Celebrating 1 year chronic pancreatitis remission!

Edited , 4 users are following.

I was in the hospital every 6 weeks for almost 2 years with a flare up. It's still considered idiopathic, but i am so grateful to say its been a whole year! I pray we can all keep it away. Pancreatitis is the worst pain I have ever felt. Makes me thank God each day I feel good!

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8 Replies

  • Posted

    we all want to know what you've done to achieve remission! I've also been on a three year run of hospitalizations almost monthly, no way to live ๐Ÿ˜ฆ......

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    • Posted

      thats the worst part of this... I honestly do not know. I was taking Creon 3x a day, couldn't afford it any longer and still managed to keep it away. I have had no luck with gastro docs, fancy scans at MCG, MUSC etc. it makes no sense why i have it and now why it hasn't show back up again. the only real change ive made is drinking a ton of water all the time.... if you drink alcohol, you HAVE to stop.

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  • Edited

    way to go annie1980!!! I had this crime of a disease and obviously still do (same, chronic idiopathic). was in serious pain for a year then diagnosed and spent 3 months in hospital. I will be one year pancreatitis free next month and what a feeling to feel normal again ( knocks on wood) โœŠโœŠโœŠ stay well๐Ÿ˜‰

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    • Edited

      haha yes we should! there have been days that haven't been great just because of the stomach troubles that have followed me on this journey. But my pancreas itself seems to be holding up. as long as I'm smart with my food intake, lifestyle and the obvious nono's it's been more than the feeling of hope, it's a self gratitude feeling that I usually keep to myself. And yes, knowing that I have someone who seems to have the same-ish condition as me is pretty rare considering how different this horrible ghost of an assh*le disease can be for us. I gotta go to work but I'm sure we both have questions that could help in some way. I know I do anyways.... have a good dayโœŒ

      Moderator comment: I have edited this post due to the swearing. These are open forums so as per the T&Cs please do not use offensive language in posts otherwise they may be deleted.

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    • Posted

      it is nice to have someone that can relate. It makes you feel lonely and helpless. Everyone judges you and assumes you are an alcoholic. I take a little comfort in the statistics that show how rare it is for women especially under 40 to have pancreatitis, even though people judge you no matter what.

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  • Posted

    I to have flareups all the time and for me it is nearly 5 years. I have a question though, has anyone else had problems with food intake. For example starting this year, I cannot tolerate any food at the moment without vomitting or diarohea . Been hospitalised once and told I had an ulcer (I dont). has this happened to anyone else. Any suggestions would be appreciated.

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    • Posted

      Yes! I have been told I had an ulcer too bit it was diverticulitis. Also very painful. I feel like the pancreatitis is just one symptom of something bigger but no one has been able to help me long term so far. Do you run a fever with the vomiting and diarrhea?

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