Can I Be A Mum?
Posted , 12 users are following.
Hi all,
I wanted to pose a question to you that I have been pondering on for a long while now.
Is it fare to become a parent after developing ME/CFS?
Although my partner understands why I think about this the way I do he feels I am being 'silly' and 'paranoid'. I have been concerned for some time now that I would not be able to cope with my illnesses and give a child everything it needs to get the best start in life.
Any thoughts you have on this topic would be greatly received.
Helen
xxx
1 like, 17 replies
littleme1969 helen70967
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Bubbles61 helen70967
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JulieBadger helen70967
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When you have children you do make friends you don't have now. They could be the type of friends who can help with the transporting for your child/children to clubs. I would also mention that 2 children are more demanding than 1. Therefore if you will be needing support alot I would maybe consider only having the one child. Physically it would be easier on you and others if there is one child and home bills would be lower too.
I absolutely adore my children and I'm definately glad I had them. When I had them my syptoms were definately managable and I just needed average support. My children are 9 and 6yrs now and I'm alot worse. I can't cook a meal, I can only walk on a very good day 40metres with reduces to unable to take a single step. My staircase is my worse enemy and I need alot of support for the kids and myself. If I was thinking right now to have a child I couldn't ask that of my family. I wouldn't be able to hold the child and trying to look after them mentally would put them in danger.
My thoughts are that you are not at the physical and mental level I am now. Children are fantastic but you will need a well behaved child. My children tell me I am the best Mummy in the world even though I am in the physical and mental state I am now. However, I do have to keep pushing myself to be that mum, it's not easy but it is very rewarding!
Think about your physical and mental abilities now and what if pregnancy makes you worse? What family support have you got? Maybe consider just the one child?
Children are fantastic. If you can show them love, physically keep them safe and support them emotionally. Go for it as long as you have the physical support team around you. xx
Qwase helen70967
Posted
My experience is that I developed it after having my second child, and if I were to have a baby with my health as it is now I honestly think I should be done for wilful neglect.
Every day is a battle, and from what I can tell I have a mild case.
I do a fantastic job and I work hard and I put a lot of effort in, but there are days when I want it all to stop. I have the luxury of having finished my family before this developed, but I know for a fact I wouldn't have wanted to have children if I was this ill beforehand.
There is support, but nobody wants to feel reliant on support, yes it's nice, but it would also be nicer to know you didn't need it in the first place.
They want me to do some group sessions in the new year, 2.5hours for six weeks. To learn more about self management. There's not going to be a crèche and I'm not allowed to bring my 2 year old. So that's a new hassle I have to organise.
I honestly don't want to scare you, I admire you for being so honest, lots of women worry how they'll cope and do it anyway. But I will say this, just because you WILL manage doesn't necessarily mean you will want to.
My heart goes out to you, I would hate to be in your position.
Much love. Xxx
victoria63790 Qwase
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My other half can't just duck out of his work for one day a week!!
I feel totally isolated now...feel like ive just been diagnosed and then left to get on with it!
I have pain killers and anti depressants if.i want them but I dont due to the fact that im.not depressed and they made me feel so crap. Ive tried 3 different ones!
Hope you feel better than I do x
pat62 Qwase
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I have been offered nothing. Over 3 years I have not really ever had a diagnosis.
I recognised most of the symptoms from having been carer for my husband 20 years ago when he was diagnosed with it. Apart from the usual blood tests for anemia and thyroid, there has been not further investigation instigated by the Dr. I have wondered at times if it was MS as I have a feeling of pressure in the ribs with is associated with this, but the Dr has rejected this possibility.
I rejected the assumption that the pain was due to fibromyalgia and after pushing for a rheumatologist appointment found out is was psoriatic enthesopathy, which now I know what it is I can do something about to some degree.
I thought I was slowly (o so slowly) getting better, but have recently had a downturn in energy, strength and cognitive thinking and memory.
I live in Suffolk. I wonder if there is a different approach in other areas.
Qwase pat62
Posted
I think they are trying to limit the amount of pain killers given so I think it's definitely worth pursuing.
Ridiculous to be told yes, you are ill, yes I have things I can do to help, but I'm not going to :-(. Xxx
Qwase victoria63790
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I don't know what to suggest really, other than keep in touch and wait till I find out what this could offer me! From the little ice read its a lot of balancing energy inputs and outputs. Which is really annoying when you've got any form of a life!!!
It's a nightmare. They told me I'll be starting in jan, and I will get my dates through in a letter late dec/early jan. What help is that?!?! If you work, or study, or volunteer, or needchild are?!?
I'm trying to avoid prescription medication, I've seen from my mum what pain meds can do. I found myself unable to move my neck the other week and got given ibuprofen, with the line of attack of them being ineffective then we'd go onto gabapentin. I'm trying to just go drug free unless I find myself a real mess. I think I'd rather put up and shut up for as long as I can. Terrified of my body manufacturing pain as a reaction. Don't wanna be on pills forever, let alone off my face forever.
Xxxx
richard89308 helen70967
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Richard
sarah12781 helen70967
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helen70967
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Qwase helen70967
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donna63932 helen70967
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Lizzlizz helen70967
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HeAnswersByFire helen70967
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helen70967 HeAnswersByFire
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donna63932 helen70967
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