Coeliac disease
Posted , 3 users are following.
Hi, I've just found this forum as I'm wanting some advice and help please.
Ok i just just had all my bloods tested and the two tests ive had for coeliac disease, one came back positive and the other negative.
my doctor is sending me onto a gastro specialist to discuss further.
my symptoms are-
I am pretty constipated but i always have been.
I get pretty anxious when im full or maybe eat certain foods like a heavy sandwhich and chips or a bowl of pasta and my heart races fast.
I sometimes get a bloated stomach but its not everytime is eat gluten its just now and again and thats it really.
What are your thoughts on these results?
Im scared about being told i need a biopsy for nothing as im a wimp.
I feel like a fraud please help.
0 likes, 20 replies
sam18386 becky01750
Edited
i'd wait for the tests, keep eating what you want and let us know when you get the results.
becky01750 sam18386
Posted
Thats my plan. Im unsure if i will go down the endoscopy route though as if my bloods state i have CD and the specialist thinks it then i dont want to put myself through an awful biopsy 😦
sam18386 becky01750
Posted
c.d? if it's what I think you mean, c.d is something confirmed by a set of biopsies, do it like i did through deep sedation. it worked and i don't have to have it again. good luck.
becky01750 sam18386
Posted
Coeliac Disease I meant
sam18386 becky01750
Posted
thought so but not entirely sure,the biopsies am key, they will tell you if you have it or not, no they are not nice but for this they are important! good luck! 🤞
becky01750 sam18386
Posted
Thanks Im pretty sure that will be the next step for me. I will let you know on saturday what the consultant says.
sam18386 becky01750
Edited
bless you good luck, it's not nice but once it's done you don't have t do it done again
.🤞🤞
becky01750 sam18386
Posted
I have to have an endoscopy on the 21st July 😦
sam18386 becky01750
Posted
it may be your only one, you need to know so go for it, take someone with you and eat a normal diet for you like you normally would, they will probably do a camera and biopsies, if you are scared of swallowing the camera ask for deep sedation, you'll be under only a few minutes, you shouldn't even had to wear the horrid socks!
becky01750 sam18386
Posted
Hi Sam
I have already already asked for sedation and they are doing biopsies as well as the camera. Im hoping the sedation makes it easy.
The socks are sexy lol
sam18386 becky01750
Edited
good luck it will be over before you know it! 🤞🤞🤞
becky01750 sam18386
Posted
all over and done with! He said it all looks healthy so i just need to wait to hear about my biopsy results now.
sam18386 becky01750
Edited
well done, you did well! tell us what the results say....
becky01750 sam18386
Posted
ive tested positive x
sam18386 becky01750
Posted
aw bless. well at least you finally know.... contact coeliac uk, look online for a company called juvela as you'll get a free starter kit of goodies to kickstart a gluten free diet. let people know, be honest, get a separate toaster and welcome to the gluten free world... 😁 og you should be offered a course to tell you about being coeliac, ask your doctor. do you have any gluten free stuff? eat something bland and start to gluten free now. 🤞😁
becky01750 sam18386
Posted
free stuff! Brilliant i will sign up now.
Its a lot to take in. Im going to just start with cutting gluten out of my diet first, then worry about the cross contamination another time.
I don't have much damage so I have managed to catch it early.
I have signed up to coeliac uk however, i have no idea what i am looking for on the site ☺
sam18386 becky01750
Posted
hi becky, it's lot to take in and lots to do but it will heal any damage the stricter you are to begin with. ask to speak to someone initially, they can then offer you advice and take you through anything you want to know bit by bit. if you go shopping and take your phone with you you can find out if you can have certain things. if you eat meat and fish it's easier and if you're not allergic to anything else then happy days! i have allergies and am veggie. tough! most chocolate is g/f , some alcohol like vodka is naturally g/f , fruit, veg etc is naturally g/f. learn to read ingredients, i think you can get an app for where you do your major food shopping and stuff should be labelled. good luck, see how ypu do - remember red, white, blue and have no rye, wheat or barley. the toaster is vital as bread that has gluten in cross contaminates quickly!
becky01750 sam18386
Posted
I do eat meat and fish thankfully and im not allergic to anything else.
Looks like i need to order a new toaster then. I was just going to clear mine out.
I'm going to get in touch with a dietitian to help me out i think. I think i can get my head around it at home its just eating out - which i do a lot. Plus airports, on a flight, takeaways and parties like buffets I have no idea about.
I think M&S are pretty good at GF stuff. Its like being at school all over again all this learning.
I almost want to just forget what my results are and forget about it 😦
sam18386 becky01750
Posted
hi Becky, aw bless you 1;step at s time! meat and fish will help you won't be limited. watch out for breadcrumbed anything, hence gluten overload, you can get fish.fingers, pies sausages etc. that are gluten free. most supermarkets will have free from sections, unless you live on a remote island or anything? marks do yummy things Sainsbury's do lots of stuff, Tesco's, asda etc. you will find plenty for you, i have found less for me. you have to have guts when out to say i am coeliac. certain chippies will offer gluten free nights, they have oil that is swapped on particular days, pizza places definitely do gluten free, watch out for chinese take aways and indians too. some things are easier than others. keep asking, speak to a dietitian and see if the courses are offered any more. watch out for certain things like soy sauce!
sam18386 becky01750
Posted
if send me your email address i can send you some links?