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I am having difficulty getting a diagnosis when I have all or most of the symptoms of slow onset cauda equina. ( i.e. Calf weakness and urine retention.These cause a lot of bladder infections and foot problems.
I would like to hear from any other patient's who have had a similar experience.
A BMJ article emphasised the importance of getting an early diagnosis. The reality is only 50% of patients get a diagnosis which is surprisingly low.
The hospital treating me does not have the right equipment to needed to diagnose the problem as it does not have the right type of MRI scanner or Urodynamics Equipment. Another hospital, UCLH, a few miles away does have all or most of the equipment needed.
I am struggling to understand why the hospital responsible for my treatment has not suggested I need investigations done elsewhere and why my GP has not suggested it either
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