Posted , 3 users are following.
Hi, this is my first post here; I'm desparate. I'm a 21 year old female with severe HS on my "underwear line". I am overweight so my stomach rolls over the 7-8 inch wide line of cysts. I have tried topical creams, Clindamycin, oral antibiotics, Xeroform guaze, etc. all with little to no improvement. I bandage it up everyday with guaze and a strip of Xeroform just to conceal the stench and provide any bit of comfort. I have such horrible anxiety and just thinking about this disease on my own body throws me into a panic attack. I can't sleep without pain, I scratch off my tape in my sleep, which has left me with rashes. It hurts to sit and walk and laugh and basically do anything. This is ruining my life. I have seen 6 doctors and surgeons and all appts end with them pushing me to a different doctor because no one will operate on me because of the unprecedented location of my HS. It seems like I essentially need a tummy tuck where I can get the glands and tracts excised. I am in the Michigan area, but I will travel anywhere in the Midwest to find a doctor who could give me hope for surgery. I can't wait forever I feel like I will go crazy. Please, if anyone has any ideas for me for what I can do, respond to this post.
0 likes, 5 replies