Can I Be A Mum?

Posted , 12 users are following.

Hi all,

I wanted to pose a question to you that I have been pondering on for a long while now.

Is it fare to become a parent after developing ME/CFS?

Although my partner understands why I think about this the way I do he feels I am being 'silly' and 'paranoid'. I have been concerned for some time now that I would not be able to cope with my illnesses and give a child everything it needs to get the best start in life.

Any thoughts you have on this topic would be greatly received.

Helen

xxx

1 like, 17 replies

17 Replies

  • Posted

    well i have had it for over 20 years and managed to bring up 2 kids smile Its not been easy and at times ive felt so guilty. But at least you are going into it with your eyes open, you know the score smile You can make allowances and with other peoples help stil be a good mum. I never had that option, mine started due to complications in child birth and sadly wasent diagnosed until last year, so i suffered on for almost 20 years not knowing was happening to me which made things 10 times worse than they should have been.  With the right attitude..anything is possible smile x
  • Posted

    Hi helen, iv had m e for 14 yrs, & got left with 3 children,so i couldnt let them down & it has been a massive long struggle & i had to try & work to keep a home together, i never really had any help as i refused to be beaten or give into at the tym what i thought was just me being a workaolic & lover of life, plus always kept telling myself theres others worse off,, would i do it all again,, yes in a heartbeat  Because its so rewarding,, but i wouldnt fight it, through experience i now pace & organise things so differently, plez listen to your body & explain to any family or loved ones wot its doing to you & how it affects you, then have to do lists,& do wot u can wen u can, preperation & organisation are the key,,& remember theres mums out there that are blind, phsically disabled, wheelchair bound etc, & thy all manage,, keep posative but do only wot u can,, kids need tym n love n cuddles,& if thy get tht lying nxt to u on the sofa watching a disney film thyl feel all that,, my boys are glad as thier dad i did wot i did for them but had they known how weak i was thy wudav loved to have helped me more, id say to anyone give ya kids a chance to help n understand,& as a team u can achieve anything,, gud luk,, 
  • Posted

    It is a difficult one and you are right to think about it and ask others who are / have been in the same position.  One of the key things is how bad are your syptoms now?  My pregnancies made my symptoms worse and that is the same for some others.  Therefore could you cope / have you got the family support to help with the care of a child if you get worse than you are now?

    When you have children you do make friends you don't have now.  They could be the type of friends who can help with the transporting for your child/children to clubs.  I would also mention that 2 children are more demanding than 1.  Therefore if you will be needing support alot I would maybe consider only having the one child. Physically it would be easier on you and others if there is one child and home bills would be lower too.

    I absolutely adore my children and I'm definately glad I had them.  When I had them my syptoms were definately managable and I just needed average support.  My children are 9 and 6yrs now and I'm alot worse.  I can't cook a meal, I can only walk on a very good day 40metres with reduces to unable to take a single step.  My staircase is my worse enemy and I need alot of support for the kids and myself.  If I was thinking right now to have a child I couldn't ask that of my family.  I wouldn't be able to hold the child and trying to look after them mentally would put them in danger.

    My thoughts are that you are not at the physical and mental level I am now.  Children are fantastic but you will need a well behaved child. My children tell me I am the best Mummy in the world even though I am in the physical and mental state I am now.  However, I do have to keep pushing myself to be that mum, it's not easy but it is very rewarding!

    Think about your physical and mental abilities now and what if pregnancy makes you worse?  What family support have you got?  Maybe consider just the one child?

    Children are fantastic. If you can show them love, physically keep them safe and support them emotionally. Go for it as long as you have the physical support team around you. xx

  • Posted

    First of all, good luck with whatever you decide. And people can only go from what they have experienced. 

    My experience is that I developed it after having my second child, and if I were to have a baby with my health as it is now I honestly think I should be done for wilful neglect. 

    Every day is a battle, and from what I can tell I have a mild case. 

    I do a fantastic job and I work hard and I put a lot of effort in, but there are days when I want it all to stop. I have the luxury of having finished my family before this developed, but I know for a fact I wouldn't have wanted to have children if I was this ill beforehand. 

    There is support, but nobody wants to feel reliant on support, yes it's nice, but it would also be nicer to know you didn't need it in the first place. 

    They want me to do some group sessions in the new year, 2.5hours for six weeks. To learn more about self management. There's not going to be a crèche and I'm not allowed to bring my 2 year old. So that's a new hassle I have to organise. 

    I honestly don't want to scare you, I admire you for being so honest, lots of women worry how they'll cope and do it anyway. But I will say this, just because you WILL manage doesn't necessarily mean you will want to. 

    My heart goes out to you, I would hate to be in your position. 

    Much love. Xxx

    • Posted

      Hi. I would like to know about this self management course. I was offered it last year and I turned it down due to the fact I had a two year old also that I couldn't take with me and no childcare plus the hours over ran the school pick up time by half an hour and I had no one to watch my 7 and 13 year  olds never mind the fact it was in the next town and I dont drive and they know this! !! I was a bit bemused as I thought how.does that help people like me that dont have child care 24-7 and family on hand to help

       My other half can't just duck out of his work for one day a week!!

      I feel totally isolated now...feel like ive just been diagnosed and then left to get on with it!

      I have pain killers and anti depressants if.i want them but I dont due to the fact that im.not depressed and they made me feel so crap. Ive tried 3 different ones!

      Hope you feel better than I do x

    • Posted

      Hi,  I would also like to know about this self management course.

      I have been offered nothing. Over 3 years I have not really ever had a diagnosis.

      I recognised most of the symptoms from having been carer for my husband 20 years ago when he was diagnosed with it. Apart from the usual blood tests for anemia and thyroid, there has been not further investigation instigated by the Dr.  I have wondered at times if it was MS as I have a feeling of pressure in the ribs with is associated with this,  but the Dr has rejected this possibility.

        I rejected the assumption that the pain was due to fibromyalgia and after pushing for a rheumatologist appointment found out is was psoriatic enthesopathy, which now I know what it is I can do something about to some degree. 

      I thought I was slowly (o so slowly) getting better, but have recently had a downturn in energy, strength and cognitive thinking and memory.  

      I live in Suffolk.  I wonder if there is a different approach in other areas. 

    • Posted

      To be honest I think it's being pushed in my area. When I attended a seminar in August they said they (CFS/ME Service) had only been created earlier on this year. For my area, at least. Plymouth. I've done a bit of reading and from what I can tell plymothians used to have to travel to Torbay. Again, it would be something I would've declined had that been my only option, being a non driver an hour on the train or two on a bus is just ludicrous :-(. 

      I think they are trying to limit the amount of pain killers given so I think it's definitely worth pursuing. 

      Ridiculous to be told yes, you are ill, yes I have things I can do to help, but I'm not going to :-(. Xxx 

    • Posted

      You're life sounds hectic!! I stopped taking amitriptyine as I wasn't really seeing the benefit. 

      I don't know what to suggest really, other than keep in touch and wait till I find out what this could offer me! From the little ice read its a lot of balancing energy inputs and outputs. Which is really annoying when you've got any form of a life!!!

      It's a nightmare. They told me I'll be starting in jan, and I will get my dates through in a letter late dec/early jan. What help is that?!?! If you work, or study, or volunteer, or needchild are?!?

      I'm trying to avoid prescription medication, I've seen from my mum what pain meds can do. I found myself unable to move my neck the other week and got given ibuprofen, with the line of attack of them being ineffective then we'd go onto gabapentin. I'm trying to just go drug free unless I find myself a real mess. I think I'd rather put up and shut up for as long as I can. Terrified of my body manufacturing pain as a reaction. Don't wanna be on pills forever, let alone off my face forever.

      Xxxx 

  • Posted

    I had a friend with ME and they had several kids. So although it will be hard and you will need help, it is possible to cope.

    Richard

  • Posted

    i deeloped it in my pregnancy just around a year ago.it was horrific i was bed bound and now my baby is 3 months old and im in a wheelchair depend on my hubby to look after baby.you may be fine but just be aware that pregnancy may make you worse.
  • Posted

    Thank you to everyone who has taken the time to post on this discussion. It certainly has given me a lot to think about.
  • Posted

    Hi am not diagnosed yet, but I have 4 beautiful children. I have slowly got worse over the years. I am also visually impaired. I feel you should follow your heart as you know you best. Luck to you and fellow writers 
  • Posted

    Just wanted to say thanks for posting this question. My doctors are considering diagnosing me with cfs after having problems since Easter last year but are still eliminating all other possibilities first. I have to say being 31 and in a relationship where we were hoping to have a family in the next few years with the thought of cfs on my mind this was honestly the first question that came to mind... Not only is it fair but is it possible?
  • Posted

    I have CFS and one child. I am beyond exhausted. I guess I might have a few answers for you. One would be have you considered adoption? This will not take a toll on your body and many children need adopting. I posed this question first because you asked an ethical question that many of us have considered. Is it "fair"? I still wrestle with this every day and our daughter is nine. I do the best I can. I thought it was my fault I was so exhausted before i had her because doctors couldn't find anything wrong with me. I thought it was because I was about 25 kg overweight. Wrong. there are many things wrong with my health CFS is just the beginning. Two... how much help and/or financial resources do you have? These are tough questions to ask yourself. Do you have family that will really stick around when the going gets tough or does your partner have the earning capacity to pay for the help you will need for the day to day running of your lives so you can care for your children. You should be prepared that there will be days when you simply cannot get out of bed or leave the house. Will you have enough help on those days? Our daughter really struggles because of my illness. I didn't know how sick I was before I had her. I don't regret that she is here but when asked why we don't give her a sibling i inform nosy people that I am very sick and couldn't possibly care for another. That does the trick. And lastly three... be prepared to be mom and only mom for many MANY years to come. You will need to find your identity there because you will not have the energy for anything else but your family. Even when they sleep through the night they still have so many needs. And those needs can seem insurmountable for those of us with CFS. One thing I wish I had was reliable family. If I had reliable family around I think our situation would look much much different. My husband is reliable but when you have a whole bunch of people around you who love your children and are able to help you have a good chance at a happy situation. I wish you all the best in whatever you choose. I really do :-)
    • Posted

      Thank you for your response. It has been most helpful. In answer to the questions you have suggested I think about. 1) I have often thought about adoption for the very reasons you mention and because I too have several other conditions all of which inhibit my ability to conceive and carry a child. I have had many miscarraiges in my time. 2) I am currently being assessed by adult services for my care needs and live on benefits. However, I was assured with my last pregnancy that I would be able to have help from both adult and child services for the care of my child. My family and partner are incredibly supportive and help as much as they can with my life as it is. They all support me in my wish to have a family. 3) I have thought of nothing else since I was a child. The only thing I ever wanted to be was a mother. To be able to give another person the support, guidance and love that my family gave me.
    • Posted

      Hi. Could you answer a couple of questions for me please? I can ask here or private message them.  Regarding benefits and adult services. I always wanted to be a mum and although its hard,  a smile from my children always lifts my spirits.  It is the ultimate ... Well everything!!! 

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