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Can r Vestivular Neuronitis return?

Posted , 6 users are following.

Stacy0624
Stacy0624

I'm slowly getting a little better with this illness. My questinnitus though is that once I get better what are the chances of it returning? I'm about 40% better than what I was 4 weeks ago when this started. I'm trying to be positive that I'll make a full recovery. It stinks that I'm still off balance everyday but I'm hopefull.

0 likes, 21 replies

21 Replies

  • helen91488
    helen91488 Stacy0624

    Posted

    Hi. Stacey. U fortunately yes it can come back. I went down with it in December then by March was ok. Unfortunately six weeks later back it came. It's not as bad as was originally. My ENT doc said that reoccurrences are very common. I'm really hoping I've had my quota now! 5 and a half months of feeling crap on and off! It effects your whole life. People see me and say but you look so well! They have no idea do they how awful this is, hope you continue to improve. Incidentally how did you get this diagnosis? Did you have tests done etc x
    • Stacy0624
      Stacy0624 helen91488

      Posted

      Not ent tests because they don't really tell u much. I started Vestibular physical therapy... did you do that?
    • helen91488
      helen91488 Stacy0624

      Posted

      I've started it too but it's a slow process. Wot ENT can do is eliminate and narrow down possibility.ie hearing tests etc x
  • tina15806
    tina15806 Stacy0624

    Posted

    Hi Stacey.

    It can return in my experience, I am getting through another bout at the moment, but its a lot milder and I am going about my normal business, just using the pointing exerscises (look at a fixed point ahead, look down and then fix on the same point when you look up again) this does work, apparantly it takes a few months for the vestibular nerve to heal completely and it can flare up every now and then. Once you are over the initial, flat on your back, episode, in my experience, you can get some mild flare ups for a few months, but they are not as bad as the initial one. The only thing I can not do at the moment is drive my car. You may need to ask your GP to refer you for therapy, I have not done this as my initial onset only lasted 5 days. It is important to try and do things as normally as possible to get your confidence back, hard when you are scared of falling over I know, but the quickest way to get over it, I also find worrying about it makes it worse for me so I take calms to take the edge off the stress of the symtoms. Hope you feel better soon, it will go completely eventually.

     

    • Stacy0624
      Stacy0624 tina15806

      Posted

      Hi Tina,

      Luckily I don't have the issue of falling over and I can drive my car. So I'm thinking it was not a bad attack. Although after a month my brain is still trying to compensate because I still feel off.. but I'm less dizzy and less anxiety..I just don't feel like myself and I can't focus or concentrate. I also had bvvp with this so it was a double whammy but the bvvp is finally fixed... I started therapy last week which I think is a life saver.I think it's helping as well as acupuncture

  • eleftherio33095
    eleftherio33095 Stacy0624

    Posted

    Vestibular neuritis is not considered a condition that returns. Were you put on therapy for Vestibular neuritis, and for how long?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist,

    Fellow of the European Academy of Neurology

    • Stacy0624
      Stacy0624 eleftherio33095

      Posted

      I started therapy last week. They corrected my bvvp. My vestibular neuronitis treatment starts Monday.

      Also when Will my thinking go back to normal? I feel foggy and off like my personality has changed and I don't perceive the world the same as I did four weeks ago..is that a side effect of the VN and will go away?

    • eleftherio33095
      eleftherio33095 Stacy0624

      Posted

      Sorry to remark that I am confused now. Do you have vestibular neuritis, or BPPV? If you have both ( they are not the same thing), which happened first?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • Stacy0624
      Stacy0624 eleftherio33095

      Posted

      The did not say which one came first....I then had tinnitus for a week which went away...before all this strated my ear felt full on and off which we thought was wax but the ent thinks it was the start of vn
    • eleftherio33095
      eleftherio33095 Stacy0624

      Posted

      Vestibular neuritis is a condition that is treated immediately, and when it starts it is associated with sudden without warning rotational vertigo and falling to one side, which does not fit what you describe. I am therefore not clear about how your doctor is managing this.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • Stacy0624
      Stacy0624 eleftherio33095

      Posted

      My mri was clear. And my ent said the side effects of VN could last weeks... since I probably have Vestibular weakness... but nothing is completely diagnosed. They thought maybe menieres but this is lasting to long for menieres... the therapy seems to be helping. I'm not as dizzy.. just feel off and not clear thinking. The first week I had bad vertigo had to hold onto walls to walk for like 2 days.
    • debbie82116
      debbie82116 eleftherio33095

      Posted

      My first bout of VN came on in 2008 and lasted 2 years. My 2nd bout came on last September and lasted 4 months. My balance nerve was damaged during the first bout and i was told that the VN can reoccur over and over again when my body's immune system is weakened by a virus or stress. I never ever had spinning but felt drunk throughout both bouts. I did not lose hearing and never had tinnitus but I experienced fullness in my affected ear which continues to this day...8 months later. Your thoughts? Debbie
    • eleftherio33095
      eleftherio33095 debbie82116

      Posted

      Can you list me the results of your examinations? (Audiometry, calorics etc)

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • debbie82116
      debbie82116 eleftherio33095

      Posted

      I had all the testing. The caloric test result showed a 55% vestibular loss in my left ear. There was no difference in my hearing test from Nov 2008 to Sept 2015.

    • eleftherio33095
      eleftherio33095 debbie82116

      Posted

      I am concerned by the long periods of your episodes. VN usually does not last that long.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • helen91488
      helen91488 eleftherio33095

      Posted

      Dear Sir. I visited am eminent specialist otoligist yesterday who is not in the slightest concerned that I have been suffering from VN for nearly 6 months. As he said Its not a classic text book case but everyone is different and  stress, worry and general ill health will all contribute to a delay in complete recovery as will taking betahistine. I myself am a nurse and regularly see people in my department who have been suffering in various degrees for periods of time. 

      Mant thanks

    • debbie82116
      debbie82116 helen91488

      Posted

      Thank you for your input! Doctors really don't know much in this field!!! Wish there was research money for these types of vestibular illnesses because there are many many sufferers!!!!!
    • helen91488
      helen91488 debbie82116

      Posted

      I think we just have to keep going and enjoy the good days. The first ENT person I saw admitted he didn't really specialise in ears nose was his thing! Hence I self referred to a specialist in otology. He certainly did all the tests  etc but I think when we don't fit their  list of symptoms they learned in med school then they are stumped.. Take care x
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