Can you have pmr without stiffness.
Posted , 14 users are following.
Can anybody tell me can you have pain in shoulders and hips without stiffness with pmr .
0 likes, 39 replies
Posted , 14 users are following.
Can anybody tell me can you have pain in shoulders and hips without stiffness with pmr .
0 likes, 39 replies
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Twopies patricia71865
Posted
i vote for yes. sometimes i have pain and i walk like a duck. sometimes i just have pain; sometimes i just walk like a duck. its a crap shoot.
amkoffee Twopies
Posted
Two pies you crack me up with your answer. I definitely wattle and I think I wall all the time everywhere I go.
Twopies amkoffee
Posted
thanks! at least im not alone!
Twopies patricia71865
Posted
if you are asking about onset symptoms, then i have to say it depends. my onset pain was so bad that i dont recall stiffness; the pain totally domineered everything. my previous response was based on how i feel now, 2 years later.
lynda62707 patricia71865
Posted
not sure....my pain/stiffness is mostly in hands/fingers/wrists and shoulders/forearms....not so much hips...but DEFINITELY I've got stiffness in a Major way!!
henni05917 patricia71865
Posted
l had stiffness along with shoulder and upper arm and wrist pain but l don't think you have to.
ptolemy patricia71865
Posted
In my case the pain was so bad I didn't notice the stiffness if there were any.
nick67069 patricia71865
Posted
in the beginning , before being diagnosed, there was very strong pain in my hip/upper leg area as well as shoulders and back. PMR pain is bilateral, although it may not be as strong on both sides. It became progressively worse and I could not turn in bed or get out of bed on my own. At that point PAIN was so dominant that I was not aware of any stiffness.
But you need to get proper diagnosis, because some other conditions can have similar symptoms. In a process of diagnosing PMR, they will try to eliminate all other possible reasons for muscle pain until you are left with "just" PMR . There is NO direct test to diagnose PMR .
Bethune patricia71865
Posted
i had severe pain, but would not particularly call it stiffness. it also was NOT worse in the morning than at night.
rich38490 patricia71865
Posted
I'm with Ptolemy, initially my pain was so bad, i could not differentiate with stiffness. As I got more into the the disease, I Recognized the stiffness. Example, unable to go through a drive-through ATM because I had no range of motion in my shoulder .
Then I realized if I could walk briskly in the morning, my symptoms would mitigate.
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patricia71865
Posted
Thank you for your replys
missmagwumps patricia71865
Posted
I am still not sure I have PMR - I had no pain in shoulders and arms - just in hips and legs with pain and stiffness which decreased as I walked around but came back again after i had sat down for a period of time.....having said that I couldn't turn around/over in bed easily but that was mainly because of my lower half.....but it seems everyone is different here, in varying degrees of symptoms.....a very curious disease indeed....x
ptolemy missmagwumps
Posted
Are you taking pred? If so did it help?
Bethune missmagwumps
Posted
my arms and shoulders rarely are affected. M y PMR is almost always pain in the buttocks, groin, hips, hamstrings and quads.
patricia71865 ptolemy
Posted
When first diagnosed with blood markers was to high was put on 40 of pred and was told to reduse by 10 every 2 weeks i felt very ill but doc done more bloods and they came back ok he then said he didnt think the immflamation was pmr after all .and told me to take pain killers that doesent work. that was 4months ago still in pain all the time in neck shoulders and hips and buttocks.
EileenH patricia71865
Posted
Then insist on a referral to a rheumatologist. In some people the blood markers will not rise when you are on pred - even if they were high before.
ptolemy patricia71865
Posted
What dosage of pred are you on now?
patricia71865 ptolemy
Posted
Im not on pred doc said to come of them i have been of for 2months.i am in pain 24/7 been to see rumy and he agrees with doctor.im at my wits end.
ptolemy patricia71865
Posted
You poor thing. If it is PMR you must really be in pain. Can you see someone else? Eileen suggests you ask to see a rheumie if you can.
patricia71865 ptolemy
Posted
Thank you .will try not easy to see doctor or rhummy. if you are lucky it takes months to see rhummy.
ptolemy patricia71865
Posted
I must admit I have rather given up on my rheumies, I have had four of them! It normally takes three months to get to see one, then in my case it has been a total waste of time. I believe there are good ones around, I have not stumbled across one yet.
EileenH patricia71865
Posted
Then see a different GP who will listen to you and accept you are needing better diagnosis and management, and ask to see a different rheumy.
Where are you?
patricia71865 EileenH
Posted
Im in staffodshire. thank you for advise
EileenH patricia71865
Posted
Hum - don't know of good rheumies there. But you need more than you are getting at present.