Posted , 8 users are following.
Can't cope with this pain anymore.stood here writing this in tears. when I sleep its on settee for about 2 hrs a time wake up again needing more oramorph just to stand. Physio said cant do any morr still waiting for appointment for pain management clinic to maybe have steroid injection into spine. Waiting for appointment for consultant told 14-16 wks cant wait that long .if it weren't for my family dont think il'd be writing this.
doctor doesn't know what else he can do.on so much medication which doesn't serm to help just dont want to carry on any more.....
0 likes, 14 replies
marshall71 suzanne136
Posted
I suggest you contact your local MP a email outline your problems and the lack of treatment you have recently received
I've been where you are Took me a year too get a MRI scan after seeing 7 gps which all said no had physio hydro all did nothing about more pain i take cocktail of painkillers and amitriptyline too sleep put on weight it's a uphill battle to get anything do you now have to be pushy with the NHS keep asking for some to be done.
I do know how you feel and wish you well
Your message is common I read many like yours I wake up in pain and wait for my meds to work so I can see it's been like this since last year have you tried TENS for the pain ? I use it works well hot water bottles.
It's good you came on and tried to address your concerns and asked for guidance
ang85680 suzanne136
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BirdBrain suzanne136
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Is there any way you can get to a swimming pool? Floating in the warm water of the baby pool can support your muscles and give some temporary relief.
Did you get anywhere with the acupuncture?
I'm currently having hydrotherapy at my local hospital and it's helped loads.
I agree with marshall71 for sure, you need to go back and have a kick off about waiting so long: those that shout the loudest get heard. I know waiting lists are ridiculous everywhere but these conditions are not prioritised enough in the nhs.
I wish I could wave a wand for you and rush things through. All I can do is send my support and words that will hopefully keep your spirits up.
Hang in there, I know you can do it. You're stronger than you think xx
Rachel
LindenS suzanne136
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charles54091 suzanne136
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I've had incapacitating sciatica 3 times, and it was to the point where I could not stand or walk. Since at the time I had no medical insurance, I followed my brother in law's advice, which was to stay in bed for 8 weeks. I was told that my problem was inflamation at the base of my spine, somewhere, somehow, which put too much pressure on my disks and muscles. Well, it worked, and after 8 weeks I stood and walked and drove from NY state down to Florida.
Twice again I did the same thing, so staying in bed for 8 weeks seems to be the amount of time it takes for me to self-heal. I am now once again in a similar situation, but at 77 years old it may not work.
The really puzzling part of this is that no doctor will recommend such a practice, at least I can't find it anywhere. They even say that to stay in bed may be harmful......
But if all else fails, I would suggest trying it.
charley
amanda_84583 suzanne136
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suzanne136 amanda_84583
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well to cut to the short version I was rushed to hospital 10 days ago and transferred to the QE in B'ham due to worsening siatica,was retaining wee and brachialgia.underwent a right nerve root injecte under ct guidance with minimal improvement and was discharged thu just gone without operation under the chronic pain team.The immense pain has gone but im dosed up to the eyeballs on morphine, steroids, diazepam etc
the reason they gave for not . operating was the disc buldge pressing on the nerve was quite small and they felt they may cause more damage and they hoping the inj will improve things. Slept in bed fri and sat night but up again this morning in pain so who knows. got to go back to.see Specialist in 2 wks but will be going up before if it continues. Just sick of the whole thing now. Feel like im never going to go back to a normal life.......xx
LindenS suzanne136
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amanda_84583 suzanne136
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suzanne136 amanda_84583
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now I'm home is like my hubby thinks everything back to normal but its far from it.with the 2 kids the oldest being disabled its kind of doubly hard too as if he has a bad night or his food alarms as his gastrostomy fed cant even get up to him.
dreading the summer holidays if no improvement. luckily I have a support group with my mom and dsd and sisters and ironaclly my best friend also suffered from this for nearly 2 yrs she had her operation last yr which was successful so she knows what im going through ..also have come home from hospital with a cough. .chest infection so think I need antibiotics very gteen which is probably why im more sore too.
Anyway enough of my moaning and lets hope we all get some relief soon I have got a heat pad and x also as tenns machine though the latter sermed to csuse more pain
take care
sue x
amanda_84583 suzanne136
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Lennie3 suzanne136
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suzanne136
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hope everyone else ok
thomas97463 suzanne136
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