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Can I share my experiences with you?

Posted , 5 users are following.

Kay
Kay

Hi, just wanted to talk with people who understand as not many have so far my end! My 'story' began 10 yrs ago at 22 when I was diagnosed with ME/Chronic Fatigue (usual cop-off from GP's), but I knew there was more to it. For a year I couldnt walk, had to make provisions for a downstairs loo,etc. Fatigue was an understatement and also had terrible muscle pain and numbness. Since then had episodes of similar problems. Whilst at Uni, was the laughing stock as I always fell asleep during class or had to get up and move around every half hour. Also had severe constipation which is still with me now.

4 yrs ago developed visual problems, fancy lights and headaches - thought was migraine.

2 years ago I had the most awful pains in my legs with numbness in the left. Also very cold extremities. Saw GP who thought my problem was related to my back. Had physio which helped none. The more excercise I did, the worse my pain became. Sometimes when I walked my leg would drag or give way (backwards!)

Then over the last 6 months, things have got very bad. My fatigue is terrible, unrousable at times. My family just though I was lazy. I also have days of severe tremor and slurring words, was even accused one day of being drunk at work - I havent touched a drop for years. I walk around in a fog and I'm terribly clumsy. I just drop things and have bumped my car 4 times in the last 8 weeks - something again, I've never done. My legs are driving me mad, want to chop them off at times, feeling now in my arms too. My left leg just flops, along with severe cramps in feet and calves. Most freaky is the way my toes jump and move around on their own - again, much to my families amusement! I cannot walk any distance as the effects later are unbearable.

Today, I saw my GP (new one) who after listening to my history, thinks it might be MS.....AT LAST!!! Someone has even dared mention the words!

He want me to have blood tests to rule out other things even though I have already had some done recently anyway which were OK. I asked if there was a definate way in diagnosing MS and he said there wasnt.

I therefore wondered if anyone out there has been diagnosed with a GP visit alone or even with a normal MRI result?

Would love to hear from anyone who has been through similar.

With best wishes, X

0 likes, 5 replies

5 Replies

  • yellowboat
    yellowboat

    Posted

    Poor you! I have several friends with M.S. and like you experienced similar before being diagnosed.

    I would suggest getting in touch with M.S.Society I am sure you would find a lot of help there.

    Just knowing what you have is a big step forward in being able to deal with the condition.

    I think your friends and family need to read up on it as well so they can be a bit more sympathetic and help rather laugh.

    Laughing at yourself is good for you but you do need the correct help.

    I wish you lots of luck

  • gail
    gail

    Posted

    hi kay

    i work with people with ms and you are in the right age range for diagnosis, a few people have said that their optition(spelling) saw something and refered them, so maybe thats worth looking into, and mri can show up the illness by whats happening to the nerves, but of course you have to get a gp referal for that, as yellowboat said get in touch with the ms society they could be a lot of help. best of luck. gail

  • chair
    chair

    Posted

    Hi there, A Lumbah puncture is apparently the only complete way of a diagnosis. Ask to see a consultant, As gail said the MS society is very good, look at the local branch website, the support officer is a good start. Talk to people with MS and they will be sympathetic to your worries. It isn't easy to get a diagnosis as many other conditions have very similar problems.The MS nurses are also very good. Good luck
  • LindaG
    LindaG

    Posted

    I myslef am in limboland as far as MS is concerned. Things got so bad for me(I basically fell on the GP)that he got online and booked me in with a neuro, three weeks later I was there. That day I had bloods done and since then have had Nerve conduction studies doen and head, neck and spine MRIs. I am waiting for results. As far as I know there is no GP that would or could diagnose MS. MRIs can show it up as brain/spine lesions, but as far as I know the Limbar puncture is the best way. Just hoping I do not need that done. I wish you luck in your travels on this path. I thought I was going mad when all the bizarre things started happening to me.
  • fruitloverlady
    fruitloverlady

    Posted

    I just wish you will have the best solution for everything that is bothering you right now.
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