cant cope

Posted , 6 users are following.

[b:2ca759fcb3]hi all sometimes i wonder if i can cope with this for ever,after nights of pain and no sleep,my husband is fed up with being kept awake and is so used to me moaning i think he no longer listens,sometimes i just need to let off steam,no one knows what we feel like u cant describe it ,our pain is nt like any they experence.im 44 used to do a very manual job lifting metal upto 40lb now i have trouble lifting shopping bags,im a tall big person and im sure people look at me and think im making it-up,im sorry to bend ur ears and sound so down,ive had a bad nght,does any one else feel so miserable (stupid question)i take tramadol,venlaflaxine,flecanaide acetate(for irregular heart rate)anr ropinerole for my restless legs ,they really bother me,i get up and wander round at all hours of the night to stop them,my docs given me some clomazapam to try and calm them down it worked for three nights but not last night.im not usually a grumpy cow so i appologise to u.next time i log on ill try to be more possitive,hope all u sufferers are having a good period.bye carol xx [/b:2ca759fcb3]

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9 Replies

  • Posted

    Hi Carol

    Its fine to be grumpy we all have bad times and I understand about what you are saying about your husband. I come on here to give him a break so that he doesn't have to hear all the time about how I'm suffering.

    I'm 44 and most days I feel 80.

    Take care wishing you a better day today.

    Lizzy

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  • Posted

    Hi Carol,

    It`s fine to have a good moan :!: If nothing else, we often feel better for it :!: I suppose you could say I`m quite lucky, that`s if anything about this condition is lucky, I do have periods of pain, but am mostly very stiff, it`s the fatigue that gets to me on a daily basis sad Sometimes I`m so tired I fall asleep over breakfast.

    Hope you feel better soon, do come on and chat we`re a very friendly bunch

    Linda

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  • Posted

    Hi Carol

    You have a good old moan. I am Tess and 53. I am the same with waking overnight with my legs hurting. I get to sleep then wake about 3am and can't settle as my legs are playing me up. It is so annoying at times and does make you feel tired and grumpy the next day. It is good to have a site like this to come on and have a moan. I think it is hard for someone who hasn't got fibro to fully understand what the pain is like. :cry:

    Hope you are having a better day today!

    Tess

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  • Posted

    Hi There this is the first time I have found this sight and posted on here. My name is Selina. I am 25 and have been diognosed for 2 years now but have suffered since around age 4. I am really down at the moment about my condition as I seem to be rapidly loosing the feeling and strength in my hands. They are freezing to touch sometimes and I really struggle to open bottles and jars and small fiddly things just slip through my fingers. I only currently take noritriptoylene at night and top up with co-codamol in the day If I need to. Does anyone else sufffer with similar problems with your hands and have you any 'handy' tips.

    many thanks

    Selina

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  • Posted

    HI there Everyone,

    I still havent been so good, I am going to see a Liver Specialist in December as the Rhuemotologist thinks that Auto-immune Hepatitis on the lines of PBC..... Not sure what it all means but this can contribute to fibromyalgia symptoms apparently as the immune system kind of attacks the joints in all areas like Fibromyalgia. So I have to go for a liver biopsy???

    Anyway Hope everyone is coping with their aches and pains as this weather has been awful roll on summer lol :roll:

    Hugs to you all xx

    SES x

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  • Posted

    Hi Ses,

    Good to see you on here again. Sorry you`ve still not got things sorted, hope the appointment in December gives you some well deserved answers.

    Take care

    Linda

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  • Posted

    Hi Ses

    Nice to see you posting.I wish you all the best for your appointment. I hope family life is treating you a little better.

    Linda Tess hope you are both Ok.

    Take care all,

    Lizzy

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  • Posted

    Hi Ses

    Good to see you on again! I hope everything goes ok for you in December and they finally find out whats going on.

    Hope things with your family are getting sorted now.

    Tess

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  • Posted

    Hiya all,

    Yes I do have PBC, and as I have gained so much weight due to pain and being less mobile the liver specialist said he wont give me a biopsy as I would bleed....he was more or less saying I should move to a bungalow and sleep on my own so I am resting...... thats why I have had fibromyalgia symptoms as my immune system is attacking my body so to speak.... anyway hope everyone is ok.....all this is very daunting to me, and especially now my daughter isnt speaking to me due to me getting money for Olivia from her dad he/she isnt agreeing with as he has brainwashed her again????......so mixed up tho now as she believes everything he is saying and yet I don't know if the treatment will work? whos to say???

    Anyway folks I am gonna get too personnel with my thoughts and maybe too much xxx I hope everyone is looking forward to xmas xxxx

    Love to you alll xxx

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