Capable of work apparently

Posted , 8 users are following.

Hi all. I had my left hip replaced 6 months ago due to osthio arthritis. My consultant and discovered I have it in my right hip now and will sometime soon need that replacing. I was also told I have facet joint arthritis in my lower back and sciatica also disc prolapse (involving a few discs.

I have just received a letter of the employment and support people telling me I am capable of work so I will be taken off the allowance. I am so confused because with facet joint arthritis, the pain is unreliable as in it isn't there every day and is unpredictable when it will hurt. How can I work when I have this pain, plus I need physio and have to wait for an appointment with the hospital for an injection in my spine.

Has anyone else experienced this?

Cheers Jules.

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7 Replies

  • Posted

    Hi Julie, I also have osteoarthritis of my hips & knees,I am in pain most of the time.I am my hubby's full time carer as well.Each morning I wake up with levels of stiffness.I also cry at night.I have to have regular crystal healing & reiki sessions.Also I have Reflexology as well.You need to ask a phsyio Poor you.Who says you have to Work? I had a pip assessment never again.you have to be bed bound before they will give you any money.Regards Amanda

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    • Posted

      Hi Amanda.

      It was ESA who have said that I am fit for work now, just don't know how I would fit physio in and hospital appointments with work who would want to employ someone who has to take off so much time. Plus the time I would have to take off because of the pain.

      Thanks for the reply. X

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  • Posted

    My daughter has poor health incuding:

    ?spondylolesthesis, a painful condition of the spine,  grade 3 arthritis in her knees, problems with her elbow which mean she is unable to lift things. She can't put on  her own socks or tie her shoes.  She also has inflammatory bowel disorder.  Her GP is very supportive as is her occupational therapist but, following a home assessment, she has just received a letter saying she does not need help and will be taken off the allowance. She couldn't work and  it's doubtful anyone would employ her !  How are people meant to manage? 

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    • Posted

      Hi Carole,I am really sorry .I am also very very annoyed,as there is little help.The Mps filling their pockets with loads of money.This country annoys me.It's very scary times.It's going the same way as the EU as there isn't any welfare at all.We have close friends who live in Athens,& my friend has to work very long hours then dash too see her parents are OK, then sort her two boys & husband out with food,cleaning ironing .So she has no time to relax.All you can do is scream at the Doctor said. Goodles luck regards Amanda

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  • Posted

    I have OA in my hands and need to use a keyboard to work. As I am self employed and have too much in savings benefits are not an option for me, so I work and put up with the pain. 

    At the moment your claim is speculation. Best to take a job and show them work is not possible then they can't deny your claim, 

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  • Posted

    Yes I've had my left hip re- surfaced and my right hip is playing up , I also have degenerative facets in my spine ( spondylosis ) & my fingers/ knuckles and wrists. I have mild oesteopena in my spine but I am a pilates instructor and a Somatic coach so I manage my pain through mindful movement, generally it's the SMA in my muscles that stayed contracted and cause pain so I do exercise to keep pain free. I put off surgery for my spine and am so glad I did. I found out I had hematomachtosis & cirrhosis in my liver 3 months ago so as it's genetic it's likely the cause of my arthritis BUT mostly I stay pain free , all except my fingers/ knuckles . Try to focus on muscles that have forgotten how to lengthen and have amnesia in them, find a local Hanna somatic coach, it can work wonders. I hope you find some help but gentle mindful exercise is the key. Good luck Julie. Try soaking in a hot bath with Epsom salts, it helps magnesium to soak into your body good for your bones.

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  • Posted

    YES and still do, I have applied for disability 3 times and got a "no" each time as i am "not stabalised!" it is a terrible predicament to be in,  I finally got a suspension from job search for a year while waiting on hosp lists for ops. I still have to go to job appointments but my case worker knows I am unable to work. so i still receive job search allowance.not disabiility payment. you need a good gp to fill the forms out properly saying why you cant do certain tasks etc e.g. cant lift heavy objects as severe pain in hip, standing in one spot for more than 5 mins causes severe pain etc, to get anywhere! I was told that altho i cant walk and in wheelchair,cant use my hands, in chronic nerve pain, on waiting list for carpal tunnel cat 1 in both hands, cat 1 spinal, cat 1 for 2 hip replacements, on heavy drugs that make me so much fun to be around lol! my daughter has to care for me as I am in bed most days and only go out to doc and job search appointments in the past 2 years,have developed mdd and diabetes 2 as well..I can still work! I go into hosp when spot available for specialists to get tog to see what they can do for me but of course been waiting 2 months so far for bed.  but told even this week again that I could still volunteer! of course there is no job that i can apply for and if i did i dont think among 300 applicants i would get the job!. it is just a way for them not to pay more money to me Im sure. living off job search is so depressing etc but it is better than nothing and I continue to put up with the hosp waiting lists and job search visits to continue to get their help. try to take one day at a time and know you are not alone in this. 

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