Carbimazole - weight gain

Hi everyone hope you're all doing well. I too have Hyperthyroidism and been treated on 20mg of Carbimozole a day. First let me start by saying I lost 10 stone I was 23 stone and went down to 13 and half but though I weighed less my health was terrible. I couldn't get up off the floor or even run up the stairs I was like an elderly person going up the stairs one step at a time. Well ended up in hospital with chest pains and found out the chest pains were because my thyroid was severely hyper my TFT was 97 and also my heart rate at resting was 158 beats a minute. So enough was enough I decided to take my medication originally started off on 40 mg and 30 mg of propranolol I gained 14 pounds within the first month then another 14 in the next two month and about another 5 at Christmas so at Christmas my weight was 16 stone 4. I was taken off Propranolol and my dose lowered to 20mg of carbimozole. Anyway I've joined the gym and when I started the gym I was 16stone 13 more weight increase managed to lose 5 pounds but got weighed and now have gained another 5 pounds back. My wii scales say I weigh 17 stone 3 the gym ones say 16 13 and the electronic ones almost 18! I am seriously at breaking point. Although I'm losing inches off my body the scales keep creeping up and it's upsetting me I don't want to get back to 23 stone and the Doctors aren't understanding at all. Exercise eat well I do and nothing works. RI has also been mentioned to me but I can't have it because my partner works and I have two small children so I wouldn't be able to be within arms distance of them all the time because they are clingy. It helps to see that you have all gone through the same thing. I'm so sad and its affecting my relationship.

Hi Everyone Sorry for the silence from me but I am still patiently waiting for my date for RAI treatment.Shouldnt be long now I hope. Meantime I do feel sorry for you Mell-bells re your weight gain after doing so well losing all that weight .I have put on another 8 lbs this past month and I cant bear it. I am convinced it is the Carbimozole as I have been on 20 mg for the last 6 mths.My levels of tft. is down to 21 and I am hoping when I have RAI and come off Carbimozole I will lose it.Once you start to come down and they reduce you carbimozole I think your weight will level off.I have been told that nothing you do can reduce your weight until your tft is lowered.Good luck and go with it for now it will get better

Hi Mell Bells. I was really touched by your story. You really have been through it. You don't mention how long

you have been diagnosed for. I felt for you so much when I read your post because I know how miserable I was

with the weight gain, and yet as you say the doctors do not want to know. Please post how long you have

had this for. I am fortunate now that my levels are all back to normal now but I struggled with it. At my 18 month

appointment with the consultant he was so hyped up with preparing me for surgery or RI and thankfully my

partner had me on the herbals. This was the first time I started to see a change in my levels and I started

loosing a few pounds despite the fact that I was walking 5 miles every day. Because the herbals were so costly I had to start cutting down but I started going to the gym and increasing my cardio and my levels really started

to balance. It has taken me a long time to even feel any confidence with my body as the last two years have

made me feel so frumpy with the weight gain. I am a fostercarer and childminder so RI was not really an

option for me at present and when I told my consultant this he was not happy with me carrying on with the

Carbimazole but I felt the confidence in the herbals at the time so I insisted on him just keeping me on the

tablets and even managed to go down from 20mg to 15mg. There is light at the end of the tunnel and you do

say you are going to the gym so just keep it up. Forget the scales for a while. You know your body and you

say you are losing inches which is good as you are toning your body. I know its hard at the moment but I so

believed that the gym helped me with getting my levels down and just concentrate on getting better and not

your weight, I know its hard, but remember I have been there. Do you feel that you are being supported by

your partner. Just remember your partner is probably just worried about you getting better and not you gaining

the weight. And also think about it your not gaining weight because your eating loads, this is out of your control

so as soon as your levels start to balance your weight will too even though it does take a while. Keep us posted.x

I've had Hyperthyroidism for 8 years. Since I was 15. When I get told to have a trial period off the tablets it goes rocketing up again. I was classed as been Eu-thyroid but the Doctors aren't willing to lower my dose. I see the endo every 8-10 weeks and each time its always the same keep taking your tablets don't over eat and exexercise. If I do any more exercise I'm going to become ill because the gym is taking over my life! I enjoy going though.

My partner used to be very concerned especially when they said I was almost in a thyroid storm at my last visit to A&E with the chest pains he was the one who told me to start taking the medication otherwise I wouldn't be around to see my kids grow up and so I did and yes I feel a million times better but the weight god it gets me so down! I am 5 foot 8 and are pear shaped so I don't believe I look the weight I do but my GP she is an awful women I have a slight prolapse and she wouldn't refer me to a Gynaecologist until I lose weight seriously as if I'm not trying.

I've started the slim fast diet today and hope that will help but I have a horrible feeling this is going to be how it is all my life. If I don't take my tablets it goes hyper again if I do then I have a constant uphill battle of trying to lose weight sometimes I go to the gym just so I don't gain.

I feel though that my thyroid levels might be up again because I'm feeling shaky and jittery and anxious again.

Thank you so much for your replies its helped. xx

Hi all, I have just recovered from a thyrotoxic storm, I was diagnosed with hyperthyroidism and the hospital took out my tonsils which the stress of the surgery caused the storm. I have been told by my doctor that my thyroid should have been under control before they operated. My function blood was 69 when I had the storm and was 44 when they let me out. A few weeks ago it went down to 22 but this week is back up to 33. I haven't been back to the hospital yet, I go on 6th August. I couldn't put weight on at first and struggled, I was 8 stone 10. Now my weight is piling on, 10 stone 2, I don't know what to do,

hi all, can I ask alice in wonderland how things are going lately, I too have had the same problems with weight gain etc. im now six weeks past the radio active treatment and am feeling better. I now feel ready to fight

the weight gain, any advice. Im due to see the consultane in october so Im assuming they'll start me on the

thyroxine.

irishwales I have sent you a message through the MESSAGE button hope you get it ok.Do try the forumOVERACTIVE THYROID as it does give a lot of help to people who have had RAI.See you there ALICE-IN-WONDERLAND

Hi, im new to the idea of blogs but thought id see what's out there as family and friends strugge to understand what its like to have graves disease, although they are ery supportive and empathetic. I came across this blog and ive read through these posts. Im very am very sorry to hear about the personal struggles you have all gone through with regard to the weight gain and other symptoms of graves. I'm 20 years old and was diagnosed only 4.5 months ago so am quite new to this and the endocrinologist is still trying to establish a dose that will leave me with balanced levels. I'm sure you have all gone through the routine of monthly blood tests etc. basically im having the same problem with weight gain and have gained 9 kg or do since being on carbimazole, despite tremendous efforts to eat healthy and exercise frequently. I was wondering if any particular method has been recommended for weight loss while taking carbimazole or if there's anything paricular which may help? Thank you. All the best!

I am soo happy to know taht I am not alone. About 2 years ago I was diagnosed with hyperactive thyroid and I was put on 6 pills per day. Poor me diid nt know th e implications I gauined 20 pounds in a MOnth and I didnt realise I memerb a friend said to me You look bloated not fat! lol ThenI stopped taking it and I never lost teh weight till this year! Unfortunately I had to test it and trealised i had to start agfain so a month ago I took teh courage and began taking it!! I have beeen exercising assidously as I am dertermined the weight gain wont hapn again idk if I have gained weight I hope nt it appears nt! I need to start eat less though bt this time I told my new doctor about the effects and she have me taking only two perday for this month and decrease to oner nxt month! My pulse has decreased in the two weeks I have been taking it yeah!! I hope I can just stick to one per day adn eventually it stabilize! Plus these pill taste real nice like sweets unlike the others i took before. Fingers cross! Keep the faith ladies! And exercise!!! These pills force me too whenever i dnt want to i rememberrr when i had gained 20 pounds and i look at my pics when i was 130 pouna dn now imm 158 after losing a little and I hoep to go back to that weight! Pray fro me while I pray for you guys. God Bless!!