Can't get off 100mg!!!
Posted , 11 users are following.
Hello.
I have been trying to come my final 100 MG gabapentin for months now . Every time I try I get severe insomnia and mood swings ( among many symptoms). For four months I have been halfing the dose with a mix of orange juice. I still cannot jump even this little amount without the insomnia and mood swings coming back. I am otherwise a very stable, relaxed person. I am a professional mental health provider that works in crisis situations. I was on 1200 MG of gabapentin for two years before I can begin slowly tapering over the course of one year.
Some background: while in grad school I had two traumatic events happen to my family. This caused me great anxiety and I decided to take medications . Gabapentin was the first among many. I wound up on five different medications for anxiety and depression associated with PTSD. I have recovered and no longer need meds. ( They ultimately caused more harm than good).
1 like, 28 replies
wanganui emma68070
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marshall71 emma68070
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brian57421 emma68070
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katrinas emma68070
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Only you can decide what course of action to take medically and if you also work in mental health and have had trauma in your own past, I am sure that causes a lot of stress and anxiety. I had never taken any anxiety or pain meds before my MVA in May 2015. I was started on gabapentin, among others while in the trauma hospital and had no idea what I was on. The doctors continued and increased me from 100 mg 3 times a day to 600 three times a day and it was awful. The side effects were terrible and it never worked on my pain anyway. I gained over 50 pounds, my body had involuntary movements, I stuttered, I shook, my memory was gone, I would lose the ability to find words when I spoke. I could go on and on. I knew I couldn't live like this. When I finally found a discussion from actual patients who were or had taken gabapentin and could say what they had been through, I made the decision to get off of it. My Neurologist suggested a plan for a very slow weaning but I took matters into my own hands because I didn't want to take any more time out of my life in which I could not function and be me. I went from 1800 daily to nothing over the course of 3 weeks. It was awful but I think it is worth it. I still have pain every day due to my 3 bulging and 2 herniated cervical discs, peripheral nueropathy, and cervical radiculopathy but at least I am drug free and I feel better about that. I get some pain relief through physical therapy and a traction unit. It is made by Saunders. They started me on it in PT and my Insurance would not approve one for me to use at home so I bought one used off of EBay where I found them in plenty and I only paid $127, with shipping it was still under $150. New units can be $800 to $1000. Everyone responds to things differently but if you want off the gabapentin, maybe something like this could work for you too. The longer you are on it, the harder it is to get off. Hope this helps you or someone else. Katrina
Shammah emma68070
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emma68070 Shammah
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Tip. At higher doses I followed a recommendation from a forum from a doctor. It was to taper down, then increase to a higher dose every few days.
wanganui emma68070
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emma68070 wanganui
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Shammah emma68070
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emma68070
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I used a milligram scale to taper. It definitely helped. Five months to get to 11milligrams before my final jump which went well! All attempts in between resulted in insomnia . For sleep I'm using emergency-c z.
suzanne26650 emma68070
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I found a doctor who prescribed me phenobarbital to take to come off the gabapentin. It took four days and it was complete hell. But I think it would have been worse without it. I have been off for 2 weeks now, and I am better, but still pretty awful...anxiety, waves of sadness, tears, depression come out of the blue, unpredictable. Anger, irritability. I am trying to supplement with good oils (omegas, coconut), amino acids, b vitamins. I think it just takes time. I hate this drug.
Definitely do this under the care of a doc or trusted friend, it is very very scary stuff. Very dangerous. Be careful. Good luck.
Jayive suzanne26650
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I haven't read anything on this blog for ages but looked in this morning as I am also trying to come off Gabapentin.
?I started taking it 3 1/2 years ago following a bad hip replacement operation which I wish I had never had as the pain post op is (and has been) much worse now than before I had the op. Since January I have slowly lowered the dose till last week I went to my doctor to ask for 100mg tabs as I had managed to cut it down to 1 x 300mg morning and 1 x300mg evening. I have now lowered it to 2 x 100mg morning and 1 x 300 evening. So far no adverse effects.
?I don't know how long before I will try to lower this again but think it's best to go slowly as when I tried last year to cut down quickly I found it was BAD.
?Due to the severity of my pain I was prescribed Gabapentin 3 x 300mg four times a day. It made me very sleepy but didn't stop my pain and caused me huge weight gain.
?I'd love to hear from anyone else in this situation
rita52071 Jayive
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this drug is a horrible drug....If I only knew.....but I didn't research it......just want to get off of it now ....not doing anything for me 100mg one time a day...cant believe having so much trouble getting off of it
rita52071 Jayive
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rita52071 emma68070
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about 3 months ago maybe a little longer I tried taking 100 mg of gabaprntin every other day ...after the 4 th day it was so bad but I hung in there for 6 days....at that point I could't function had to go back to every day once a day 100 mg....July I was on it a year....June 8 I took my last depakoe.......I dont have another drs appt till Oct....but I am going to try and go in earlier to see what we can do to get me off of this med....right now I am getting alot of headaches...they think its sinsus inflammation been having trouble for a month....going to call dr..may need antibiotic.......I never get headaches...