Posted , 4 users are following.
I was in the hospital every 6 weeks for almost 2 years with a flare up. It's still considered idiopathic, but i am so grateful to say its been a whole year! I pray we can all keep it away. Pancreatitis is the worst pain I have ever felt. Makes me thank God each day I feel good!
1 like, 8 replies
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Stupage22 annie1980
Posted
we all want to know what you've done to achieve remission! I've also been on a three year run of hospitalizations almost monthly, no way to live 😦......
annie1980 Stupage22
Posted
thats the worst part of this... I honestly do not know. I was taking Creon 3x a day, couldn't afford it any longer and still managed to keep it away. I have had no luck with gastro docs, fancy scans at MCG, MUSC etc. it makes no sense why i have it and now why it hasn't show back up again. the only real change ive made is drinking a ton of water all the time.... if you drink alcohol, you HAVE to stop.
Coatesy1978 annie1980
Edited
way to go annie1980!!! I had this crime of a disease and obviously still do (same, chronic idiopathic). was in serious pain for a year then diagnosed and spent 3 months in hospital. I will be one year pancreatitis free next month and what a feeling to feel normal again ( knocks on wood) ✊✊✊ stay well😉
annie1980 Coatesy1978
Posted
yes!!! lets celebrate! its nice to have someone else that has been through this.
Coatesy1978 annie1980
Edited
haha yes we should! there have been days that haven't been great just because of the stomach troubles that have followed me on this journey. But my pancreas itself seems to be holding up. as long as I'm smart with my food intake, lifestyle and the obvious nono's it's been more than the feeling of hope, it's a self gratitude feeling that I usually keep to myself. And yes, knowing that I have someone who seems to have the same-ish condition as me is pretty rare considering how different this horrible ghost of an assh*le disease can be for us. I gotta go to work but I'm sure we both have questions that could help in some way. I know I do anyways.... have a good day✌
Moderator comment: I have edited this post due to the swearing. These are open forums so as per the T&Cs please do not use offensive language in posts otherwise they may be deleted.
annie1980
Posted
it is nice to have someone that can relate. It makes you feel lonely and helpless. Everyone judges you and assumes you are an alcoholic. I take a little comfort in the statistics that show how rare it is for women especially under 40 to have pancreatitis, even though people judge you no matter what.
leigh77544 annie1980
Posted
I to have flareups all the time and for me it is nearly 5 years. I have a question though, has anyone else had problems with food intake. For example starting this year, I cannot tolerate any food at the moment without vomitting or diarohea . Been hospitalised once and told I had an ulcer (I dont). has this happened to anyone else. Any suggestions would be appreciated.
annie1980 leigh77544
Posted
Yes! I have been told I had an ulcer too bit it was diverticulitis. Also very painful. I feel like the pancreatitis is just one symptom of something bigger but no one has been able to help me long term so far. Do you run a fever with the vomiting and diarrhea?