Cecal Volvulus large intestine Emergency Surgery.
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I had emergency surgery due to a bowel obstruction, the entire surgical staff was called into the ER at 3am in May, I believe i had 2' of bowel removed. I've been miserable since. Can anyone relate to this before i explain more? This surgery has changed my life at 45. There is way more to this "story" but wondering if anyone else has had this sudden surgery.
0 likes, 8 replies
susan44391 robinusa70
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SK1R1D28 robinusa70
Posted
cybersharque robinusa70
Posted
My own experience was with the excision of 26 cm of distal sigmoid at the same time as an ultra low anterior resection of the rectum for CA. I also had radiation even though I was Stage IIa. Differentiating the radiation from the excision can be challenging.
There are tracts of lymphoid tissue in the distal sigmoid that play a very large part in signalling that you need to move your bowels. Of course with a chunk of gut gone, you have less of a reservoir, and transit time is reduced.
Increased frequency of bowel movements can be an intrinsic problem in and of itself. Shortening the gut may mean that digestive enzymes are still active, which certainly does not help. My own solution was and is to titrate dietary fiber (for me, steel cut oatmeal), lubrication (heavy cream with the oatmeal) and delaying medication. Now, 7 years post surgery, I take 60mg of loperamide suspension HCl by mouth as soon as I get up every morning but for the first year or so I took as much as 180 mg daily in divided doses.
BRAT diet with gradual reinrroduction of real food was also useful.
Physicians who don't specialize in colonic function don't seem well-equipped beyond noting that the sphincters are intact so you should be fine. The subtext...that the physician will peg you as a drug seeker, is not helpful either. A WOC Nurse or NP should be included in your resources
susan_88101 robinusa70
Posted
Yes, I had the surgery on January 28 of this year. Same scenario, wound up in ER with severe abdominal pain. Surgical team was brought in to explain the possibility of 3 outcomes. Thank God I was a healthy 59 yr old and didn't ignore the symptoms. I feel extremely lucky that I had a great surgeon. I had a large portion of my colon removed as well as my appendix.
mary67224 robinusa70
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cynthia47415 mary67224
Posted
Hi,
I accidentally originally replied to Robin.
Just wanted to commiserate. I too had a cecum volvulus 2011. I too did not get a correct diagnosis until my 4th visit where the volvulus had completely obstructed my large colon. I have a rare birth defect that forced my surgeon to do open rather than laproscopic surgery. I guess I should have died during childhood. Surgeon calls me a miracle.
I have now encountered severe left side lower quadrant abdominal pain. I have been diagnosed with Epiploic Appendagitis. It is supposed to be self-limiting but the pain has existed at various levels of intensity for 6 years. Six weeks ago it hit a 10 on the pain scale causing me to pass out on the bathroom floor.
I have had 8 CT scans making doctors reluctant to have me go through another due to radiation exposure. I have a malrotated ectopic abnormally small right kidney and have had kidney stones in my good left kidney. Hence the additional CT scans. I take medication for malabsorption in a kidney stone prevention program.
I struggle with fulminant diahrrea and fecal incontinence. I live the life of a shut in. The only medication that helps me they will no longer prescribe (Tincture of Opium which is only prescribed for fulminant diahrrea but the name scares doctors...and note it tastes awful and does not get you high). I have never abused any substance.
All of this has deprived me of the job that I loved and the freedom of movement I used to enjoy. I taught myself Calculus and am now studying Latin to keep my mind active.
Sorry for the missive, your post was the first I have seen that so closely resembles mine. I saw one of the best gastroenterologists in the US at Dartmouth Hitchcock. It was enlightening but made me realize why so many doctors want to call any bowel problem that can't be readily diagnosed IBS. There is so much they don't understand.
cynthia47415 robinusa70
Posted
Hi,
Just wanted to commiserate. I too had a cecum volvulus. I too did not get a correct diagnosis until my fourth visit where the volvulus had completely obstructed my large colon. I have a rare birth defect that forced my surgeon to do open rather than laproscopic surgery. I guess I should have died during childhood. Surgeon calls me a miracle.
I have now encountered severe left side lower quadrant abdominal pain. I have been diagnosed with Epiploic Appendagitis. It is supposed to be self-limiting but the pain has existed at various levels of intensity for 6 years. Six weeks ago it hit a 10 on the pain scale causing me to pass out on the bathroom floor.
I have had 8 CT scans making doctors reluctant to have me go through another due to severe radiation exposure.
I struggle with fulminant diahrrea and fecal incontinence. I live the life of a shut in. The only medication that helps me they will no longer prescribe.
All of this has deprived me of the job that I loved and the freedom of movement I used to enjoy. I can tell my PCP hates seeing me because there is nothing he can do to help me and my bizare anatomy makes any diagnosis hard.
Sorry for the missive, your post was the first I have seen that so closely resembles mine. I saw one of the best gastroenterologists in the US at Dartmouth Hitchcock. It was enlightening but made me realize why so many doctors want to call any bowel problem that can't be readily diagnosed IBS. There is so much they don't understand.
carole93574 robinusa70
Posted
Yes, Summer 2012, a "massive" cecal volvulus, I was left to suffer 48 hours in pain, my children witnessed my suffering on a road trip home from Disneyland, my ex-husband denied me emergency medical attention, I nearly hemorrhaged to death! I have chronic pain, sometimes completely doubles me over, I had dropped foot, serious back injuries from writhing in pain, curled up in a ball, a pretzel for 48 hours! I fell a lot after the surgery, the surgeons told me I was lucky it wasn't a tumor and I wasn't paralyzed!