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Hi, my name is Kelly and I am 23. I have been experiencing some debilitating symptoms since September (although I believe there has been a gradual onset of symptoms from a few months previously). I am yet to have a fully comprehensive diagnosis and I am looking for some advice and support as I am at a point where there isn’t a light at the end of the tunnel.
My main symptoms are currently as follows…
· Fatigue – I don’t remember the last time I didn’t have this overwhelming tiredness (physically and mentally). Sleep doesn’t touch it and although it seems to get worse with exertion this isn’t a primary aspect of the fatigue (I am tired even when doing little).
· Muscle aches/stiffness – I feel like a pensioner. Walking is effort, standing up from a chair/getting out of the car takes so much strength and the walk from my car to the office feels like a marathon. I hobble around like a cripple and I am often worried my legs will give way – not really how a 23 yr old should be feeling.
· Dizziness – I am currently on medication to curb this but I still find my balance is wobbly and I get lightheaded and spaced out.
Other less frequent symptoms include random stabbing pains (usually legs & stomach), visual disturbances (black dots/trouble focusing), nausea/vomiting
My diagnosis was Hypothyroidism – not shockingly so but enough to put me on Thyroxine after hearing my families unfortunate history with that damned organ! I am currently taking 50mcg.
My blood pressure is fine, all other bloods are fine and CT/ultrasound of head and neck came back as all clear. The specialists have just sent me back to the doctor and he just thinks that Thyroxine will be the magical cure (if anything I am getting worse!)
Finally I realise the following things have some negative effects but I know it is not just these things so please don’t say it is! I have put on a lot of weight (4st in 4 months - and I was very overweight to begin with! This is partly hypothyroid and partly not having the energy to cook/go and buy healthy food.) I also have depression/anxiety (initially I thought the symptoms were caused by this but now I believe it is the other way round – I am no longer on anti-depressants and don’t feel like I need them. The thing that is causing the depression and suicidal thoughts is this illness) and IBS (which has not worsened).
The way I am feeling is ruining my life. I have taken a lot of time off work (although now I am having to physically drag myself in otherwise I can’t pay rent), I don’t have the capacity to maintain much of a social life and my relationship is taking a bit of a hit. Please – if anyone can offer any advice I would really, really appreciate it! Feeling so alone!
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