celiac breathing problems

I can't help sorry, but people will soon reply to your post and I hope they can help.

Hi, Ron. if your lungs and heart is all right, as doctors say, then it sounds like panic attacks and anxiety episodes. I had it a year after being diagnosed. That is just lack of all vitamines. Maybe mostly iron defficiency. I am also very dizzy sometimes. It has stopped after I had Cognitive behavioural therapy for 10 months. I am still very dizzy, but not panicking. Maybe these symptoms of yours have nothing to do with your lungs and heart, but mostly mental, cos hightened anxiety is very usual for celiac disease sufferers.

Jana

Ron, I don't want to be alarmist but your symptoms are very similar to the ones that I suffered.  I was used to walking 1 or 2 miles on most days but found that I was increasingly unable to do so because of running out of breath.  It got to the stage that I couldn't walk for more than 200 yards or so without having to rest.

Like you I was sent for chest x-ray and ECG sessions, both of which came up quite clear (apart from the chest x-ray which came up with the interesting, but quite irrelevant, fact that I have two extra ribs!).  My GP was not happy, though, and tried other tests, the one that cracked the problem was a blood test to look at my red blood cell count.  This disclosed that I had a serious loss in this area.  The GP came to the conclusion that I was sufferering from internal bleeding and sent me off for an endoscopy session.  The biopsies taken during the gastroscopy phase disclosed that I was suffering from Coeliac disease, which was quite unexpected, and the colonoscopy phase that I had bowel cancer.  Since I opted not to have the process carried out under anaethetic, I was able to watch the progress of the colonoscopy test so saw the growth, ugly brute it was too.

I strongly suggest that you press your GP to carry out further tests particularly looking for your red blood cell count.  But, above all, don't panic if you go through the same route as I did and get the same diagnosis.  Two things that I have always dreaded are being in hospital for surgery and developing cancer.  My recent experiences have dispelled both. 

After an initial phase of chemo I had the surgery in November last year.  The operation took place in the late morning and I was eating a full meal in the afternoon!  I was only in hospital for 5 days and most of this was waiting for my digestive system to demonstrate that it was working from end to end, so to speak.  I am now on the post-op chemo phase but, apart from some relatively minor side effects from the chemo,  I'm more or less back to normal with the stamina that I used to have before this started.

By the way, all this took place from before to just after my 78th birthday!

I hope that your problem is not the same as mine but if it is, be assured it's not the end of the world.  These days, the techniques and treatments available are very effective.