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can someone tell me the truth about cold progression

Posted , 11 users are following.

fedup2
fedup2

I was on a site yesterday buy only saw later the question was listed 8 years ago! Ian 58 stage 3 with 32% lung function.I can do nothing,every time I try my breath goes.Life has ended and I wonder his long I stay in stage 3,really I want to know is my life is going to go on like this for years.I could not stick it as it is no life like the one I had.To get washed and dressed is so hard,and I am full of fluidretention so look a sight.I am also very down and feel I would ruin anyone's day.There is no love in my life,that died a long time ago,oh I get fed but if he can be out of the house he is gone.Could the meds make me feel so based I was always a very happy person.My children don't know the new me.Do others feel like this.I was told 7 months ago how bad I was.Thank you'll for reAding this.

6 likes, 112 replies

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  • fedup2
    fedup2

    Posted

    Hi again this is fefup2 back again.I am now fedup 222.Things are really no better...where do I start.There was no lung transplant as Doctor wanted to try a new procedure called Broncial Thermoplasty.As yet I have had only one out of three done as I was not good enough ( well enough )to have it done.I have had a bad year,not able to leave house much as i now am at a stage where i feel as if i am smothering.Fev 1 has gone down but still not on oxygen.I really feel my husband has had enough as he still cooks but moans...never asks how i feel about where i am.I would say there really is nothing between us so that gets me down

    I also think people..family don't believe there is anything wrong at all and this gets me down as well.Doctor will not let me go to Spain with my mum and sisters so no holiday for me...i sort of felt he would say no.I now have to see some guy to help with anxiety that is why next Thermoplasty has not been done.I was very bad at first one..even kicked the Doctor.I knew nothing about it as i was in twilight !!!!!.Seeing him mid May and then back to new Doctor.How has everyone been....sorry i was away so long...just so sick of the whole thing.Please let me know how you all are.I have been thinking about you all.

    ..

    • poppysocks1
      poppysocks1 fedup2

      Posted

      Have sent you a private message fedup2 hope you have recieved it. (((Hugs))) Take care.
  • jay7196
    jay7196 fedup2

    Posted

    HELLO FEDUP 222, these mails are all out of order. THIS IS A REPLY TO YOUR POST SEVEN HOURS AGO.  Hope you are ok this morning ? Why cant you go to Spain ? ? what ever reason can the doctor have for stopping you ? Hope you see this .. good luck, waiting for you reply . .  j
    • fedup2
      fedup2 jay7196

      Posted

      Hi...we asked the surgeon..guy I a. Under at the moment and he said no..no way.I never asked why,my breathing is not great maybe thats it

      How are you ,are you ok?

    • jay7196
      jay7196 fedup2

      Posted

      I am ok- have good days and rubbish days. I will be good when the temperature is 25 and no humidity., lately some days every breath has to be forced. I dont care anymore- hay fever has started, really think I was better off smoking my little cigars   - go to spain in summer, I will bet you that you will feel great . .  
    • fedup2
      fedup2 jay7196

      Posted

      just like us all... good and bad days.I find one day you can feel ok and the next you are so caught up and nothing elce has changed.....breathing can change so quick.I am now only fine lying ( on 4 pillows ) or in a chair.Hard for others to understand as we all look ok.Really I knew Spain was not going to happen...i am wacked out after dressing and shower.I hoped I would be ok when time came..it's middle of May but really am not.Hay fever..poor you that is not nice.I ,like us all just take one day at a time and hope some day it may just go away.Take care of yourself.Great to chat with you again.

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