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Hi, my name is Sarah. I have come here really hoping to get some advice regarding medication and possible ototoxicity.
Basically, each time I try a new medication my ears really suffer to the point where I cannot continue because I am scared of what I might be doing to my hearing.
Since being diagnosed with MAV I have tried Propranolol, which did work (for 3 months) but then the dizziness came back and rather than go to a higher dose I asked my GP if I could try Topiramate instead. This worked well for the dizziness too but ended in disaster. I was ok on 25mg but then I went up to 50mg and within a week my ears felt strange. I shrugged this off and carried on but then my hearing began ‘zoning in and out’ (not completely), a bit like I was hearing under water. I noticed almost as soon as I took a tablet sometimes that my hearing went quieter. I carried on about 3-4 weeks on the 50mg. This culminated in a blocked ear feeling, ear pain/pressure, hyperacusis and numbness. It took three weeks after discontinuing Topiramate to get back to (almost) normal after this.
I was given a hearing test about 5 weeks after this and there was no hearing loss registered. In fact the audiologist seemed to indicate that my hearing might be slightly better?
I went onto Betahistine then, which caused no notable side effects but didn't really work either.
I then tried Venlafaxine but had the blocked ear feeling/pressure and sensitivity virtually straightaway (and slight tinnitus as well) and had to discontinue after less than a week. I tried it again and the same thing happened. My glands came up also.
I was then prescribed Zonisamide (50mg a day) and almost straightaway I felt something happen in my head, like a detached feeling and my ears went strange again. By the 5th day my glands were swollen in my neck, the back of my head hurt and my ears feel very painful and like there was pressure round them! I stopped, then tried a lower dose (25mg) but my ears still felt ‘blocked’ and there was pressure and pain.
I was then prescribed Amitriptyline. This time my glands didn’t come up but after 3 days on 5mg, and then 3 days on only 1mg, my ears are feeling so block/pressured and there was some pain again that I don’t think I can go on with this.
This is really getting me down as I need something to control the dizziness and each time I try something new, the same thing happens.
Does it sound like I suffered ototoxicity with the Topiramate and now whatever damage was done is being exacerbated each time I take a migraine preventative medication?
Does anyone have any advice for me? I can’t get a satisfactory explanation for why this happens from anyone. Thanks if you can help.
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