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Now I'm simply out of my mind with worry. It's been 7 months since my first diagnosis. Another doctor told me I may have gallstones, went tested for that and the doctors couldn't find a thing. Went back to the doctor and was once again told that if nothing else I have GERD. I have done everything from losing weight to raising my bed and dieting yet I am still unable to breathe properly, still have a burning sensation in my chest and stomach and I am at my wits end. At this point I am convinced I am dying. The PPIs I've been prescribed only make me feel worse.
3 likes, 20 replies
ndanswrs46580 tamsyn59552
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Giblet24 tamsyn59552
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Jonathan57679 tamsyn59552
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Endoscopy? MRI? Lung function? Heart? Blood work? Also, are you taking other drugs for other issues? Asprin or pain killers?
Sometimes, raising the bed is not enough to protect against the reflux. I know of some people who have to sleep in a recliner because their esophageal sphincter won't close. If you have that condition, then even leaning over can cause acid to go up the esophagus.
Acid blocking drugs can also cause some damage. If they get caught in an pocket in the esophagus they can cause severe chemical burns. This can also occur in the stomach. If they disolve near the stomach lining, they can burn and make a sore. These sores add up and can end up as gastritis. So, always take medication with some food and alot of water. I always open the capsules and swallow the tiny time pills. That disperses them.
Plus, our body can become resistant to the acid blocking drug. Then your back to making acid between doses. Some people take huge doses of two different ones at the same time because they don't work anymore.
And, unfortunately, yes, a person can die from GERD. It is called aspiration reflux. If the reflux gets up into the throat, a sleeping person can inhale the acid. If that happens then it can stop a persons breathing. This happened to me and I was barely able to get my breathing started again. And, I've been told that it happens to many people with GERD.
That could be causing your breathing problems, since the inhaled reflux can turn into aspiration pneumonia.
Sorry for the long reply, but this GERD can be very complicated.
If you have a non working LES, then you may need surgery to repair it. There are new methods to do the repair. I don't usually recommend this surgery, but I believe your condition is extreme. Once that is done, then the esophagus can heal and the aspiration reflux will hopefully resolve on it own.
You need a second medical opinion right away. Some doctors get frustrated and stop looking for answers.
Keep us informed, regards, Jonathan.
tamsyn59552 Jonathan57679
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tamsyn59552 Jonathan57679
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to shut me up doctors first gave me ranitidine and then lansoprazole and both made me feel ill. I was given 5 nexiums as well but it didn't help at all. Been in and out of hospital for 5 months and they would offer me no words of advice or solace. My family won't believe I'm sick either. I don't know what to do....
Jonathan57679 tamsyn59552
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If your doctors are not going to be helpful then you may have to do this yourself, like I did.
Some people have criticized me on this but I'm going to do it anyway. And in this forum, they limit us as to placing links for information.
Try this, drink 10 oz of some non chilled carbonated water or soda pop and tell me if your stomach builds up pressure or not. Try to not burp for 5 minutes. Let me know when you have done this and what happened.
aryt Jonathan57679
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tamsyn59552 aryt
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karen65150 tamsyn59552
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tamsyn59552 Jonathan57679
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Jonathan57679 tamsyn59552
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However, I am 99% cured in that area. I rarely feel that pain. Now, I only have the feeling of acid in my stomach, which I deal with using a small dose of acid blocker before bedtime.
i can eat whatever I want and don't feel 'acid indigestion'. During the day I eat small meals to soak up excess acid.
I still do the cabonated water treatment. And I plan to keep doing it to maintain my LES.
And yes, some of the treatments people get from the medical community for acid reflux actually end up causing more severe problems.
I'm trying to tell as many people as possible that if they strengthen the esophageal sphincter they can resolve many digestive problems.
tamsyn59552 Jonathan57679
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donna38719 tamsyn59552
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Jonathan57679 tamsyn59552
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rex_44766 Jonathan57679
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Could you possibly tell me what you take and the dose please?
Jonathan57679 rex_44766
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And also, I eat lots of plain probiotic yogurt. First thing in the morning, followed by only water for 30 minutes. Then some yogurt every 2 to 4 hours.
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