercises the next day I'm just done in!? I

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    • Posted

      Me again Natalie. I was really tired like you for a couple of years at age 37. It was thought that I had developed chronic fatigue syndrome as well. Extreme tiredness, however is part of joint hypermobility syndrome. I recommend that you just have small goals. Then they are achievable and you will start to feel more positive. I had 2 young kids back then and was a solo mum. Also working. Very very hard time. I reduced my hours and set goals for house keeping. I cleaned 2 rooms daily or the next day was written off. Lol. See that sounds pretty lazy. I felt great about it if the house was clean and the washing done and we were all clothed and fed each week even if I felt half dead. I've come out the other side. These bad cycles do end.

      Do you still work as a carer? That's pretty hard work.

      I feel for you and fully understand. If you have started swimming. Just do a little every 2nd day. Build up slowly. Also, if you are taking supplements. Do not take vitamin C. This promotes the production of cologen which is our main problem. We have too much already.

      Feel free to ask me anything. 😃

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