Can anyone who suffers vestibular migraines please help

Posted , 4 users are following.

I put a post on the dizziness forum

About my symptoms and someone mentioned vestibular migraines. Can anyone who suffers from vestibular migraines clarify if these symptoms sound like it could be what I have?

I read a little on it but can’t decide if my symptoms fit completely. Mainly because my dizziness comes and goes over the course of 7-10 days and then disappears.

About three months ago I started to feel very dizzy around my period. It lasts around 7-10 days, comes and goes. I’m not so dizzy that I can’t stand or feel like the room is spinning, it’s more subtle than that but very uncomfortable and disturbing. I also feel extremely tired during these times. It then goes away mostly and returns around my period again. I’ve had iron and bloods taken and all are clear.

I also suffer from migraine auras which are very unpredictable and occur often. I haven’t noticed a link between the two. I’ve seen a doctor and a neurologist (for my migraines) and neither seem worried about it but can’t tell me what the dizziness if from. It’s very upsetting not having a clear diagnosis or any idea on how to make it stop.

i personally dont know if it is vestibular migraine but just thought id ask the people who actually suffer it.

I’d love any help with this.

Thank you

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8 Replies

  • Posted

    sounds like vestibular migraines. mine cause similar sensations

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    • Posted

      also do yours come and go for a week like mine? they seem so odd that it could last that long.

      is it like one episode that causes rhe week long episode or is it more likely a migraine each day im dizzy? i find it very confusing 

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    • Posted

      mine are now pretty much constant. my neurologist diagnosed mine. I also get visual disturbances and regularly lose sight for a short while.

      I have tried every anti seizure drug , nothing worked for me. I cant take triptans so I'm pretty much helpless. my life is pointless now

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  • Posted

    Hi,

    I was diagnosed with vestibular migraines and my main symptom is the vertigo - the persistant feeling off balance as if i've had alcohol and my eyes not being able to focus on anything without feeling sick. I also get ringing in the ears. I rarely have any head pain with this.

    I do also suffer with basilar migraine and hemiplegic migraine.

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