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Coeliac Disease

Also known as Dermatitis Herpetiformis, Gluten Intolerance

Can you help? Discussions needing a reply

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  • Coeliacs but confused please help

    Hi, I was diagnosed with Coeliacs, not due to symptoms but because I was tested when my father was diagnosed with it. I am following a gluten free diet and have for 2 years now but I am confused that I have (not knowing till after) eaten gluten on a number of occasions in quite large quantities and had...

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  • Coeliac and memory

    I've recently been diagnosed with coeliac disease and i have such a terrible memory!!! Up until around 2 years ago i had a great memory, i could remember things from the week before and most importantly my childhood and big life events. i was also a stand up comic, i was always on and was quick at...

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  • Could I have coeliac disease?

    Hi all, I'm 44 years old, suffer occasionally from migraines and have recently been diagnosed with mild carpal tunnel syndrome.  I frequently suffer from diarrhoea and flatulence and have been most my life.  When eating a lot of bread I often feel fatigued and have noticed the morning after...

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  • Seems like Celiac

    Hi all, Don't know if I have Celiac but for the last few weeks I have extreme bloating in my chest after every meals. I have been eating mostly veggies but during the day I eat gluten items like applesauce, lactose milk and aloe and apple juice. I seem to not be able to belch and it gives me great...

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  • Sugar & Health Concerns in Gluten Free Products

    I am currently doing a thesis in Reducing Sugar in Gluten Free Products.  I was wondering, if you are UK based, if you could please fill out my questionnaire.   Thank you very much.    Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in...

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  • My father & Celiac Disease

    I am writing this in sheer desperation in the hope that someone can help me. My father has been very ill since February this year suffering from contant diarheoa. His weight has plummetted to just over 6 st (39kg's). He has also been having epeleptic seizures and is now heavily medicated to control...

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  • Can i have Cealic Disease?

    I have had stomach pain for years but lately it became unbearable. I realised that my pain got worse after i changed my bread. I suspected for gluten intolerance. I had all the symptoms & did a blood test & it was negative. During this time i have been almost gluten free and i feel 1000 times...

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  • Negative coeliac test results

    Hi everyone! I've just found this forum and am excited to possibly be able to talk to some people who can empathise with my symptoms! I have just had a negative blood result for coeliac and have been told categorically that I don't have cd. But I have so many symptoms (listed below) that I...

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  • Gluten free diet making me unwell

    A few months ago i had a colonoscopy and endoscopy due to q history of unexplained weight loss and stomach pains. The biopsies taken came back showing a evidence of gluten intolerance and the doctor said i might benefit from a gluten free diet and to trial this for 4 weeks and then return to see him....

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  • Coeliac & Arrhytmia

    Hallo there, Recently I have been diagnosed with Coeliac disease and with Arrhythmia. Symptoms are frequent diarrhoea, chest pain with palpitations, severe dizziness, tremors and tiredness mostly occurring mornings or midday. I had many ecg's, chest x-rays, blood counts, ecg stress test, echocardiogram...

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  • New symptoms since going Gluten Free

    I was diagnosed as having Coeliac Disease last October after finding out in the summer I had chronic anemia which resutled in a blood transfusion and eventaully led to CD testing which came back borderline on blood test but positive on biopsy. I had suufered with constipation for years (even since a...

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  • Bowel problems

    Does anyone else with Coeliacs disease suffer bowel problems. I have been coeliac for 20 years and still frequently have to go to the toilet, (up to 5 times a day) especially in the mornings, just after waking. 

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  • Can I drink green tea or hot tea from China in general?

    Hello everyone, I just relaized that I need to get tested asap for Celiac Disease. I have the rash on my fingers, the gas, stomach pain from anything wheat and sugar related.  even when eating a clear diet, I get symptoms. One thing That might be the culprit is this tea from Taiwan and china. I...

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  • Coeliac diagnosed!

    I have recently been diagnosed with coeliac disease been having really bad stomach cramps for months now.I was feeling fine until now I have flu like symtoms I am wondering could this be down to gluten exposure !

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  • Coeliac disease

    I've just been told that I have Hiatus Hernia, but I am wondering whether I might have coeliac disease as well, because of something I heard while I was having endoscopy last week. I am very worried that this might be the case, but someone in the forum might be able to give me some advice

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  • Refractory Coeliac

    I've had coeliac disease for over 15 years and have followed the strictest of diets which my bloods surprisingly getting worse, the doctors and dietician are not sure why my bloods are running so high and we can't seem to find an answer, I've been tested for refractory coeliac once before...

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  • Other food intolerance with celiac

    Orgianly I was diagnoses with non celiac gluten sensitivity so I went on the gluten free diet. Doctor at that time did not run tests. Going gluten free helped alot! 6 years after being gluten free i had issues again. Was sent this time to gi doctor. The go doctor said it sounded alot like celiac so...

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  • Symptoms pointing to Celiac disease?

    These are the symptoms ive been having since the beginning of December last year. It did stop for 2 month in between but came back with a vengeance! Doctors have told me its just hemmarhoids and an anal fissure however im not convinced. One of my grandparents has celiac disease and another has crohns,...

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  • Does a negative blood test always mean no Coeliac Disease?

    I was diagnosed with IBS, mainly abdominal cramping pain and intermittent diarrhoea, about six years ago - I'm now 71.  At the time I remember my GP checking to see if I had Coeliac Disease and the result was negative. In an attempt to try to improve the IBS, which was really getting me down,...

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  • Possible Coeliac?

    Hi, I am 18 and for the past 6 weeks I have been suffering from a strange combination of symptoms. It started with a general discomfort in my upper abdomen below the ribs along with pains. These pains are intermittent and are sometimes felt in the back and come in waves. I then developed a...

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  • Next step after blood test?

    Hi all, My daughter's blood test came back positive for Celiac. I've been told by lots of people that she will now need a biopsy or another test to confirm but the doctor said she might not. She is 10. Can anyone tell me what they next step was for them at this stage please and how long it took?...

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  • Coeliac Disease and Eyelid problems

    I was diagnosed with Coeliac Disease at the start of last December, after being ill for a good few months. I have now been on a gluten free diet since then and my symptoms have dramatically improved. Since being on a GF diet i have seemed to develop problems with my eyelids, which are getting progressively...

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  • Mucus stools

    Hi I'm 26 years old with coeliac disease and I'm strictly gluten free for over 9 years. I'm having soft mucus stools for the past few weeks with the odd semi normal stool in between. I'm also having a lot of tummy pressure after eating. I'm eating small amounts of mainly toast, chicken...

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  • head sores

    coelic about 3 yrs ago( head sores)  dont know if any connection had them b4 diagnosed cant find anything that helps driving me crazy wondered any one else simular problems thanks nicola 

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  • Feeling really unwell

    Going through tests at the moment for coeliac disease and just feeling very lethargic and unwell. I had been gluten free for a few months but as I now have appointment for endoscopy I have to eat gluten. While I was gluten free I did not feel any better. Any ideas ?

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  • So many symptoms

    Im looking for at least one person out there that can relate to this.ive not been tested for coeliac but im having a blood test this week.started about 5 years ago with chest pains and lower ab pain.not a bad pain but worried me.ive had two ecg and blood tests since and everything seems normal.however...

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  • Grown out of coeliacs

    When I was 16 I was diagnosed coeliacs confirmed by blood test and biopsy and immediately commenced the gluten free lifestyle and what followed was 10 years of hell. My skin condition was disgusting I developed severe Acne on my face and back, I couldn't go swimming because I didn't want people...

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  • When I get depressed I find it really hard not to cheat

    Whenever other things in my life get on top if me, I find it increasingly hard not to cheat. I dont do it regularly, maybe once every 6-8 months. Afterwards I'm filled with regret then I obsess over the damage I might have done and I worry myself further. I know about all the health risks I must...

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  • celiacs seizures

    Does anyone out there get grand mal seizures from celiac disease. I am 57 and have been gluten free for 15 months and I am better in many ways, but the seizures remain. Will the seizures go away once I bsorb more nutrition?  If you have seizures, how do you deal with them?  Afterwords, I...

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  • IBS/coeliac

    I was diagnosed with IBS way back in my late teens (I'm now 46) i've had three children ( and three miscarriages)I have hypothyroidism, pernicious anemia, recurring mouth ulcers, bleeding gums (my dentist can't find a cause ) three years ago I was advised to try the low FODMAP diet. Blood...

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  • Advice for a newbie please!

    Hi all Firstly I apologise for the length of my post but am hoping someone will be able to help. I am a 31 year old woman who has been experiencing symptoms for the last three years.  Crohns and colitis runs in my family and 3 years ago my symptoms started with awful acid reflux, mucous stools...

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