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Cant cope with more than 1/2 mg drop

Posted , 5 users are following.

jennissw
jennissw

Hi all...sorry I dont contribute much... do look in and often people far wiser than me with PMR have already given great feedbackor a question I came to ask has already been asked and answered.

As some of you know, my rheumatologist is Dr Quick who co-wrote and co-research the Bristol paper. I am in Hertfordshire so felt lucky she has a placement as the consultant here.

My problem is this.

I struggled with all my drops and so have only been able to do 1/2mg at a time following Eileen’s regime. However, once I was at 12.5 Dr Quick told me to do 12.5 one day and 10mg the next. This would mean I could continue on the gastro resistant, coated tablets.

 

Well I have tried for 2.5 weeks and the pain and stiffness are just to difficult…not to mention the return of chronic fatigue and a low grade temp.

 

My appointment with her is not until September but I managed to speak on the telephone with her. She said to try and continue for a while and ordered a blood test. Thing is, if I have the white tablets they give me bad stomach pains (cant take stomach meds) but if I eat a massive breakfast with porridge and yoghurt and rice crispies I seem to buffer them okay.

So I feel I should try ½ mg a day…say 12.5 one day and 11.5 the next….or should I go back to 12.5 a day for a week or something and then try?

Dr Quick said perhaps This questions the diagnosis of PMR and I may need a pet scan

Anyone else had one of those?

My thinking is I am just struggling to reduce.

 

 

 

 

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  • jennissw
    jennissw

    Posted

    What a pain we cannot edit ,,, I see so many typo's but even when typing if I go back...it wont let me change anything withoug going weird...
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