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Causes of Lichen Sclerosus?

Posted , 33 users are following.

marey
marey

What do you think caused your condition? 

Any ideas, theories, inklings? A complete brainstorm opportunity.... 

4 likes, 122 replies

122 Replies

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  • Phoebe604
    Phoebe604 marey

    Edited

    Hi I am very fair skinned and sun intolerant
  • dakangelk8
    dakangelk8 marey

    Posted

    Just wanted to add I have an Aunt who also suffers with the condition x

    I've been really lucky to be honest, no fusing and no real flares ups since I started fasting, I hope this has helped, certainly has with my weight - 2.7 stone off since November - slow and steady xx

  • ninjagoth
    ninjagoth marey

    Posted

    Hi I am 36 I was diagnosed with hypothyroidism 5 years ago. It is the autoimmune kind and runs in my family. My mum has it and my aunt on my dad's side of the family as it. Arthritis also runs in my family.  I have no known allergies but developed LS about 3 years ago. I believe with me it it linked with my autoimmune condition of hypothyroidism.

    I have no children and have never had any trauma or surgery in the genital region.

    I have LS pretty mild I think and was diagnosed by a savvy  GP at my local surgery. Never suffered from thrush or similar conditions before LS.

    I have occasional flare ups when I eat too much junk food, during my period, get stressed or my immune system is down when I get ill which thankfully is not often.

    Interestingly I have found my skin has improved while being on antidepressants. But that could be linked to making me feel less anxious. 

    Hope this helps smile

    • marey
      marey ninjagoth

      Posted

      very interesting nin about the antideprssants...think losing the anxiety is your thing!

      thank you so much for your contribution.

    • Morrell1951
      Morrell1951 ninjagoth

      Posted

      Very interesting that you flare when you're stressed or eat junk. That agrees with my experience. They've found that mood drugs don't help with psoriasis, but they do with LS for you. Hmmmm.

      I've been wondering if my psoriasis has been 100% clear the whole year I've been using potent steroid cream for LS – whether just enough gets into my sytem to cut the cycle of psoriasis flares. Thank you, 'Big Pharma', I'll take that!

  • sha1271
    sha1271 marey

    Posted

    My sister was just reading that people with negative blood types are more likely to get autoimmune diseases. Im O neg.  No else that I know of in my family has ls though. 
  • Phoebe604
    Phoebe604 marey

    Posted

    I am OD positive
    • marey
      marey Phoebe604

      Posted

      just read something about the 'o' blood group....we're definitely at risk....this is surprising news...thank you very much sha for bringing it up....the list of causes is growing!
  • hanny32508
    hanny32508 marey

    Posted

    To Marey,

    My thyroid didn't wish to be balanced after RAI at all.  But since the adrenal glands have been treated with meds, both are much better.  The two are linked.  And Adrenal glands help a person with the stress element in life, among other.  One can imagine that I was un able to handle any stress prior.  And in case stress is truly a big element with LS, then certainly the adrenal -thyroid issue could have had this LS result.  Add the hysterectomy 'for good measure' and you 'have a ball'.

     By the way - this whole ordeal of thyroid and adrenals took about thirty years to figure out.   

    • marey
      marey hanny32508

      Posted

      Thank you so much for this Hanny ....really very helpful. You are a pioneer!

  • dakangelk8
    dakangelk8 marey

    Posted

    Just worth mentioning too that I have issues with my nose - parts missing that need to be fixed with surgery.

    when I was in the throes of research, there was a link between atrophic rhinitus, wiki statesone cause to be: Autoimmune: viral infection or some other unidentified insult may trigger antigenicity of the nasal mucosa.

    My bloods always come back as normal though? Or are they testing for the wrong thing? Any advise would be welcome x

    • marey
      marey dakangelk8

      Posted

      testing is a major issue as we have to ask the right questions....CRP levels is one assessment of inflammatory markers....but we know we've got inflammation anyway! yes and autoimmunity thanks for that...
    • dakangelk8
      dakangelk8 marey

      Posted

      My CRP levels were rising now they haven't asked me back for more tests, rose to 12 in a matter of 3 weeks, but I have a terrible infection in my face and sinuses from the nose issue, I've been on at the Doctor for ages that I think it is Auto immune or homone levels but I get pooh pooh-ed off

      atrophic rhinitis

      Hidradenitis suppurativa

      Lichen Sclerosus

      Underactive Thyroid

      These are the 4 issues I've had or am having.

    • suedm
      suedm dakangelk8

      Posted

      i have a nasal polyp that is being treated with Flixabase- steroid to reduce swelling - i had several bouts of sinusitis recently - over the past 3 -4 ears - much better now- but i HAVE  to use the nasal steroid otherwise i wake up unable to breathe- asthma- not nice!
    • dakangelk8
      dakangelk8 suedm

      Posted

      Sue!

      I had a nasal polyp that hung from the top of my nose down outside the nostril when I was 13, I had a bit of a brute of a Father who snipped at it continuously with scissors and after a while it went away.

      I am now suffering with rhinitis and need an operation to fix the damage in there (I have no middle turbinate) also my septum is out of line, I get a lot of hard mucus and sometime choke in the night,

      After researching (seem to spend a lot of time doing research these days) I have found some information:

      Turbinate dysfunction is linked to Asthma and Hypothyroidism

      There is also Hormonal Rhinitis which usually means you have increased estrogen levels....

      I'm pretty sure my numerous ailments which are now predominantly

      Underactive thyroid

      Rhinitis

      Lichen Sclerosis

      are all linked with a hormone imbalance and auto immune. Doctors appointment on the 19th will hopefully shed some light on the situation or i'm pushing to see a specialist x

    • suedm
      suedm dakangelk8

      Posted

      Hello Dak Angel - your poor thing! wow i always regretted no knowing my father - he died when I was a child and I have no memory of him - but rather that than a stupid scissor wielding brute! Ouch ouch ouch!!

      I have just received my blood results and ALL are WELL with in normal boundaries- Thryoid fine cholesterol great etc etc. I acquired asthma after stoppng smoking and inhaling black  fungal spores - silly thing to do-. I have a crooked nose - probably deviated septum - i have spina bifida obscura(ie only seen on xray and otherwise asymptomatic) a bifurcated uterous- so a wonky nose is just another bit out of alignment i guess! The things that make my nose itch causes thick mucous , with polyp- mouth breathing - asthma - spasm-

      Does your father know - or did he - know how much angst he put you thro?, i have flaring nostrils thin lips and staring eyes at the thought of him and his treatment of you

       

    • dakangelk8
      dakangelk8 suedm

      Posted

      I have one nostril larger than the other, had lots of trouble with the ovaries too (all my Fathers fault there too) He was an evil man, Been dead 5 years nearly, he never knew the extent of the damage he caused but frankly I would never have given him the satifaction of him knowing anyway :D

      Stubborn old girl that I am,

      Good news with your bloods, is that just regular ones or any more specific.

      I can't wait to get in to see that Doctor armed with all my notes.

      There is a defo link between lichen and Thyroid, just been googling. xx

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