cardic arrest and heart attack
Posted , 5 users are following.
my husband has been with site a few years for pmr a lot of meds .
last week he had a cardic arrest and heart attack rushed to hospital and has had 2 stents to his heart .he has come home and done well in a week looks better then in months .today he stood a while then on going upstairs for the first time got out breath .
has anyone experenced this and how have they gone on any advise ,how much or little to do ,and what effect on there life .As i saw everthing dont want to be there again thank you
0 likes, 35 replies
lyn1951 bri21
Posted
Educate yourself, go to the library and get books on heart issues, after a while they start to read the same, once they have done that, you have absorbed some information.
I have saved my husband life now four times, from that reading and education on heart issues.
We have other than his walking a blood pressure monitor with a heart beat recorder as well, not very expensive, available at chemist.
Also keep in our diary a record of his weight, each and every morning, he weighs himself and records what his weight is, I then later take his blood pressure, and also record what it is in diary, and then take that to the Dr, and or hospital, I notice they photocopy the pages for their records.
Weight is the most important as it tells you, the sudden change in weight of water/fluid in lungs and needs to be treated as an emergency if it is more than 2 kgs.
My husband has NO PAIN, so we are reliant on my observations to tell me something is happening.
Dizziness, wobbbly knees or weakness, very short of breath with no exercise, very pale in colour, all ring the alarm bells, and I check him out.
Dr have told me they need me to be a nurse in the heart unit, not even trained as a nurse in my past, but have got pretty good at it the last five years.
bri21 lyn1951
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how does this all effect you for flying they said 3 months
lyn1951 bri21
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The Dr's I have found seem to be most helpful if you are showing an interest in getting well again, getting onto a really good diet, taking your tablets, exercising as posting above.
Tablets - make note of any side effects you feel you are getting even good side effects, I have shared all this info with our Dr's, and they have been wonderful and most helpful with getting husband into rehab unit, taking his own blood pressure, and pulse, weighing himself.
Also lots of lectures on eating correctly, and charts to help us with eating correctly, we were not really going along wrong, as neither of us are huge, but we did need a little adjustment in diet as just not as active has he was before he got sick.
We have not gone flying at all since husband got sick, but now that has all changed again since his pacemaker installed, have to re-learn what he should be doing or not. Lots of questions for the pacemaker checkup in two weeks, and the result of that checkup.
derek76 bri21
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bri21 lyn1951
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bri21 derek76
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the large muscle in his heart is damaged they say normal at this time he has a scan in six weeks we are hoping meds worked and some has come back
derek76 bri21
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lyn1951 bri21
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No sitting in draughts, get him to wear a ski cap, husband has a couple of black ones that he loves, they do seem to help, and in the evening when there is no chance of visitors he wears his dressing gown, robe over his clothes for a few hours, or even on very cold days he gets around the house with his robe on.
Fluid in his lungs, thats where the weight yourself every morning when he first gets up, and record in diary, more than 2 kilo change go to Dr with the record in diary.
Is he on fluid tablets, with fluid restriction as well, sometimes you can get a little too low in your fluid balance, especially if you are doing a little more than usual, and maybe even sweating if it is a hotter day than usual, and that can affect the way you feel. I would doubt he would have fluid on lungs if he is on fluid tablets.
I can understand where you are coming from, first the Dr's have saved his life with the stents, just a matter of getting well now, and that includes you as well.
You and i both have had the most terrible shock with our husbands being soooo terribly unwell.
I try not to look back to much, or dwell on what has passed, nothing we can do about that now, but what we can do is look towards the future, living the best life we can, making some fun for ourselves, getting out and about, having friends visit as above.
You just quietly be your husbands advocate, and if you think the visits are too much for him tell you friends to move on, I use words like he has to sit down now, or have his afternoon rest, most people take the hint.
Finally - we went and got some counselling about the whole, through the heart rehab program our hospital runs, very helpful with learning to cope with the changes that had been landed on us, both of us sat in together, we learnt about why the depression, how our brain copes with trauma, the fear or flight feelings, and why we have this built in, and also learn't that it is an ancient part of our survival against those sabre tooth tigers that are planning to have us as their dinner, and not some lack of moral fibre, as per old movies.
bri21 lyn1951
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lyn1951 bri21
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He seemed to be amused when he saw my husband at Easter, and said oh saw you the first time a couple of years ago.
I corrected him to 5 years much to the students and junior residents, that were with him horror, they are terrified of this particular specialist, consultant although it is nice to have him on our side, he does not see public patients, or very few soo we have been lucky to see the man himself.
Nurses always surprised as they never see him on the wards either, but he has always been very nice to us, and is willing to talk to husband as a friend, or thats the way it feels.
lyn1951 bri21
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Husband went from 23% in hospital, to 36% to 51%, and then started slipping back to 41% and then 36% ejection fraction, at 35% you rate a pacemaker to help support your heart, he achieved that at 36%, and then awaiting appt, when he collapsed in the week before easter as previously mentioned.
Some of the tablets they have given him, I asked chemist to explain what the tablets do at the hospital, so I understood what and why, your husband will be on the same tablets, or the like to help support his heart in its healing process, they do work, but they dooo take time.
Scan I supect will be an echocardiogram, just the same as pregnant women have to look at baby inside.
derek76 bri21
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I've watched his improvement and weight loss over the past two years.
bri21 derek76
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derek76 bri21
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lyn1951 bri21
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Dec 2010 - Boxing day, huge flood at the local technical college, husband called in as local carpenter to come and help sort out what was going on, broken plumbing on top floor, 4 stories of stairs 12 hours a day and no problems, 4 levels of carpets etc, building had to be cleared.
15 Jan 2011 - huge flood hit Brisbane, many suburbs under water, husband again called in to local school under water, walked into flood water, about thigh deep, and found hedge under the water, tore his pants and scratched his lower legs, ignored injury and worked all day and for folowing three weeks in aftermath of flood.
Progresivly got a feeling of being unwell, no energy, breathless, local GP said nothing wrong, even after ECG, still going to work daily, struggling with stairs.
Collapsed at home Feb 21 - one month after flood, lungs full of fluid, congestive heart failure, injections saved his life, peed out massive amount of fluid, discharged from local hospital the following day.
Nurses at that hospital told me in no uncertain terms take him to the heart hospital, across the city, the next time he collapsis, which he did the following morning, the heart hospital kept him 8 days. and diagnosed dialated cardiomyopathy with 23% ejection fraction, normal about 60+% ejection fraction and left branch bundle blockage, cause unknown.
Angiogram brought a surprise, no blockages, Dr's questioned me on our lifetime diet, not flash, and smoking history 40 years, and seemed amazed he had no blockages, told him he had arteries of 15 year old.
I still think the flood waters must have had something/viruses in them, that caused his heart problem but Dr's deny the link, even when I have continued to question their ruling at the time. On his file is mentioned a bacteria they found in his bladder, very rare for men to get this particular bacteria in urine.
Have been advised years later by senior Dr, that I would never have gone near those flood waters if it was me.
Some time later got copies of his discharge letters to local GP for his insurance claims, in one of those letters they say expected death date less than 30 days, and do not sign his death certificate, that came as a shock, and yet not a shock, Dr's had told me when they discharged him they were sending him home as there was nothing more they could do in the hospital, and here we are 5 half years later, a pacemaker at easter weekend, and he walked about 3 kilometes this morning.
bri21 lyn1951
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5 years ago he was put on steroids for polymyalgia rheumatica ,dident know much about it ,but after 6 months of trying to reduce got a bad head could not brush hair even with baby brush ,Suspected Gait Cell Artiritis ,(swelling to artries in head can cause blindness quick or worse steriods put to 60 mg ,test shown negative but anything can hide behind steroids .Refered to rheumatology ,doc who was leaving that week put him on methotraexate no test no time ,he was rushed into hospital reaction very ill .then tried on azathioprine not as ill same effects all this to reduce sterionds he had got down to around 15 mg .a locom doc again no interest gave him 12 months lower a bit not bothing to lisen .he left yet offered another locom we refused ,a regular doc who was concered and good gave him another drug mycophenolate it had effects so given a stomach protector .then was not happy that still only got to 9 mg steroids so another pet scan ,that showed no PMR but seronegative arthritis but on another drug sulfalzine ,also now concern re iron level and inflomatry bowel maybe crohns or colitis .another doc talked re other meds or increase in steroids told him no symptons of either and trying to decrease steroids ,answer ,are but a diffrent condition .did he not hear ..steroids.. med no just told same day stop taking sulfalzine due to his mouth ulcers by the way another locom doc ,his pain incresed in legs sat sun no enegegy more pain .Tuesday worse day of our life .the ambalance men and hospitals involed was brill and given us faith in some doc and hosp again . also this site and people who take the time to reply ,gives u hope .take care .He has just walked to end of path and back 80 steps in total thank you
lyn1951 bri21
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My huband has just taken off for his 3 k walk again, hes looking good and is full of energy.
I can relate to arthiritis, as that is what I have, sero negative as well fo rheumotoid, my specialist tells me she thinks I have prosaris arthiritis.
as I have had prosaris on my skin my entire life, also have had a double hip replacement in the last two years, completly worn out, made a huge difference to the pain levels I experience, almost no pain killers, after 10 years of pain killers previously, specialist when he finally saw me, was shocked my local GP had not reffered me previosuly, said he should have seen me 5 years earlier.
I have been taking MTX for about 10 years now, and also have added leflonomide, at a low dose as I cannot tolerate higher dose, nearly died of high blood pressure, really really scary, and Dr's denying the leflonomide could be the cause. Only thing new that had been added in the last 10 days. I rang the drug company and asked them, they ripped into the Dr's and told them in no uncertain terms to stop the patient taking it, a rare but unwritten up side effect for about 2% of patients, chemist and I have since had a laugh, a few weeks after my run in with the tablets a warning came out from the drug company.
I try to keep my wheat intake very low, seems to help the less what I eat the less arthiritis I have, have also been taking to others about taking tumeric, big write ups here in australia about how it has been helping arthirits patients, a fellow pateints has had amazing progess in just a few days, and he has a really bad RA, sudden onset, and has been fighting to stay oy out of hospital and away from the really nasty medications.
bri21 lyn1951
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sounds as u too have suffered ,know what pain bri been though .most of pain gone since heart attack .hope its frightened it off .take care ,
lyn1951 bri21
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bri21 lyn1951
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guess u are australia.will do .Bri has walked on the street not far but trying your methord; thank you for your support today hard as Tuesday ,dont think i will like Tuesdays ,i have sent u a private message .found this site is good for a diet sheet .Not had much support from the nursing community since we got home .so it has meat a lot to have support here thank you