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jones10939 jones10939

Cardiologist Involvemen?

Husband discharged 3 weeks ago from a 2 night stay in Medical Assessment having been seen by what he described as "hordes" of doctors diagnosis seemingly PMR + and on pred.

TA biopsy fortnight ago but still no further news other than message via secretary of the surgeon (who carried out the biopsy) stating that the results had been passed to the cardiologist and we'll be contacted during next week.

I checked the form he has to take in re bloods a week tomorrow and the Dr's name is that of the Cardiologist.

This man of mine isn't thick and he's not dementing (just tries to avoid doctors) and he can't remember cardiology being mentioned when he was in being assessed.

The 40mg pred is working nicely ATM - no pains on eating and neck freer than it's been for a while - he says it's much more pleasant going for a ride on the motorbike as no problems turning head to look for traffic.

He is a bit concerned at the mention of cardiologist though.

7 Replies

  • MariGrace MariGrace jones10939

    Hello,  You will get much better responses than mine, but my experience over the last 15 months has yielded many specialists - to include two cardiologists.  

    During my initial visit with my internist who diagnosed the PMR, she told me, "You will need a cardiologist because this is a vascular disease."  She was right.  During this 15 months I've had blood clots in a leg and both lungs, diverticulitis, an ulcer in the esophagus, internal bleeding, and have been diagnosed with SVT s of the heart and possible a-fib.  I see the specialist (heart electrician) next week.  I've had numerous CT scans an angiogram, and will be having a valve replacement within 5 years. (I'm going to opt out of that valve replacement if possible.  We'll see.  My hope is that the leak will not get worse.)

    My *main* cardiologist is going to do an echo every year and I'm not sure what else.  

    All PMR related?  My other autoimmune diseases might have contributed, I'm sure.

    Pills upon pills have had me more than a little down, but have decided to take one day at a time, be thankful for such good doctors - doctors that understand the nature of vascular autoimmune diseases.. and this gal is pressing on.  

       Don't worry about the cardiologist referral.  Get all the information you can. Take a pad and pencil and write down notes, Figure out what questions you might want the doctor to answer.  

    My doctors have been so thorough, and conservative.  This is good.  He weighed all the evidence before every test.

       One thing this disease has taught me is to "NOT" diagnose myself.  Trying to figure out if the cause of a symptom is PMR, prednisone, or any other idea has backfired - very big time - on me.  I cannot stress this enough.  Write the symptoms, keep a list, let the doctors evaluate blood work  - a full panel, I hope, and if the answers are not forthcoming, ... possibly consider a different doctor??

    My specialists include an internist, a rheumatologist, two cardiologists and a gastroenterologist.  

    They are working together, for this I'm grateful, too.  

    My age is 70.5, 15 months into PMR, but I also have Behcet's in remission and Hashimoto's.  

    My best wishes to you and your husband.  This is a hard, bumpy ride.  Now and then I'll give myself 10-15 minutes to have a serious pity party.  After that?  Back to the "Get healthy" goal setting.   (Today, was a mini-pity party, but it didn't last long and the fight is on!)

    MariGrace 

     

    • jones10939 jones10939 MariGrace

      Thanks MariGrace for clarifying the cardiologist involvement.

      I'm keeping my fingers well crossed as he has 2 motorbikes, 3 classic tractors and looks after my aging jeep. Getting his tractors to rallies and shows was becoming a problem and I couldn't help as I had a stroke 6 years ago.

      I'm just wishing that I could have persuaded him to see GP  years ago - as it was I did manage to make him an appointment - she took bloods and the next day results were in and he was called into the surgery and told to get himself to the Rapid Assessment Unit as fast as he could without breaking the speed limit - just over 20 miles away.

  • EileenH EileenH jones10939

    Did the person who wrote the letter mishear I wonder? On a dictaphone one -ologist can sound rather like another!

    I suppose it depends on the system but you would almost certainly NOT be put under a cardiologist for a VASCULAR disease in Europe, depending on what it is you would be sent to a vascular specialist (medical or surgical) for assessment. Cardiologists tend to deal with things directly affecting the heart rather than the blood vessels. None of my husband's colleagues described themselves as cardiologists - whether they were were physicians or surgeons but they all dealt with blood vessel disorders of various sorts, ranging from peripheral vascular disease to GCA and PMR.

    Or they found something on the other tests - for example, I have atrial fibrillation which was caused by the autoimmune part of the vasculitis and that is managed by a cardiologist. It isn't ideal - the PMR/GCA aspect is under the care of the rheumy, and at present the management of the a/f and the PMR seem to be on a collision course!!!!

    • jones10939 jones10939 EileenH

      I've checked the consultant's names on the forms for blood samples and and on the hospital staff list - definitely cardiologist. Husband definitely puzzled as he says there was no mention of cardiac problem when he was in for assessment and ECG showed no indication of problems.

    • jones10939 jones10939 EileenH

      GP appointment on Tuesday - she may be able to interrogate the system and get some info.

      (I opened this discussion as I hadn't seen mention of cardiology involvement when looking through various discussions here)

  • amkoffee amkoffee jones10939

    Typically when you're in the emergency room and at a certain age they give you an EKG. And an EKG is something so small and so quick he could very easily not remember it or didn't know what it was for. And with what I'm sure was multiple other tests they were running he may easily not have remembered it. Emergency rooms can get kind of chaotic at times. So my point being is that it is possible that the EKG showed something and that is why they called in a cardiologist. And it may eventually come to nothing at all but they are exercising caution. This was my experience several years ago. I went into the emergency room, they did an EKG and it came back with a little abnormality. So now I have a cardiologist I get it to see once a year.

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