CAN SOMEBODY PLEASE STUDY THIS SO WE HAVE A CLUE WHAT TO DO NEXT?

Hi there sandeep...  sorry your feeling the way you do.. as uv been looking through the forums on PE you may of come across mine lol... I had them (multi) PE two years ago, and I know what you mean at the hospital, they told me I was very lucky that I’m still here, as I could off died with it, wonderful... but they seem to still treat you as tho it was a cold u got.. I’m on apixaban for life now, and two years down the line, my breathing is no better, so they have been doing test to see y, so no nit good.. my consultant told me that it would take around 3 months to heal from blood clots, so sounds like all say diffrent, but I do understand how u feel 🤗x

Hi There,

?Here's my experience, If it wasn't for a switched on triage nurse I may not of been here today. I presented to our emergency department with my normal angina chest pain, I didn't have any of the " text book " Pulmonary  Embolism pains, however I did have a sore calf muscle, I thought I had pulled/strained it whilst working, you know moved or turned the wrong way suddenly, it wasn't getting better after around 4 days so I mentioned it to my GP on my next scheduled visit, he agreed after taking a look that it was most likely a strained muscle, if not better in a week to go back. 2 days later I was taken to our emergency department with my normal angina chest pains, as I have mentioned, the triage nurse asked why was I walking so slow and limping, so she pulled up  the bottom of my trouser leg and saw that my leg was puffed up from the knee all the way down past the ankle and was hot to the touch, the nurse said to me that she was actually more worried about my leg than my chest  pain so I was taken straight through to a cubicle. Troponin and D - dimer blood test was ordered, troponins came back negative but the D - dimer came back extremely high so a contrast CT Scan was ordered and the found multiple blood clots in both lungs. Was admitted to hospital, from memory only over night, we couldn't come up with a cause other than a suspected DVT in the calf muscle and the clot broke away and moved to the lungs, however to find that many in both lungs they weren't sure if indeed it was a DVT that caused it, I was put on Xarelto but due to not being able to tolerate it I was then put onto Predaxa and was told I had to be on it for life, I asked why for life, they believe I am easily susceptible to them for some reason or other.

?Now as for the pain relief side of things I am on endone for my type of angina, works well, keeps me out of the emergency department unless I feel different, as in if the pain goes up into the jaw or the endone isn't working I go to our emergency department. My GP said to use the endone for the P E  pain as well, as down the track I did start to get pains in the back, once again worked well and still on this pain relief. My GP had also told me, depending on the severity of the blood clots they can take anywhere from 6 months up to 2 years to fully resolve. I was fortunate enough that our emergency department kept tabs on my PE and did follow up testing, 12 months later I am now clot free and no signs of any DVT's  but I apparently must continue to take blood thinners for life as they seem to think it's hereditary / I'm susceptible to getting them.