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Can i get disability benefits and/or esa with a severe case of hs?!

Posted , 8 users are following.

juliegr
juliegr

i've been suffering from hs for nearly 10 years started on my arm pits but spread the last couple of

years. the last few months it has been getting alot worse it is now on my arm pits one of my breasts both upper inner thighs and all across my groin and privates.

i was working full time til sept 2012 which was manageable then as it wasnt as severe but then i was laid off. im currently receiving jsa but keep getting told by family and friends i should go onto esa. im scheduled to have a couple of ops to try and improve my life and ive been constantly on antibiotics for the past 5 years but it is still getting more severe.

i have also heard i could get disability allowance. is anyone else in a similar situation or does anyone else receive benefits for hs.

i also suffer with depression, please help thank u

0 likes, 9 replies

9 Replies

  • geekalicious
    geekalicious

    Posted

    Hi. It will be very difficult to get ESA for HS. It isn't actually recognised by the DWP, yes I know that is beyond stupid. http://www.dwp.gov.uk/publications/specialist-guides/medical-conditions/a-z-of-medical-conditions/#h

    I have HS am Diabetic, have Neuropathy, Ostoearthritis, a rare skin condition called Palmarplantar Keratoderma (go me to get 2 unusual skin conditions ><) and i also have depression. despite all that i struggle to claim esa every year and am constantly going to appeal.

    now despite that do apply but get all the medical info to support your claim that you can. don't just fill in the form add written documentation about how this affects your life. describe an average day. as hs isn't on the dwp site enclose documentation from the nhs site about the condition.

    good luck. and="" i="" also="" have="" depression.="" despite="" all="" that="" i="" struggle="" to="" claim="" esa="" every="" year="" and="" am="" constantly="" going="" to="" appeal.="" now="" despite="" that="" do="" apply="" but="" get="" all="" the="" medical="" info="" to="" support="" your="" claim="" that="" you="" can.="" don't="" just="" fill="" in="" the="" form="" add="" written="" documentation="" about="" how="" this="" affects="" your="" life.="" describe="" an="" average="" day.="" as="" hs="" isn't="" on="" the="" dwp="" site="" enclose="" documentation="" from="" the="" nhs="" site="" about="" the="" condition.="" good="">

    now despite that do apply but get all the medical info to support your claim that you can. don't just fill in the form add written documentation about how this affects your life. describe an average day. as hs isn't on the dwp site enclose documentation from the nhs site about the condition.

    good luck.>

  • NikkiDee
    NikkiDee

    Posted

    Hi! I am claiming ESA for this condition although on my medical certificates they write abcesses instead of the condition itself as for DLA I doubt it. I put in a claim for it back in Feb got turnt down so put in an appeal with the help of a CAB worker and my doctors and still got turnt down so am awaiting a date for a tribunal as of yet. Let me know if you have any luck with either, hope this helps smile
  • chuckles27
    chuckles27

    Posted

    Hi I have been receiving ESA since September my doctor wrote me a sick note for hidradenitis suppurativa and back pain as I have two slipped discs in my back, they dont know about HS so when I filled in the questionnaire for them I included a printed copy of the internet explanation for the disease and also a copy of my scan results for my back, it is worth asking about, I've been unemployed for over a year, it was my job fit advisor who suggested I go on sick as im in constant pain, I also have 2 displaced knee caps which I was born with, im waiting for orthopaedic appt for knees and back, im also waiting to have my damaged tissue in groin removed by surgeons to see if this helps with my HS, unfortunately I am now developing them under my arms, my main problem area is groin. Hope this helps.
  • jays242
    jays242

    Posted

    Hi, im new to all this forum stuff, this is really a message for geekalicious.

    I myself, am also suffering from hs and palmaplantar keratoderma. Ive never actually spoken to anyone who has both problems. And was wondering what you do to controll both and live as much a normal life as possible. Mine is on the palm of my hands and the bottoms of my feet. Everyday is a daily struggle to walk or move. Ive been suffering for 10 years now and still cant cope im 22 years old. Any help would be greatly appricitated.

  • geekalicious
    geekalicious

    Posted

    I also have the PPK on my feet jays but luckily for me (in an arse backwards kind of way) I have neuropathy so can't really feel it that much. The hands bother me more because they are so visible sad
  • geekalicious
    geekalicious

    Posted

    Jays licl on messages at the top right hand of the page smile
  • leigh-anna00440
    leigh-anna00440

    Posted

    iv suffered with this for 10 years now also, in the past four years my condition has got progressively worse to the point i had to quit my job and go on disability, after a year on disability and a operation to removeboth areas of my groin i was able to find a new job, and i am now back to square one with the same abscesses and now may need another op, i think as long as you can prove your situation and dont mind going for checks by them, then they will offer you disability allowance i also suffer from moderate depression and severe anxiety, the only thing that helps with this condition is echinacea root hebal tablets these make theabscess drain in a day or so which is a big difference to trying for months to get rid of these but still anyone with this condition cant work full time as this makes our condition 10 times worse even doing my job (working in a school) i get half terms and holidays even this doesnt stop the flare ups, and the longer the medical profession refuse to take this condition seriously the more people will be on disability and be a shell of a person they once were !! im not surprised this condition has a high suicide rate ...
    • doc10885
      doc10885 leigh-anna00440

      Posted

      Hello, Unfortunately I'm suffering from HS myself. It started in my late teens and has progressively gotten worse in my mid 20's now I'm 32. It has spread under both arms both sides of my groin, buttocks area and also above my private area and my belly button. I'm a male. As I was working between 2011-2012 it to control over my body and spirit. The harder I worked the worse it got with more flair ups. I didn't have insurance so long story short the ER would lance and drain them over a period of years, causing so much scar tissue I couldn't move my arms properly or walk due to flair ups in my groin and buttocks area. I filed for disability after continuously missing work and having to quit and was denied. I'm in the appeal process but I'm greatly worried that I will be denied again. I'm currently seeing a plastic surgeon thru a Health Charity care program having them chop off all this HS one place at a time. Do you think I have a better chance of getting approved? A regular General surgeon and Dematologist both said they couldn't help me because its to intense, the only physician that can help is a plastic surgeon. Since you were approved can you please lend some advice and thoughts on my case via email doublehmagazine @ gmail . Com 

      Thanks in advance!! 

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