Can you improve Ckd at stage 4
Posted , 7 users are following.
Hi,
my husband has kidney disease and his gfr is at 22%, he has type 1 diabetes which is how he got ckd. We want to avoid dialysis and kidney/pancreas transplant as long as we can as he is only 34 years old. I have been researching and have seen posts about people's gfr being improved by diet etc and did not realise this could happen as was always told it is irreversible! Has anyone improved there ckd and if so how did you do this?
Thank you all x
0 likes, 13 replies
Runedog charlie34043
Posted
Regards
Graham
charlie34043 Runedog
Posted
Hi Graham,
thank you you for your reply and advice, have you experienced this yourself? Is there any research on them as I've struggled to find anything concrete to support this, sorry just don't want to suggest anything to my husband that could make him worse. He is starting the vegetarian diet tomorrow although I'm going to find it hard to not cook with meat.
thank you
charlie34043
Posted
i appreciate all the help we can get as we have a 2 year old and want his dad healthy 😊
Runedog charlie34043
Posted
I have refused dialysis and have no intention of changing my mind.
Diet does make a difference and I would personally give it a try.
All the very best
Graham
charlie34043 Runedog
Posted
thank you take care
charlie
Runedog charlie34043
Posted
You're more than welcome and I really hope all works out for yourself both.
Graham
helen54849 charlie34043
Posted
Hi,
I personally would not change anything unless you are told to do so be your neph and dietician, it can be dangerous. I also wouldn't take any tablets without speaking to your neph as there are lots of things that make kidney function worse. I went very quickly from stage 3 to 5 and was told by my neph there is nothing you can do to make it go back up. Your circumstances will be the same as there is a reason for the decline (diabeties). As he is at 22% they will start asking about testing to go on the doner list, you go live on that around 20% GFR. You are in a situation where you are quick lucky believe it or not as people who need pancrias/kidney transplant are treated differently that those who just require a kidney. It may be the case if you have a good team behind you, you can skip dialyisis. My friends husband was on the list for 3 weeks before he had his first call, this didn't work out (it is to be expected) but then 2 weeks later he had his second call and job was a good one he has his transplant and is doing well. Even though they knew my GFR was dropping they left me to the point I needed dialysis I only required a kidney. I have been on dialysis since Nov 2014 and have only had one call. Luckily for my I have a live doner and we have our transplant in 2 weeks I am only 39 and have a family. I would not be scared by what is going to happen (you need to face facts its is going to happen and soon) I would research the different types of dialysis just in case it is needed so there is less shock if the time comes. Go to the local unit so you can see haemo and speak to the patients I dp peritoneal so am happy to give advice if need be. I dodn't fancy haemo too restrictive for me personally. You need to think practically if there was a way to raise GFR then we wouldn't have so many people waiting on the list. There are occasions when it can rise but that is in people who have acute illness and not chronic. I have to be honest as I wwouldn't want to tell you he will wake up and be fixed all by himself as I doubt very much this will happen. I do 8 hours of dialysis every night at home myself it os a pain in the bum at times but it doesn't hurt and it allows me to look after my kids, work full time and run my family business. There are little restrictions and it is keeping me a live so once you get your head in the right place not so scary. Good luck any questions just ask obviously I am not medically trained but sometimes first hand experience helps x
susan16648 charlie34043
Posted
The first thing is to see a nephrologist. Do not take any pills or restrict the diet until you are told to do so by a good nephrologist. Everybody is different. He could staty at this stage for a very long time. He may need to follow a certain diet but everybody is different & it will depend on his labs. My CKD came about due to high blood pressure, well that's what they think although I've been on BP meds for years. Mine is not reversible but my nephrologist thinks mine is stable. Best of luck to you.
mikewordman charlie34043
Posted
Hi Charlie,
Sorry to hear about your husband's health challenges. I don't think it's a case of "reversing" the kidney damage, more like "limiting it" or, sometimes "halting it". If someone's diet is particularly unhealthy, then it is possible that their GFR numbers could improve somewhat with a healthier diet - but again, it won't correct any damage already done.
With CKD I'm sure you know the basics already - avoid excessive protein and sodium. With your husband at 22% he should also start avoiding foods with high potassium like oranges, bananas, potatoes, tomatoes, etc. Why? Because the kidneys lose their ability to efficiently process potassium and if a low-GFR person intakes a lot of potassium at once, the excess could lead to a heart attack.
At 22% I suggest he also start limiting his intake of phosphates - these are found in milk and milk products, as well as a host of other products (look for any ingredient beginning with "phos" and it's there).
My two cents. Ultimately, he should speak to a dietician for additional advice. And perhaps other people with CKD due to diabetes could weigh in on this.
Best wishes,
john85166 charlie34043
Posted
Charley, i went on a macrobiotic diet and ended up losing too much weight. Didn't do anything regarding kidneys. Felt I was fighting the battle of my life without knowing how ro fight it. When the results came in and I was declining I felt so bad. It would have been so much better if I accepted it as a chronic disease.
It won't improve. Try to stabilise it as long as possible. To me that means rest (no strenuous exercise), water, clean foods and work on a positive mindset.
As Helen says it's not life threatening if you are sensible.
mikewordman john85166
Posted
Hi John, one point of clarification if I may: to my knowledge, excercise is quite important to CKD patients as it helps to stabilise blood pressure, improve digestion, blood flow, etc. so I while it is certainly important to get good rest, I also believe it's important to engage in exercise where possible. I myself went to the gym twice a week right up to the point where I started dialysis, and now on PD I am back to my 2 workouts per week. If a full workout isn't possible or realistic, then just walking an hour every few days can be good enough. But in any case, I think you get my point. Thanks.
john85166 mikewordman
Posted
Hi Mike
I agree. I'd go insane without exercising. I do it a much as possible.
Remember the email from the person who walked 20 ks a day. I call that strenuous. I don't think strenuous exercise and depleted kidneys go well together. I wouldn't do a big trek or train hard and expect recovery. I may be wrong but that's how I feel.
Keeping muscle tone and well being is essential but not olympic proportions
helen54849 mikewordman
Posted
Hi,
I agree with you Mike, I go to metafit (High intesity training) 3 time a week its only 30 mins so can manage, I don't want to go a lot of the time especially by the time I finish work but I feel better for going after I have been. They say you should exerscise as it prepares you for surgery. I also find that it helps with my drain on PD and gets more fluid off therefore I feel better again.