Cannot sleep at night
Posted , 16 users are following.
I am now 3 weeks post-op from TKR And I have found it a lot harder than I expected. I can cope during the day, but just can't sleep at night, or if I do I am awake after 1-2.5 hours. It is driving me crackers. A week ago I was very emotional and spent half the night crying but I seem to have got past that bit.
does anyone have any suggestions?
My bend is not great, 2.5 weeks after op. It was 75 degrees. I do my exercises and feel I push myself but the whole thing is getting me down and at this point I wish I hadn't it done. Op was on 26th October
liz
0 likes, 54 replies
debz13 liz00723
Posted
I am 12 wks post tkr and still have problems with sleeping. I really turned the corner last week with my recovery, but sleep is continuing to be an issue for me.
Hang in there though, because it really does get better.
Keep up with your exercises, rest when you need to, elevate your leg, and use ice.
The feelings of frustration and regret WILL pass!
You will find a lot of helpful encouragement here on this forum.
Try not to let yourself get too discouraged. It was just a few weeks ago that I was regretting my surgery, now I am so glad I had it and looking forward to being pain free! Not completely there yet, but getting closer.
Let us know how you are doing!
liz00723 debz13
Posted
my hubby is still in Cyorus and I am staying with a very good friend, but it is not the same. I am missing my hubby, my friends and my own house. My husband is coming here next month and we will be spending Christmas with our children and grandchildren.
If I should need the other knee doing, I think I would have to find a good reputable surgeon and stay in Cyprus but that would cost me a lot of money. At present in the health service here you wait over two years and then not guaranteed a great surgeon. We don't have private medical care here as neither of us were covered for much at all as they class anything as a pre-condition.
thanks again for your kind words
liz
debz13 liz00723
Posted
Luckily you have a good friend to stay with, but of course that isn't as comfortable as your own home!
Just keep in mind that it isn't permanent!
You will get better, your knee WILL heal, and you will get back home with a wonderful new knee!
liz00723
Posted
i am 68 years old and normally very fit. The reason I can't sleep is the pain. I get dreadful pains at back of my knee, inside of calf and the top of my thigh. I feel I spend half the night massaging my leg, sometimes I helps, often it doesn't.
i take paracetamol and ibuprofen plus Tramodol. I had the Tramodol down to just 3 tablets a day but gave just gone back up to 4 a day. I am terrified of getting addicted to these as keep reading horror stories.
the bruising was horrific but I used Arnica cream and it is not too bad at all now but when I lie on my leg it still feels badly bruised.
It is 3.22 a.m at the moment and again I am wide awake. Pain bearable, but put the lights off and lie down and it just flares up.
i got my op done in Derby.
any advice would be much appreciated and ask me anything. I am new to this.
liz
debz13 liz00723
Posted
At this point don't worry about becoming addicted. The pain medication is necessary, and it's important to stay ahead of the pain as much as possible.
Sometimes I would read or watch an old movie to distract my mind.
Also did a fair amount of crying.
Read other posts on here and you will find others who have gone through it and are going through it. I don't think any of us were truly prepared for just how difficult the recovery is.
Just please know there are many of us here who care!
delia56360 liz00723
Posted
Good luck its such a tough journey and one i never ever expected
Take care
dorothy41374 liz00723
Posted
RethaT liz00723
Posted
I go back for check up tomorrow and am anxious to see what the doc says about my bend but I think riding a stationary bike has helped me with the bend a lot.
Keep exercising!
R
Oldfatguy1 liz00723
Posted
richard68654 liz00723
Posted
My TKR was 6 July and it took around 8-9 weeks before I had more than a couple of hours sleep at a time. I sleep on my side and that made things worse. Things will improve so do not be depressed this is a major invasion and recovery takes time. I found a codeine or two paracetamol an hour before trying to sleep did help, another version of counting sheep helped!!!
i tried to recall something enjoyable and followed it through (for me it was a round of golf from the first tee at my club - I can't remember making a full round so I guess it must have helped.
i am sure others will encourage you and agree the first 8 weeks or so are the worst but by then things improve. Regarding bending, 75 seems OK but you need to work at it and keep to the exercise routine, it's tough but perseverance will pay dividends. Best of luck and think positive thoughts.
terri59470 liz00723
Posted
I'm not sure how your primary health care works, not being a permanent UK resident, but if possible I would urge you to get a GP appointment to review your pain and sleep. I had terrible trouble sleeping with my first TKR in March of this year, coupled with severe pain, especially at night. My GP prescribed a low dose of Amitriptyline, which helps with nerve pain, and also helps to relax you a little. I have continued taking them, under GP supervision, and have only had one bad night since my second surgery on October 29th. I'm regularly sleeping 4-6 hours at a time, sometimes up to 8-10 hours in total.
I know people shy away from taking additional medication, but it's important to try and facilitate some quality sleep as you heal much better when rested. The same goes for pain relief - taken under medical supervision, you should take whatever you need. Please don't think about trying to come off them too soon, you won't be able to do your exercises properly, and your outcome will be poorer for it.
Interesting to hear you used Arnica cream. I used it for both my surgeries, along with Arnica tablets and Arnica massage balm. I did have some pretty fierce bruising, but it's faded really quickly. Like you, though, my leg still FEELS bruised, although there's nothing visible.
Reading you describe your pain, it sounds pretty much the same as mine. I also spend a lot of time massaging my thigh, back of knee, calf.....do you use anything to massage with? I use both Arnica Massage balm (more like a massage oil), which is very soothing and smells lovely, and Tiger Balm, which is very warming.
It must be very hard for you, being away from family and friends. I'm sure the friend you're staying with is doing a brilliant job, but are you perhaps being "on your best behaviour"? By that I mean are you resting as much as you need? Napping during the day? You may or may not be familiar with the TKR Mantra - "Dont stand if you can sit, don't sit if you can lie down, don't be awake if you can be asleep"! Although it's a little tongue in cheek, the sentiment is right - REST! Whenever, wherever, however, just rest!
I hope you manage to get some respite from your nighttime pain, and that you can soon start to see the positives from your surgery.
Terri xx
liz00723
Posted
i have just wakened up having a good three hours and feel like a new woman. I found a position, though not perfect, helps me. I stuck my left leg out of the covers and had it dangling over the edge. It seems to help the pain in my thigh and calf and with the compression socks on, your leg does not get cold.
On the subject of the stockings, were you all told to wear them for six weeks both night and day?
i am just going to have a cup of tea and read all your comments properly.
thank you all once again.
liz
susan20089 liz00723
Posted
richard68654 liz00723
Posted
Yes, I was told to wear the stockings for six weeks and what a struggle it was getting them on and off. They were not the height of fashion but very important. Although 74 I take a number of long haul flights on business and vacation each year and wear black compression flight socks so I had a back up when the white ones were not the best fashion statement.
Try to have a good laugh at something at least once a day - it helps.
I am pleased we have helped you in what can be a lonely and distressing time.
I had to have a catheter and bag for five weeks after my op and then a prostate operation. Regular blocking needing District Nurse visits in the middle of the night added to the discomfort and frustration. Reading the forum was a huge benefit, I thought I was having a bad time but there were always those having a worse time.
We all agree - take the medication exactly as instructed, persevere with the exerices, rest and rest the leg and raise and support it ( have something handy to throw at the daytime tv) and use the ice pack.
terri59470 liz00723
Posted
Re the stockings, I don't have them. Didn't first time round either. Severe swelling coupled with shortness between the knee and ankle, and my surgeon said not to bother, and he was confident I would be fine without them. Yes I AM lucky! Have to take aspirin every day for 6 weeks, and I make sure to keep moving around, but hey, small price to pay to not have to wear them!
Glad you managed to get some sleep, it makes everything seem so much better. Fingers crossed that it continues for you xx
sharon52158 liz00723
Posted