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I have not been on the site for at least a few months now due to an awful time of bereavement, Xmas, Bathroom updating to meet needs and then falling apart, all wonderful events for this debilitating illness.
It goes without saying I am now suffering with very low mood/depression which I have been prescribed medication. I am also awaiting CBT therapy but could have to wait upto 5 months because of a waiting list.
Can anyone tell me if they have had CBT, have they been cured!!, has the CFS/ME improved or become worse.
I would be grateful for your thoughts. I am trying to read a book on it, and all the recording of activities puts me off straightaway I am afraid. I have seen sample recordings of "9 hours sleep, made cup of tea, had a wash", all recorded at different times, I think this will drive me to despair if I have to write down everything I do, eat, drink, etc.
Wait to hear from you.
Hope you all doing ok, or the best you can. Don't even get me started on the latest news on the PIP benefit. Disability is a NO, NO, in our society today SHOCKING!!
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There's a lot of spin an msirepresentation in claims about CBT leading to decent recovery rates for CFS. A recently released and critical talk on some of the evidence around CBT/GET for CFS, also touches on their implications for benefits. It is titled: Professor James Coyne Presentation on PACE Trial - Belfast 2016
I had CBT for Anxiety (before CFS onset) and found it extremely helpful, I'd go as far as to say it changed my life. However, I would say that it is only useful as you make it. What I mean by this is it relies on the patient taking an active role in their recovery. I must admit that my initial impressions of CBT weren't good because I wrongly assumed that my therapist would make me better. In fact, it took a good few sessions before I finally accepted my role in my own recovery and from there things started to improve.
I have also had CBT for CFS. Now, I think CBT helped to some extent - it helped me to find my baseline which was extremely useful, and it helped me identify unhelpful thoughts I was having in response to my CFS. I'd also say that making records of everything you do in a day is extremely tedious but it did help me while finding my baseline. It's important if you don't like some aspect t of the therapy to communicate this and to have some ideas for alternatives. In my experience, CBT is not a cure but it does help develop coping and it helped to stabilise which I found meant that I was feeling ill less often and this meant I felt less down. My only other gripe
Best of luck!
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