Posted , 7 users are following.
I have had PMR for about 8 years and probably several years before that but undiagnosed. I am now in the midst of a flair and several of my fingers recently may indicate the start of RA. My rhemy told me that it is basically the same disease but PMR involves the muscles and RA the joints. Has anyone else heard this or experienced it? Thanks in advance for any help.
0 likes, 23 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
Daniel1143 rosalie76675
Posted
I would proffer that you are tapering far far too fast, and significant percentage of your problems are related to the rapid deceleration of prednisone. You need to read up on all of the content through this form about tapering super slow. Everyone it seems the tapers quickly runs into a brick wall.
I'm tapering presently at a rate of 1 mg per month, and often I slow this down. Whenever I have tried to speed it up I have suffered for it. I would further advise that you focus on managing prednisone rather than trying different drug and injection combinations.
Eileen, please step in!
Anhaga Daniel1143
Posted
Daniel1143 Anhaga
Posted
amkoffee Daniel1143
Posted
I started to read off the slow method on this site to the nurse on the phone
and we both got confused. So someone else suggested I go in
with a calendar and explain it using the calendar. I'm not sure, but I think if I
could make her understand the method that she would OK it. But I don't know
that I quite understand it myself. I have to look at it with a calendar in front of me i guess
to understand it.
I already have ostiopenia (sp) so I'm not thrilled with taking pred. I'm also
very over weight to begin with so gaining more weight is bad. Plus I have a
bad back which has gotten worse then ever since I've been struck with PMR.
EileenH amkoffee
Posted
Take a calendar, mark Day 1 as the first day of a new dose. Then:
Count (say) 5 days and mark them as "Old dose".
Mark the next day as "New dose"
Count 4 days, and mark them "Old dose",
Mark one day New Dose
Count 3 days, mark them old dose
and so on until you get to alternate days new and old.
Then:
One day Old dose
Count 2 days new dose
One day old dose
Three days new dose
One day old dose
Four days new dose
And then you decide if you can fly all new...
Does that help?
EileenH
Posted
PS - I also have osteopenia but it isn't far into the range. It has barely changed in the over 7 years I have been on pred and I am still slap in the middle of normal for my age. I have been at above 10mg pred for a large part of those 7 years and have only ever taken calcium and vit D supplements. I had a baseline done a couple of months after starting pred - it is believed that majority of bone density loss happens in the first 3 months - one was done after 3+ years and the most recent a few weeks ago.
amkoffee EileenH
Posted