Carrierss of Hemochromotosis
Posted , 4 users are following.
Does anyone have hemochromotosis that was diagnosed as a carrier? This whole genetic thing is very complicated.
1 like, 8 replies
Posted , 4 users are following.
Does anyone have hemochromotosis that was diagnosed as a carrier? This whole genetic thing is very complicated.
1 like, 8 replies
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sheryl37154 Mrs._Z
Posted
Hyperferritinaemia can be caused by fatty liver, alcohol abuse, inflammation, malignancy, lifestyle (as in poor diet - too much sugar and starchy foods which can't be metabolised), and probably more reasons. It has been found that eliminating sugar and starchy foods, will reduce your fatty liver and your ferritin levels. A venesection now and then wouldn't hurt either.
There is also another gene which causes ferroportin disease but it is deemed so rare that drs do not want to test for it. If you live in the UK you might find a haemotologist who is interested enough to do the genetic test.
Mrs._Z sheryl37154
Posted
for answers..
sheryl37154 Mrs._Z
Posted
My dr took 9 years to diagnose and only when one of my hips broke up. Since had to have both hips replaced. Lots of ongoing complications because of delayed diag and treatment.
jmcg2014 Mrs._Z
Posted
Mrs._Z jmcg2014
Posted
sheryl37154 Mrs._Z
Posted
It is best to educate yourself on it to ensure your daughter gets the appropriate treatment. Contact your country's haemochromatosis association, check out Iron Disorders Institute website - lots of info there. You might even find a NAFLD assoc for info. (Non Alcoholic Fatty Liver Disease).
sheryl37154
Posted
But see my response to Mrs Z about reducing iron intake - drs do not get this right. However, don't have red meat everyday, and the proverbial spinach does not have that much iron in it anyway. Search for that book I mentioned for answers there.
terrihigashi Mrs._Z
Posted