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I had Chiari with one of the biggest Syrinx’s the Drs had ever seen in Bristol (UK) just over 12 years ago, with hardly any symptoms, was found quite by chance. Had decompression surgery & after a very long recovery felt good again.
However, recently been having odd symptoms, the last two months have been bad. Thursday I had a serious attack of Vertigo, which has now gone, but left me feeling dreadful. I have Dizziness, feeling sick, numbness in right arm & severe muscle weakness in both arms, ear pain, constant need to go to the loo, bright lights effect me, Back pain, the list is endless. When I mentioned all this to my Dr & suggested maybe it was to do with Chiari, she dismissed that immediately!
I’m convinced it is...so where do I go from here?? Anyone else in the U.K. with similar problems??
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