Carbimazole reduced feeling lethargic again

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I've only had my diagnosis for 3 months and had one visit to the specialist (I'm not due another until August). After the visit to the specialist they said my levels were getting better and reduced my carbimazole from 10mg daily to 5mg daily. I was feeling great, the best energy I've had in a long time. It's only been two weeks since the reduction but I'm starting to feel worse than ever.

Is it possible that my overactive thyroid could upset the balance within such a short space of time or is it due to do reduction that I'm feeling so awful?

They plan on waiting to see if I respond to the carbimazole before they take it any further. I just want the thing radiated and to stop feeling so bad. It's really getting me down now. I feel like just curling up in a ball and waiting for it to pass. I especially feel I'm letting my 5 year old down by not having the energy or will to keep up with her.

Thanks for reading.


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4 Replies

  • Posted

    Hi bazzil, sorry you are feeling worse again. Did your doctors establish what is causing your thyroid disorder? And what are your symptoms?
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  • Posted

    The timeline is important here. How long have you been taking 10mg? 3 months? When was that "I was feeling great, the best energy I've had in a long time..."? Was it the end of 10mg before reducing to 5mg?  And you started to feel bad after reducing dose for 2 weeks? It needs to be reminded this kind of thyroid disorder goes a long way to heal or recover with lot patience and peaceful mind. Life is hard, but any drastic action may add more harm.

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  • Posted

    @dan thanks, I've no proper cause diagnosed yet.

    @Mike I've been on carbimazole for 3 months and started feeling great about 6-8 weeks in.

    Symptoms are lethargy, trembling hands, nausea, insomnia, increased heart rate and severe brain fog.

    Regards Baz

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    • Posted

      You might need an adjustment of your Carbimazole dose. If you are in the UK it can be difficult to get in touch with the endocrinology consultant. In the past, I have contacted his/her secretary and had a blood test form sent by post. After I had the blood test, I was advised in a follow-up letter what to do next. Alternatively, you could talk to your GP. 

      Do you have a printout of your test results? Are there any tests referring to thyroid specific antibodies?  


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