1. Community
  2. Brain and nerves
  3. Trigeminal Neuralgia

Carbamazapine/Tegretol Withdrawl?

Posted , 4 users are following.

RachRoux
RachRoux

Hi I am weaning off carbamazapine after i had a few seizures. It interacts with another med im on so aparently thats why it's happened.

I was on 400mg and my dr told me to go to 200mg for a week then half again etc. I'm feeling so ill. Its like the energy has just been sucked out of me to the point where I am constantly falling asleep I can't lift my arms up or hold anything I am so weak and dizzy. My speech is even slurred as I just have such little energy. Anyone have experience coming off this med? 

Thsnx

2 likes, 4 replies

4 Replies

  • marlene36342
    marlene36342 RachRoux

    Posted

    Hi RR - it's been quite some time since we communicated.  A couple of weeks ago you sent me a message but I believe it was for someone else so I did not respond.  Yes, I had gone through withdrawal before but not even close to what you are experiencing.  Your description to what you are going through sounds much more than withdrawal.  I would go to an ER and see another doctor immediately.  You are at an extreme level.  Please let me know your follow-up on this.  Something is wrong!

  • beth97678
    beth97678 RachRoux

    Posted

    Sound to me like your doc is reducing your dose by too much,too quickly.All bodies are different.It also depends how long you have been taking a drug .Your body is used to it.I'd reduce from 200 to 175 and do that over 2-3 weeks.Then 150 for another 2-3 weeks and so on.

    x beth

  • Stupid1
    Stupid1 RachRoux

    Posted

    Hi,

    My new Neurologist has told me that he will not have me start to withdraw from my meds as of yet. I take at bedtime (3) 300mg  Gabapentine  and 150mg Oxcarbanazepin then at noon, I take an additional 150mg of my Oxcar aka trileptal.

    I had MVD surgery on July 27, 2017 and from that I have double vision aka diplopia, I have double, horizontal, vertical and 3D vision. I still get a pin stick on side of my face were surgery was done, and sometime I get it on opposite side of my face, I also get pain in my gums. If You would like to read more of my story on this forum, check out older forum post here.

    If anything happens again this will be my next choice.

    Balloon compression reduces the sensory neuronal input, thus turning off the trigger to the neuropathic trigeminal pain. The Department of Neurosurgery of University Clinical Center (UCC) Maribor is the first and only center in Slovenia that has used PBC for treatment of TN.Nov 1, 2011

    God Bless Us and Keep Us and Give Us Peace.

  • Stupid1
    Stupid1 RachRoux

    Posted

    Hi,

    Correction:

    I have surgery last year on July 27, 2016, was in hospital until August 8, 2016.

    (I take this one Oxcarbazepine) versus (I don't take this one carbamazepine)

    "Oxcarbazepine versus Carbamazepine monotherapy for partial onset seizures. Carbamazepine is the most commonly used drug to treat partial epileptic seizures.  Oxcarbazepine is a newer drug that was developed with the intention to be as  effective as carbamazepine but to cause fewer side effects>" Oct 7, 2009

    God Bless US and Keep Us and Give Us Peace

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.