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  3. Polymyalgia Rheumatica and GCA

cannot beilve this

Posted , 5 users are following.

margaret22251
margaret22251

On the bus yesterday a lady started chatting to me, she is a carer for a gentleman who has Polymyalgia.

She said to me you will not have heard of it as i dont know anybody else who has this.

She said i feel so sorry for him as he cannot have the medication as he has Alzheimer ,

I felt so sorry to hear this , but the lady did know a little bit about our condition and watches out for him.

I wish i could find me people so we could form a group as it would be nice to speak to someone else about this.

 

2 likes, 24 replies

24 Replies

  • constance.de
    constance.de margaret22251

    Posted

    How awful, to have this pain/problem and not to be able to take Pred.  I don't know how people cope.  We try, and we know about the illness, can find help, understanding, etc.  Poor man!

    Greetings to you Margaret.  Have a nice, pain free day.

    C.💐

     

    • margaret22251
      margaret22251 constance.de

      Posted

      Yes Constance my thoughts as well, might  make me think next time i moan about niggly things. smile
  • EileenH
    EileenH margaret22251

    Posted

    Try asking local GP practices if you can put up a notice - they can't give you any details but they CAN give other people YOUR contact details. Often once you find one person nearby they may know someone else and it snowballs. It doesn't have to be an official group - just meeting at a cafe or having a pub lunch does just the same thing and doesn't require funding to hire a venue or pay for speakers. 
  • MrsO-UK_Surrey
    MrsO-UK_Surrey margaret22251

    Posted

    Margaret, what a coincidence.  It does help to put things into perspective doesn't it.  With regard to a support group in your area, perhaps your local community centre would be happy to display a little poster from you asking if there is anyone with PMR who may be interested in getting in touch.  Even the GP surgery may display it, although I know some surgeries are not always very helpful in this respect.  
    • margaret22251
      margaret22251 MrsO-UK_Surrey

      Posted

      Thank you Mrs O, i have never seen any notices in our doctors come to think of it, but as Eileen has said i could give it a go, hope you are well.biggrin
    • margaret22251
      margaret22251 MrsO-UK_Surrey

      Posted

      Hi Mrs O again, i have just read your comments about aspargus(spelt wrong by me), and when i had kidneyy infections my doctor to me to eat it, but not overdo it as it can have an adverse reaction(in other words make it worse, ) i tried this after the antibiotics she gave me and hey presto no problems since fingers crossed, so now i include it im my weekly meals.
    • MrsO-UK_Surrey
      MrsO-UK_Surrey margaret22251

      Posted

      Margaret, how wonderful to hear of a GP who offers helpful suggestions about natural dietary remedies.  Didn't think such GPs existed these days!  I I love asparagus, eating it several times a week and often choose it as a starter in restaurants if it's on the menu, as I did last Saturday evening.
    • EileenH
      EileenH MrsO-UK_Surrey

      Posted

      I eat it a lot in season - but when they grow it down the road and you get it a few hours after it was harvested the stuff from Peru doesn't really do anything for me!
    • constance.de
      constance.de dan38655

      Posted

      In winter I use 'foreign' asparagus in soups , and I also mix it with peas and sweet corn for a light vegetable side dish.
    • margaret22251
      margaret22251 EileenH

      Posted

      cannot beat english we have a good supplier near me.mmmmmmmmmmmm
    • EileenH
      EileenH margaret22251

      Posted

      Not an option for me - but Italian, Austrian and German are all fairly close and freshly delivered in season. Italian has been finished for a few weeks, the rest must be just about finished this week sad 
    • margaret22251
      margaret22251 EileenH

      Posted

      Hope you have a good holiday, and will miss you.

      Take care and enjoy the rest. 

    • MrsO-UK_Surrey
      MrsO-UK_Surrey margaret22251

      Posted

      Still happily getting the home-grown variety - my present supply is from Herefordshire (M&S). 
    • constance.de
      constance.de EileenH

      Posted

      No, German is best!  Must admit I haven't tried Italian, though!
    • EileenH
      EileenH constance.de

      Posted

      If we're going to be picky I wholeheartedly agree that Bavarian asparagus is by far the best - this year I have had Italian from Terlan (good but eyewateringly expensive), Austria (very good) and Garmisch Partenkirchen in Germany (the best and very reasonably priced). Big, fat, white spears where 3 or 4 was plenty  - yum! They do grow green asparagus in Italy - I think white is definitely nicer. Even if you do have to peel it - thank goodness for a Lancashire peeler!
    • EileenH
      EileenH

      Posted

      Ooops - no, this isn't a holiday for resting - except maybe from the forums ;-)  and you'll get a rest from me!

      Organised tour followed by work...

    • constance.de
      constance.de EileenH

      Posted

      Have you upped you preds in preparation?!?  He he😃😃
    • EileenH
      EileenH constance.de

      Posted

      Other than having gone back to 5mg some time ago, no. I do feel rather better at 5mg than 4mg. But there will be a bottle of 2mgs in reserve... ;-)
    • EileenH
      EileenH constance.de

      Posted

      Other than having gone back to 5mg some time ago, no. I do feel rather better at 5mg than 4mg. But there will be a bottle of 2mgs in reserve...  
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