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Coeliac Disease

New discussion Join group Also known as Dermatitis Herpetiformis, Gluten Intolerance

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  • Happypai 1

    Coming unglued

    I stopped eating gluten and November because I have family members becoming positive with celiac disease. I had really bad upper back and neck problems. It felt like really bad pressure period I couldn't really call it pain. I dealt with this for 10 years or more. It just seemed to slowly progress.

    2 replies 0 votes Last reply
  • helen30692 1


    I was diagnosed with IBS way back in my late teens (I'm now 46) i've had three children ( and three miscarriages)I have hypothyroidism, pernicious anemia, recurring mouth ulcers, bleeding gums (my dentist can't find a cause ) three years ago I was advised to try the low FODMAP diet. Blood tests and

    1 reply 0 votes Last reply
  • marcus4101 2

    Please help!!!

    Been ill for a few months now symptoms started out as heart palpitations which ended in several trips to er ekgs which stated that I had possible left enlargement. Then followed by blood work, chest X-rays, 48hr halter monitor, echos, and stress tests which all came back normal.. I was then

    1 reply 1 vote Last reply
  • avhenri 1

    Support when diagnosed

    Hello, I was wondering if any parents with children diagnosed with celiac disease could share their thoughts on the support they received from health services? Do you think the support could be better? Thank you for taking the time to read my post. Av

    0 replies 0 votes Posted
  • caitlin02656 1

    Is it worth eating gluten again to get tested?

    I cut out gluten around 3 months ago now and I've been feeling so much better, but when I spoke to my doctor last week she told me I should get tested for coeliac. I told her that I'm fine with not knowing because I don't want to eat gluten again for 6+ weeks, and she was insisting that I could get

    3 replies 0 votes Last reply
  • lara41608 2

    3 year old son positive result me negative

    Hi, So where to start. I started feeling ill 6 weeks after having my son 4 years ago. Upset stomachs bloating cramps lost a lot of weight. Had bloods done it revealed I had low ferritin. I discovered pasta and bread was making me ill so cut them out. I've had loads of coeliac tests and they always

    4 replies 0 votes Last reply
  • elena81919 1

    Negative Coeliac Blood Test result

    Hello, I have just received a negative blood test result for Coeliac Disease.  I am very frustrated as I have so many of the symptoms.  Tiredness, headaches, mouth ulcers, stomach aches, constipation, bloating and diarrhoea.  My hair is also falling out.  My Dr has indicated that I may need to have

    13 replies 0 votes Last reply
  • Lilebz77 1

    I'm at my wits end...please help...

    My lg is now 3&1/2 years old she's had stomach issues from birth. (Lactose free, colic, then under a Dietician at 1 year and told she had dairy and soya allergies) but over the last 9 months she's been getting progressively worse, she has many symtoms of celiac but after months of arguing with docs

    0 replies 0 votes Posted
  • smith84220 1
  • adclee 1
  • suzyh 1

    Upper left quadrant pain, radiating into back

    Sorry, this is going to be ! About aged 17 I started with severe abdo pains usually after gluten ingestion now I look back and chronic constipation. Diagnosed IBS at that time. A few years later about aged 26, worsening anaemia (very low Hb indeed) with terrible exhaustion. Coeliac bloods

    1 reply 0 votes Last reply
  • lunalove 1

    So Confused.

    You would think that as I nurse, I would have some insight or not be so confused about what is going on, but being on the other end (being the patient) is downright frustrating.  I've always felt like I'm more sore than the average person. I always have had minor aches and pains throughout my body,...

    4 replies 0 votes Last reply
  • leigh74005 3

    Wondering if maybe I have coeliac

    Hi all. I'll apologise before hand for the length of my post. Here goes. For as long as I can remember, I've always had a nervous bowel. Would always manifest as loud noises and diarrhoea. I useually had no other symptoms that went alongside this apart from occasional acid reflux and heartburn.

    15 replies 0 votes Last reply
  • mary jean40205 1

    Should you see a Celiac Specialist

    I was diagnosed in November. I have been gluten free but I still have some of the symptoms mostly in the morning . The gastrologist only told me I had it and to go on Gluten Free diet. Do you get tested again ? What kind of Dr should you go to afterwards? Is there something I should be doing ?

    3 replies 0 votes Last reply
  • leigh74005 3

    Negative blood test positive biopsy.

    Just a quick survey. How many of you actually tested negative by blood test but positive by biopsy? I've read that the blood test is 98% reliable. I've not been diagnosed with celiac but have a lot of symptoms of it. Had a blood test that was negative in august. Just had a biopsy done when I had

    7 replies 0 votes Last reply
  • lauren77392 2

    I don't feel any better

    Hello I've posted before but here goes again! I have been diagnosed and gluten free for 6 months now. At diagnosis I had replacement b12 injections. 6 months on I don't feel any better at all. In fact I feel worse as the weeks go by. My main symptom and the reason I initially went to my GP was

    2 replies 0 votes Last reply
  • mari34228 3

    Son having a blood test tomorrow

    Hi, I took my son to the GP yesterday as he has been having many physical and mental problems for some time now. He has already been referred to counselling, and we have had one session so far. I mentioned coeliac disease to the GP and he said it was worth checking. This was based on the fact that

    2 replies 0 votes Last reply
  • mikki53585 1

    Celia and Infertility

    I am doing a research project about links between celiac and infertility. If anyone has experience or knowledge over this that would be very helpful!

    0 replies 0 votes Posted
  • jmcg2014 6

    Lump in throat

    Hi all For the last 2 years I've had what felt like a lot of extra mucous in my throat, a horrible constant lump that won't shift. I've had all kind of tests and scopes and theres nothing there. It's been horrible. Lately my gp thinks I may have coeliac as I've been anaemic a few times lately and

    16 replies 0 votes Last reply
  • sarahr78 1

    Negative coeliac test results

    Hi everyone! I've just found this forum and am excited to possibly be able to talk to some people who can empathise with my symptoms! I have just had a negative blood result for coeliac and have been told categorically that I don't have cd. But I have so many symptoms (listed below) that I am

    18 replies 0 votes Last reply
  • karlzemmo 1
  • hollym 1

    Could this be something else?

    Hi, sorry if this post is quite long and if I'm graphic in describing my symptoms, I'm just desperate for an answer . Starting May this year I've been having gastro symptoms. It just started as some mild cramping pain in the lower abdomen and needing to pass stools more frequently. I thought it

    3 replies 0 votes Last reply
  • sid123 1

    Advice please

    Hi everyone.I've just joined the site because I would like help from anywhere and anyone.i was diagnosed with coeliac disease a month ago and having great difficulty with food now.I didn't have any symptoms except my bloated stomach - I look 6 months pregnant!I get told by some people I need to be

    2 replies 0 votes Last reply
  • jlh1040 2

    Silent Coeliac?

    Has anyone been diagnosed with silent coeliac? I had some blood tests last July for another issue and it came back that I had low calcium, high phosphate and high bone resorption (marker for osteoporosis). Doctor said it was a lab error and got them done again January - same results resorption

    6 replies 0 votes Last reply
  • jacksquirrel 2

    How long does it take to feel the effects of gluten?

    I have had IBS for years now but from the beginning of this year I have been getting pains in my abdomen on and off. I went to the doctors and they have done the tests for ovarian cancer which thankfully were clear. I have also been getting hives every evening with no explanation but hayfever

    14 replies 0 votes Last reply
  • tony49489 1

    Coeliac suspected.

    I am male, 34 and have had plenty of encounters wih doctors, but none ever suggested CD. After researching extensively I'm suspicious I might have it, but before I go out to see a doctor (again!..) I'd like to share my concerns with you guys hoping you'll help me understand how strongly my symptoms

    2 replies 0 votes Last reply
  • anne91595 2

    What do my lab results mean?

    I am 21 years old and have had GI problems since I was a baby. I have diahrrea almost every week and can't gain weight. (However not losing weight either). I am really skinny and would like to gain weight. I just went to the GI doctor and he tested me for Celiac. My IgA is really low and i was

    1 reply 0 votes Last reply
  • anne91595 2

    Does this sound like Celiac's Disease?

    I'm 21 years old and from the US and have had stomach problems since I was born. I failed to thrive for the first few years of my life and was considered malnourished until late teen years. I am finally on the charts as far as my weight goes (I'm still very thin though). I have a lot of digestive

    23 replies 0 votes Last reply
  • EliKat 1

    Help could this be CD?

    I'm typing this for the husband in hope for some answers. My husband is 40 and has been feeling ill for over a year an a half. Yet every lab, test, procedures that are done come back as normal. He hasn't worked since March because he has so much pain and extreme tiredness. It's been rough seeing

    5 replies 0 votes Last reply
  • littleweed 1
  • tomh432 1

    Self diagnosed Gluten intollerance, should I still see a doctor?

    Hi I had probelms for a number of years with discomfort, bloaing and loose bowles - I decided it may be to do with gluten and tried cutting it out. Within 2 days I felt much better, and have been gluten free for a few months now. I have had gluten by mistake a couple of times and symptons

    4 replies 1 vote Last reply
  • Forestflower 3

    Help on what's gluten free

    I've been diagnosed with ibs for over 6 years now and am now under investigation for Celiac disease ,gluten and lactose intolerance and bactierial stomach infections. I want to attempt to change my diet again to reduce pain. I'm wondering if Tuna and sweetcorn (no mayo) Salad Chicken White rice

    3 replies 0 votes Last reply
  • K.kgirl1223 3

    Canker sores

    As a kid I used to get these all the time. But going gf made them go away but when I eat gluten I get them all over. However I am now getting them if I eat foods within the same fryer. If I eat something contain gluten in the ingredients i vomit and get diarrhea along with major stomach

    1 reply 0 votes Last reply
  • gemscott54 3

    Could it be?....

    Hi all, I have some symptoms and I'm wondering if any of this sounds started getting a lot of mouth ulcers about a year ago, sore gums and then sore throat/voice. Gradually I started getting increasing other digestive symptoms. I've always been prone to loose bowels or constipation

    3 replies 0 votes Last reply
  • sarahr78 1

    Is this REALLY coeliac?

    i have had bad sickness and diahorrea for about 20 years and docs have always said it's ibs. One doc sent me for endoscopy in 2013 to test for coeliac but it came back clear. In the last 3 months my symptoms have intensified to the point where I get sickness and diahorrea about 3 weeks out of four

    0 replies 0 votes Posted
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